The Hammersmith Kisspeptin IVF'ers :)

[dale]

Hi ladies, I would like to join the facebook group please, ive searched for claire staunton but there's quite a few, whats the profile pic? Started period here today so just gonna email Ali x

 

[april0308]

Her profile picture is of her and her husband on their wedding day.

If not private message her on here and she'll add you.

Wish my period would start! Must be CD 60 now, given up keeping track x

 

[JJ1983]

I wouldn't worry too much April. Ali said we can get a prescription for provera at our co-ordination app if our period doesn't come

 

[shorty 786]

im so excited to hear from mossops tomarow about the co ordination visit!!

 

[Mossops]

I'm quite nervous shorty, I've checked and rechecked that we signed and filled in the paperwork. I'll report back when I get home x

 

[hfds]

Hi Ladies,

I'm writing in the hope that one (or hopefully some of you) will be able to give me some advice.

I have PCOS and am currently taking my 7th cycle of Clomid. I've been to see my consultant today and whilst we're going to try another two rounds of Clomid, he also recommended that I pUt myself forward for the Hammersmith trial.

I've found the contact details and I've started writing an email but it's difficult... I don't want to come across too desperate (or maybe I should?!) but also I don't want to seem blasé either. It's really difficult.

Both myself and my husband really need to have the next steps in place to have something to focus on. The last few months have been really stressful.

Anyway, if there is anything you think would be worth mentioning to them, or if anyone has a better suggestion for getting in contact, I'd be so hugely grateful.

Congrats to you who've conceived and lots of luck to those of you trying.

Thanks for reading this

X

 

[wellsk]

Hi hfds!
Have you seen the requirements of the trial? If so I would just send an email saying you'd be interested in taking part and you meet such and such the requirement. Don't worry about coming over desperate or blase, I don't think they mind. They're just interested in whether you fit what they need

 

[JJ1983]

Welcome hfds! Wellsk is right, they'll let you in provided you have cystic ovaries and a high AMH. Good luck! Have the spoken to you about injectables before ivf if clomid doesn't work? I did two rounds of gonal f but sadly had to cancel both rounds as produced too many follies and they wouldn't let me risk high order mulitples. You might have better luck though

 

[teaparty]

Hi daisy, dale and hfds. I'm right at the beginning of my journey and new here in the last week. Thought I'd say hi and mention how lovely and welcoming the other ladies here are. I don't know the answer to the drugs question but hfds I know the answer to your question. I'm pretty sure I probably sounded desperate but when I emailed Ali early this year I just spelled out how I felt I met criteria and that I wanted to take part. Go for it... As wellsk said, they're just looking for people who fit what they need.

Hi everyone else; hope you've all had a good day x

 

[hfds]

Hi Ladies,

Thanks so much. I really appreciate you coming back so quickly, and with some good and reassuring advice. So lovely of you!

I haven't spoken to my consultant about injectables, so thank you, good tip. I will do. I've been given two other sets of tablets to take alongside Clomid for my next two goes. Not read up on them yet but let's hope they don't add to the hot flushes!

Thanks again. I'll get that email on its way!

Lots of luck to you all on your journeys.

X

 

[syma]

Welcome Hfds,

Hi ladies, just got a email from Ali confirming coordination Dec 2nd 11am and all the forms to sign.

Thought he forgot about me for a moment. Hope u ladies receive yours soon. All on the go from here. Good luck x

 

[happiness12]

Hi everyone
I'm Hennah, I'm 26.
I'm going to start my Kisspeptin IVF Treatment hopefully in Febuary 2014.
Was wondering if anyone else has had an kisspeptin treatment
Has anyone had any side effects?
Has anyones treatment resulted in pregnancy?

Could someone please help me. Want to know alot of information.
Please I want a

 

[wellsk]

Hi happiness! I think I'm the only one still around who has already been through the treatment. As the original study was for those with low or normal AMH levels, or other diagnosis aside from PCOS.

I'm Kathryn, I'm 23 and my DH is 30. We have severe MFI and low AMH levels.
I had my treatment in May/June, I didn't find myself with any major side effects in relation to the kisspeptin. Although I did have some standard IVF symptoms like bloating and discomfort when I got close to EC.

I'm not sure many individuals here went on to have successful pregnancies, I knew a lady who was pregnant with twins, but I didn't see her after about 6 weeks or so. I'm the only one I know on here with a pregnancy from the kisspeptin. But the specialists at the hospital will know better

I had two embryos put back at 5pd EC wnd got my BFP at 5dp5dt. I'm now expecting a daughter in February.

What has brought you to the kisspeptin trial? Where are you from?

 

[teaparty]

Hi happiness, I can't answer your questions because I'm yet to go through treatment too. I just thought I'd say hi though. We have a face book group going where we can chat openly and completely secretly. Read back a bit and you'll find how to join us there. No one there has had treatment yet so in that sense you're beat off asking the lovely wellsk however if you want to chat freely to all of us going through it now and in the weeks to come then come on over.
X

 

[teaparty]

Thank you wellsk. You're so lovely to have stuck around here to share your knowledge and experience. I'm so pleased for you and so hope that more of us can join you on your side of the fence soon! I'm so excited just to be a small step closer to the fence right now even though I'm far from climbing over it still!!

Thank you!!! X

 

[syma]

Hi Wellsk, when you had your egg retrieval did it hurt as I'm a bit nervous about the pain, I don't know if I should have anathstetic or pain killers. X

 

[wellsk]

Thanks teaparty.... I always feel bad hanging round, but I just genuinely want to help and celebrate with all you lovely ladies when you finally have your chances as you all deserve it so much

Syma, during the actual egg retrieval you'll be under a heavy sedation, I don't think its a general anesthesthic. But you genuinely don't feel anything, you're basically asleep and have been given drugs to stop you feeling anything. I didn't need anything after the egg retrieval, I felt absolutely fine. I didn't even feel groggy, just like I'd had a nap and nothing had happened.
Hope that helps

 

[cjstaun]

Wellsk - was going to ask - would you mind joining the facebook group too as i have limited access to this site, and would really appriciate your advice.

I too had egg collection at Hammersmith - where i had 30 eggs retrieved - you feel nothing during the procedure, like a GA but without the after affects. I was a little sore afterwards, but nothing that a couple of days taking it easy didnt solve. I was bloated too - i went up a jean size during stimming and for a few days afterwards.

 

[wellsk]

I would love to join the facebook group, but didn't want to ask just incase you wanted a space just specifically for you and the new trial

Where do I find it?

I definitely agree with the bloating! Particularly by the end of the stimming it was really uncomfortable, I definitely bloated whenever I injected cetrotide.

 

[cjstaun]

No of course not My name is Claire Staunton on facebook from Hillingdon, Middlesex.

Can i ask how is the Kisspeptin administered and does it hurt etc - any side effects.

Cx