Type 1 diabetes

[teenpregnant]

Hi everyone, hope everyone is well.
I'm having another scan next week due to reduced movements, went in yesterday after 2 days of little movements she passed the non stress test at 57 minutes (they stop at 60) and the doppler results were high so I can't help but worry but at least getting a scan! Just means ANOTHER trip up the hospital! X

 

[Nikkilewis14]

Hi ladies just a lil update the baby has a rare condition which is the opposite to diabetes he creates to much insulin an will need medication to block insulin production. They don't know if it will be short term or permanent. They are trying to get him established on medication an get him off the drips an feeding properly as he only has
1oz feeds ATM. Also having a few problems with his blood platelet levels but will be seeing a haematology specialist over this
X

Oh hunnie im so sorry to be reading this!
Morgan was having the same problems after birth! She had a central line put in her belly button for quite a few days in the nicu and she refused to eat anything so also had a feeding tube.... The reason they produce so mych insulin is because they produced it in the womb to counteract our higher sugars...hopefully ur little one will regulate soon! ( they usually do!) just give it some time...prayers are coming your way..
Your little one is so precious congrats!

 

[Nikkilewis14]

Yes ladies, morgan is doing so much better! Just keeps growing longer and longer andlonger...i swear shes goingtobe a giant! But shes thinning out! Lol i will post a pic, its hard to do from my ipad!

 

[pinkbump2011]

He had the lines in his belly button but had to have surgery to put in a central line through his jugular vein an out of his chest. He has been diagnosed with Congenital hyperinsulinism an will need medication for the foreseeable future as we don't know whether it is transient or permanent. He is off all the drips now and isn't getting help for his sugars but he is on medication which reduces the amount of insulin his pancreas secretes. Hopefully he will be home next week after we have been shown everything we need as we need to learn how to do his blood sugars, if he goes hypo etc. he also has reflux so I'm a nervous wreck abt taking him home as the milk helps keep his blood sugars up an if he keeps throwing it up he isn't getting much milk but they put him on gaviscon today! He has also dropped to 6lb8oz he is still tiny but getting longer!! Hope all u ladies are doing ok x

 

[MissEJ]

Hi everyone, hope everyone is well.
I'm having another scan next week due to reduced movements, went in yesterday after 2 days of little movements she passed the non stress test at 57 minutes (they stop at 60) and the doppler results were high so I can't help but worry but at least getting a scan! Just means ANOTHER trip up the hospital! X

Hey Teen pregnant, seems you're having a worrying time. Good to hear that you'll get to see bub again on a scan though! Let us know how the scan goes. X

 

[teenpregnant]

I'm not normally one to moan but I'm so fed up now, my bloods will not come down even with doing 100 units basal rate a day! I'm getting uncomfortable I cannot sleep I'm prettified of what these high blood sugars are doing I just want her here so i can look after her properly and protect her from my own body!! Sorry for moaning just thought you ladies could understand a bit more from a diabetic pregnancy view. I have only 5 weeks max left and I'm only 3 weeks off of when I had my son but that feels like years when I'm so fed up I would love pregnancy minus the diabetes! x

 

[MissEJ]

I'm not normally one to moan but I'm so fed up now, my bloods will not come down even with doing 100 units basal rate a day! I'm getting uncomfortable I cannot sleep I'm prettified of what these high blood sugars are doing I just want her here so i can look after her properly and protect her from my own body!! Sorry for moaning just thought you ladies could understand a bit more from a diabetic pregnancy view. I have only 5 weeks max left and I'm only 3 weeks off of when I had my son but that feels like years when I'm so fed up I would love pregnancy minus the diabetes! x

It's frustrating, I'm not quite at your stage but every blip makes me feel so guilty, and there are so many things out with our control. You are doing your best, and you can see the finish line.
Is there something nice you could do for yourself today/this week? A lunch with a friend or having your hair done? It sounds minor in the grand scheme of things, but it might help perk you up for a bit? X

 

[teenpregnant]

