Anyone LTTTC Number One?

[Razcox]

Hey everyone, got some news yesterday that has knocked me back again. We have been declined funding of IVF with PGD They have missed the whole point of us apllying for it despite the fact they have had since JULY to review my case.

I just feel so angry and depressed that we have been let down yet again by the NHS. I am close to throwing in the towel as i dont know ho many more times i can pick myself up from all this crap!!

 

[Dazed]

I'm so sorry Raz. Thats crap that they won't fund you.

 

[MrsHowley81]

Raz I am so sorry hun, that is utter sh%^e, is there any way you could fund it yourself, It is so hard when we have to rely on scientists and doctors to help us get PG, we should all be entitled to free IVF, This game is not fun at all xxx

 

[Razcox]

Raz I am so sorry hun, that is utter sh%^e, is there any way you could fund it yourself, It is so hard when we have to rely on scientists and doctors to help us get PG, we should all be entitled to free IVF, This game is not fun at all xxx

Afraid not as its over £7000 and we just dont have that sort of money

 

[MrsHowley81]

That is rubbish, is there anyway you can appeal? There has to be something out there xxx

 

[MrsHowley81]

I know infertility network helped my friend it might be worth contacting them xxx

 

[purple_hope]

Well, I hate to add to the bad news but looks like I'm out for the IUI this month. I apparently have 6+ mature follicles and the DR won't risk doing the procedure I was also told that reacting so strongly to the smallest dosage of Clomid (50mg) is not typical. They said that next cycle they will have to try some other type of medication for me

Raz I'm sorry to hear about your funding. It just sucks big time! Things just seem too often not to work out for us the way we had hoped!

 

[urchin]

Raz - did they tell you on what grounds they had turned you down? Is it worth appealing?

Ash - at 11DPO you're by no means out ... not all pregnancies show up early hon xxx
and thank you, in one way it's going quite quickly, but in another 12 weeks is taking a very long time to get here

FF I'm so sorry you are feeling so low hon - wish I could make it go away for you, you really are a lovely xxx

10 sleeps for me

 

[jwilliams918]

Greekgirl... When I was ovulating I felt an extreme amount of pain but I read that's what ovulation feels like. But I am scheduled to start my period today but I haven't yet so I'm still keeping my fingers crossed. Thanks for the encouraging words!

 

[jwilliams918]

Thanks so much for the warm welcome!! I honestly feel like I'm in the right place!

 

[vjpfeif]

Well I'm 11dpiui still getting bfn's so I scheduled my appointment so that I have the medication IF I'm out. I'm still getting cramping and stuff so I'm pretty sure AF is coming. I thought I was but now I'm really doubting it. There's not even a hint of a line.

You are still early. I think i am in the same boat 14 days post iui today and
. I am going to call fs on monday and see for sure. I still have cramping as well. Lots of lower back cramping. But same here as far as not even a hint of a second line. I actually thought maybe i had a uti or something and saw a dr today and they said i didnt have one? Oh well. I know how you feel. .

Purple i am sorry to hear you are out this month. Fx for next month.

 

[ashknowsbest]

RAZ - I'm sorry you got terrible news today.

Purple - sorry your IUI got cancelled. On a good note, at least you responded to the medication. I only got 1 measly egg on 50mg on clomid so now they're going to put me on 100mg so here we go side effects!

Urchin - I'm trying to stay positive but it's really hard when I read stories of lots of women getting their bfp on like 10, 11 and 12 dpo and I haven't even had the hint of a line.

AFM - I found out some pretty cool news about my insurance coverage. So I called my FS this morning to find out my progesterone results and they were 14.3 on CD23 so that was good and made me happy because last time I had my progesterone checked on CD 23 it was 9! So definitely improvement! Well, I told the nurse that I didn't want to do another round of clomid since I only grew 1 mature follicle and that I wanted to move onto injectibles, well she told me that most insurance companies require that you do 3 IUI's before moving onto injectibles and so I called my insurance company and she told me that's true with my plan, so I have to do 2 more clomid + IUI cycles before I can try injectibles. I said to her, but I only have 4 IUI's so that doesn't really make sense, am I going to have to pay for 2 out of pocket before they let me move on to IVF, since they require that you do 3 and 3 before getting the authorization to do IVF and she said oh honey your IUI's are unlimited. So I can have as many IUI's as I want before moving on to IVF. I thought that was GREAT news. I feel relieved although I'm still annoyed that I may not be pregnant!

 

[ashknowsbest]

VJ - sorry I missed you in my post! When do you go in for bloodwork? I'm sorry you're still getting BFN's! I really hope it's wrong!

 

[vjpfeif]

VJ - sorry I missed you in my post! When do you go in for bloodwork? I'm sorry you're still getting BFN's! I really hope it's wrong!

I am calling my fs on monday and if af does not show then i am assuming they will do a beta just for good measure. I am pretty sure i am out for this month though. Guess we will see. Good news about your iui's. You are lucky. Ours are all out of pocket as my insurance won't cover anything to do with infertility.

 

[ashknowsbest]

That's sad that they won't cover anything infertility related. It doesn't seem fair ya know? It's like, well since you're not lucky and can't just get pregnant by your OH looking at you, you have to pretty much be rich to get pregnant! It's terrible.

 

[vjpfeif]

That's sad that they won't cover anything infertility related. It doesn't seem fair ya know? It's like, well since you're not lucky and can't just get pregnant by your OH looking at you, you have to pretty much be rich to get pregnant! It's terrible.

I agree. So it will probably be awhile before we do another iui as it costs $1000 each time. Dh wants to take a break from it all. I think its just as hard on him as it is on me.

 

[ashknowsbest]

Well at least you're both fully committed and you're not alone in the disappointment.

 

[Feisty Fidget]

Raz I am so sorry my love Kick up a fuss, shout scream and threaten with media attention to get it appealed, it worked for me. May even be worth getting a current copy of infertility protocols for your area and paying a legal/specialist person to go through it to check for grounds for appeal, definitely contact the infertility network

Purple I believe your doctor is worried about Ovarian Hyperstimulation Syndrome as it appears this could be the cause of your many follies and if you did end up pregnant from IUI best case scenario would be high risk of multiples (and I mean very high, not twins or even triplets but quads, quints or sextuplets ) and worst case scenario is the OHSS will make early pregnancy unbearable I know it is frustrating that you have had to miss your IUI but it is for the best

 

[Skoer1360]

So I know I have completely and totally dropped off the planet but I REALLY needed a break. Probably going to continue my break but I really just have to share since not too many other people can relate but: MY NEW INSURANCE COVERS 50% INFERTILITY DIAGNOSIS!



I'm so happy I could cry! Looks like I will end up having an HSG in April Hoping and crossing my fingers that it will help and we will finally get our baby

 

[urchin]

Skoer - that's fab news
Please don't worry about being MIA - that's the joy of this thread; it's here to support us all in whatever way is best for each of us. So when we need to post several times a day, we can - but when we need to hibernate a bit, that is also all ok...everyone will be pleased to see you when you drop in, but totally understand when you need not to be here

Ash and VJ I really do hope your lines are just slow in coming through xxx

AFM - 9 sleeps is the only new news I have!