Indeed. But I fought too hard for this baby to let unsympathetic medics shrug it off.
I am fighting through every avenue possible to give this boy the best chance. I'm just a control freak, and quite frankly don't want to lose ta second child and go through a 5th round of ivf.
Hi Ferreroroche,
Sorry to contact you so long after you've posted but ive been up all night reading this forum and your journey with SCH really hit home.
Two weeks ago I started bleeding, went into UK A&E, waiting 6 hours had a scan, they found a baby's HB and sent me home. No mention of SCH and no advice. The next day I bled heavier and so rang midwife (I had to demand to speak to one) and she said it didn't sound right and to wait a day and call back if no better. Rang and called back the next day and spoke to a different midwife who said I should accept I was miscarrying and to wait for it to happen. She reluctantly said I could have another scan and this time the woman said I had an SCH and it would either resolve or I would miscarry and I should just bleed it out. I asked if I should rest or do anything different and she said absolutely not - to carry on as normal. No follow up scans or appointments and told not to come back unless I miscarry.
So after working out anytime I got up and moved I had terrible cramps and bled a lot more I went to see my doctor. She apologised she had no knowledge about SCH but said she thought I should rest and avoid sex- no mention of this by the midwife. So now I have been reading the forums and medical reports. I see that SCH carries about a 10% chance of MC but this can go up to 25% is bed rest doesn't happen, I see water is critical and no sex.
I am totally appalled by how the NHS have treated me and just left me at home to bleed. I've seen your notes about finding a good doctor and a private consultant? Can you advise which private consultant you went to please? I rang my work health care and spoke to a lovely lady who said she didn't think I would be covered but would authorise my one session with a consultant - as she didn't think it right anyone should be left at home to bleed with no advice. She said to research and try and find the best consultant to help as I should make the one session count as she said AXA will most likely not offer follow up care.
Would really appreciate your advice, or anyones. I'm totally lost and just need any advice about getting some better advice and what medicines (I saw some stuff you were taking).
Thanks in advance
Helen
(16 weeks)
Hi Helen, sorry to hear about your SCH and the lack of sympathy from your midwife.
Sadly the private consultant I saw has now retired from private practice and is just back in the NHS doing high risk pregnancies.
However, I can tell you what I found to help from my battle.
Whilst I was actively bleeding I stayed on bed rest. My GP wasn't an expert in hematomas, but was sympathetic towards my issue and agreed that anything that would aggravate a tear/cut whilst it was I healed would effectively prolong the amount of time it took to heal. So she was happy to sign me off work on bedrest for as long as I wanted.
I was on progesterone already because of my ivf protocol and she agreed to keep me on it as it relaxes the uterus and she didn't want to do anything that may make it more irritable (by 15 weeks I was suffering from regular braxton hicks from the irritation).
I drank water, I had no sex.
My consultant agreed that there was a slightly increased risk of PROM, prematurity and placental abruption, but the odds were in my favour statistically.
He put me on long term antibiotics after a second UTI as he said we really needed to keep the environment calm.
He did not want me to go full term/overdue because he said once I reached 38 weeks the risk to me of abruption was there but there was limited benefit to the baby to stay in. So I had a c section at 39 weeks. This was my choice, he was happy to induce me and monitor my labour closely, but I didn't want the anxiety (my first birth without sch was very traumatic).
But many without a private consultant and extra drugs go on to be successful.
The common helpful tactics we all found were.... Rest whilst bleeding. As much as possible. Drink lots. No sex, no orgasms... Nothing that will make the uterus contract.
Once the bleeding stops, take it easy for at least 2 weeks after the last episode to prevent another bleed starting.
After this, you should be ok to resume more normal activity.
Although my sch never went away and was sitting clotted on the placenta at birth, I could tell when it was no longer active (a few weeks after spotting ceased) as I just felt better... All my pain went and my pregnant bump felt more normal, I started to feel comfortable pottering about the house and climbing the stairs. And my braxton hicks never stopped but did decrease in frequency.
I hope this helps. Good luck.