I'm not normally one to moan but I'm so fed up now, my bloods will not come down even with doing 100 units basal rate a day! I'm getting uncomfortable I cannot sleep I'm prettified of what these high blood sugars are doing I just want her here so i can look after her properly and protect her from my own body!! Sorry for moaning just thought you ladies could understand a bit more from a diabetic pregnancy view. I have only 5 weeks max left and I'm only 3 weeks off of when I had my son but that feels like years when I'm so fed up I would love pregnancy minus the diabetes! x

It's frustrating, I'm not quite at your stage but every blip makes me feel so guilty, and there are so many things out with our control. You are doing your best, and you can see the finish line.
Is there something nice you could do for yourself today/this week? A lunch with a friend or having your hair done? It sounds minor in the grand scheme of things, but it might help perk you up for a bit? X

It's OHs birthday this week so we are going to go shopping and pick up the rest of the baby's things and my son some summer clothes and have lunch out as he has a few days off of work so that's something! X

 

[MissEJ]

I'm not normally one to moan but I'm so fed up now, my bloods will not come down even with doing 100 units basal rate a day! I'm getting uncomfortable I cannot sleep I'm prettified of what these high blood sugars are doing I just want her here so i can look after her properly and protect her from my own body!! Sorry for moaning just thought you ladies could understand a bit more from a diabetic pregnancy view. I have only 5 weeks max left and I'm only 3 weeks off of when I had my son but that feels like years when I'm so fed up I would love pregnancy minus the diabetes! x

It's frustrating, I'm not quite at your stage but every blip makes me feel so guilty, and there are so many things out with our control. You are doing your best, and you can see the finish line.
Is there something nice you could do for yourself today/this week? A lunch with a friend or having your hair done? It sounds minor in the grand scheme of things, but it might help perk you up for a bit? X

It's OHs birthday this week so we are going to go shopping and pick up the rest of the baby's things and my son some summer clothes and have lunch out as he has a few days off of work so that's something! X

Sounds good, a wee bit of retail therapy and some family time.

 

[Mysticalrain]

Hey guys im type 1 diabetic have been for 3 and a bit years. This is my second pregnancy I already have a 2 year old son. Im just looking for some support really. basically with my 1st I was only diagnosed with type 1 for 2 months. So I was scared to eat anything sugary in my mind we weren't allowed as we would die. I know it seems so far fetched but I did not know much about it at all. Anyway healthy baby boy 7lb 14oz he was. This time iv been bad iv had a few cakes like really sugary cakes iv took insulin to cover it right enough and never had a really high sugar. Iv also ate quite a fair bit of chocolate normally when I go hypo tho sometimes when im just in the mood. I feel so guilty can you guys help me get out of this funk don't want to do any damage to my baby. but its much harder as after I had my baby my consultant said I could take it easy! and so I did way to easy ended it up in a bad way with my diabetes eating millions of sugary treats! I went from hb1c of 5.4 to a whopping 8.4 after having my son a whole year of muching sugary treats sometimes without taking insulin. my kidney started showing protein and everything. I started carb counting which has regulated my blood sugars amazingly! however sometimes I don't get it accurate and will go high or have a hypo! I manged to get my hb1c back down to 6.5 pre pregnancy. So I hope it isn't far off that now iv had a few highs but a lot more hypos. but of course hypos means more sugar intake! going out of my mind here! so glad I found this forum im only 8 weeks 5 days. I think not had a scan yet first scan is on the 7th of May. xxxx

 

[teenpregnant]

Hey guys im type 1 diabetic have been for 3 and a bit years. This is my second pregnancy I already have a 2 year old son. Im just looking for some support really. basically with my 1st I was only diagnosed with type 1 for 2 months. So I was scared to eat anything sugary in my mind we weren't allowed as we would die. I know it seems so far fetched but I did not know much about it at all. Anyway healthy baby boy 7lb 14oz he was. This time iv been bad iv had a few cakes like really sugary cakes iv took insulin to cover it right enough and never had a really high sugar. Iv also ate quite a fair bit of chocolate normally when I go hypo tho sometimes when im just in the mood. I feel so guilty can you guys help me get out of this funk don't want to do any damage to my baby. but its much harder as after I had my baby my consultant said I could take it easy! and so I did way to easy ended it up in a bad way with my diabetes eating millions of sugary treats! I went from hb1c of 5.4 to a whopping 8.4 after having my son a whole year of muching sugary treats sometimes without taking insulin. my kidney started showing protein and everything. I started carb counting which has regulated my blood sugars amazingly! however sometimes I don't get it accurate and will go high or have a hypo! I manged to get my hb1c back down to 6.5 pre pregnancy. So I hope it isn't far off that now iv had a few highs but a lot more hypos. but of course hypos means more sugar intake! going out of my mind here! so glad I found this forum im only 8 weeks 5 days. I think not had a scan yet first scan is on the 7th of May. xxxx

First of congratulations!! Try not yo panic yourself too much or be too hard on yourself though if you look back over this thread we are all guilty of this!! I was exact the same as you after I had my son I relaxed completely and my a1c shot up over 10 though. How are you feeling this pregnancy? Well done for getting your a1c down!! Congratulations again and welcome! X

 

[Nikkilewis14]

He had the lines in his belly button but had to have surgery to put in a central line through his jugular vein an out of his chest. He has been diagnosed with Congenital hyperinsulinism an will need medication for the foreseeable future as we don't know whether it is transient or permanent. He is off all the drips now and isn't getting help for his sugars but he is on medication which reduces the amount of insulin his pancreas secretes. Hopefully he will be home next week after we have been shown everything we need as we need to learn how to do his blood sugars, if he goes hypo etc. he also has reflux so I'm a nervous wreck abt taking him home as the milk helps keep his blood sugars up an if he keeps throwing it up he isn't getting much milk but they put him on gaviscon today! He has also dropped to 6lb8oz he is still tiny but getting longer!! Hope all u ladies are doing ok x

oh the poor thing! im sorry hun... yea hyperinsulinism, did they say it would last forever??

reflux SUCKS! morgan has it too! terrible..

 

[Elizabean]

Hi mystical rain, congratulations! As teen pregnant said, stressing will not help, we all know what it feels like though!

I went to my ob appt yesterday and my normal Dr was away so I saw his colleague who measured my fundal height as 37cm. Had a growth scan last week and baby was on average 2weeks ahead in growth and 90th percentile, up from 75th a month ago. The Dr said he thinks my Dr will induce at 38 weeks instead of 39 which was initially planned. Eep, if that's true bub will be here so soon. I'm hoping for 37weeks as that will be dh's birthday.

 

[Elizabean]

Hi mystical rain, congratulations! As teen pregnant said, stressing will not help, we all know what it feels like though!

I went to my ob appt yesterday and my normal Dr was away so I saw his colleague who measured my fundal height as 37cm. Had a growth scan last week and baby was on average 2weeks ahead in growth and 90th percentile, up from 75th a month ago. The Dr said he thinks my Dr will induce at 38 weeks instead of 39 which was initially planned. Eep, if that's true bub will be here so soon. I'm hoping for 37weeks as that will be dh's birthday.
My most recent hba1c was 5.7 so I feel like there is not much more I can do. Very frustrating.

 

[kellyrae]

Hi Ladies, Hope you don't mind me following this group, I have been type 1 since I was 7yrs old about 27 years now I think....I am not currently pregnant as yet but hoping to be in the very close future
We are ttc as from middle of May, This will be my 3rd baby so have had lots of experience in being diabetic and pregnant by now

My first pregnancy was good and controlled by injections, had lots of problems with my first after she was born though, low bloods (which I expected) and heart defects (not expected) that weren't picked up until she was born.

My second little girl who is 10 months old was completely different, never had any problems at all with anything!!! I sometimes wonder if its because I am on a pump now and I was better controlled during my pregnancy.

Anyway I haven't managed to see my diabetic team as yet to discuss pregnancy as they have cancelled my last two appointments but I have a recent hba1 of 6.8 so I know that's good to start with...I have been taking my folic acid too so only doing what they would advise

Hopefully they will be getting a call within the next couple of months to say I'm pregnant

 

[teenpregnant]

Elizabean, think we will be so close together! They told me I will be induced or section between 38-39 depending on my 36 week scan so I think our baby's have the chance of being born the same day! I have another scan tomorrow for wellbeing so hoping that goes well but even though it's only been 2 weeks I'm expecting her to have grown out of the 50th percentile now!

Kellyrae- welcome! You are more than welcome here! Hope you get your bfp very soon! Good luck with trying. X

 

[pinkbump2011]

He had the lines in his belly button but had to have surgery to put in a central line through his jugular vein an out of his chest. He has been diagnosed with Congenital hyperinsulinism an will need medication for the foreseeable future as we don't know whether it is transient or permanent. He is off all the drips now and isn't getting help for his sugars but he is on medication which reduces the amount of insulin his pancreas secretes. Hopefully he will be home next week after we have been shown everything we need as we need to learn how to do his blood sugars, if he goes hypo etc. he also has reflux so I'm a nervous wreck abt taking him home as the milk helps keep his blood sugars up an if he keeps throwing it up he isn't getting much milk but they put him on gaviscon today! He has also dropped to 6lb8oz he is still tiny but getting longer!! Hope all u ladies are doing ok x

oh the poor thing! im sorry hun... yea hyperinsulinism, did they say it would last forever??

reflux SUCKS! morgan has it too! terrible..

They was hoping he would be transient an it would pass over time but the baby is doing amazing they actually stopped his medication yesterday an we just have to see how he goes over the next couple of days.

Everything is going back to normal as he was born with quite a nasty infection an was really poorly so all his blood platelets etc are back to normal an his blood sugars have been between 10 and 13 with a tiny amount of medicine so that's why they stopped he is still running at 8 after fasting for 6 hrs today so really hoping it's has passed. Did Morgan have the same thing? X

 

[Nikkilewis14]

Yes hun.. her blood sugars ran around 50-60 for the first few days and once she started to get more food through feeding tube she perked up and had consistent regular blood sugars (Thankfully!) Glad to hear little one is doing better!

 

[Nikkilewis14]

Hi Ladies, Hope you don't mind me following this group, I have been type 1 since I was 7yrs old about 27 years now I think....I am not currently pregnant as yet but hoping to be in the very close future
We are ttc as from middle of May, This will be my 3rd baby so have had lots of experience in being diabetic and pregnant by now

My first pregnancy was good and controlled by injections, had lots of problems with my first after she was born though, low bloods (which I expected) and heart defects (not expected) that weren't picked up until she was born.

My second little girl who is 10 months old was completely different, never had any problems at all with anything!!! I sometimes wonder if its because I am on a pump now and I was better controlled during my pregnancy.

Anyway I haven't managed to see my diabetic team as yet to discuss pregnancy as they have cancelled my last two appointments but I have a recent hba1 of 6.8 so I know that's good to start with...I have been taking my folic acid too so only doing what they would advise

Hopefully they will be getting a call within the next couple of months to say I'm pregnant

Hope ya get your BFP soon! Its so odd with me in my first pregnancy i did shots and my baby was born perfectly healthy and a regular weight... and my 2nd i was on a pump and she was in nicu with problems the day she was born.. and my a1c was slightly more elevated on the pump although never over 6.8a1c.

 

[Nikkilewis14]

Hi mystical rain, congratulations! As teen pregnant said, stressing will not help, we all know what it feels like though!

I went to my ob appt yesterday and my normal Dr was away so I saw his colleague who measured my fundal height as 37cm. Had a growth scan last week and baby was on average 2weeks ahead in growth and 90th percentile, up from 75th a month ago. The Dr said he thinks my Dr will induce at 38 weeks instead of 39 which was initially planned. Eep, if that's true bub will be here so soon. I'm hoping for 37weeks as that will be dh's birthday.
My most recent hba1c was 5.7 so I feel like there is not much more I can do. Very frustrating.

there isnt much more u can do and your right it is soo very frustrating! baby will be here before u know it... i delivered my first at 38 weeks and my second at 36+6..