Calling all RMA Ladies (1st page updates)

[DaisyQ]

Welcome hopeful. I'm sorry to hear about the biopsy results, that must have been a blow. Best of luck to you with DS - I'm sure it will work out great.

So I had bad news today - my cycle may be canceled. I've been really upset all morning. So basically, it sounds like I have 15 total follicles, most still under 10, with a couple at 11, and one big one at 16mm. The doctor said that it's likely that the big one is suppressing all the others and therefore my cycle may be canceled. Devastated by this.

It just seems like there are SO many hurdles to overcome - even just to make it to egg retrieval, much less have enough mature eggs, fertilization, making it to blast, having normal embryos... I'm just feeling really disappointed, frustrated, disheartened, discouraged.

I have put in a call to my doctor and to my nurse to discuss. The doctor I saw today advised me to start the ganerelix tonight, and to come back on Saturday. So I guess it's not over yet, but it doesn't look too good.

To make matters worse, is that I won't be able to cycle right away again - we are going on a family trip (my FIL 80th birthday) - the first we in July. So if there is no retrieval this month, I'm pretty sure I won't be able to cycle until August. It is just so aggravating to wait and wait and wait, and then there are no guarantees. I'm really struggling to keep the faith.

 

[BlueStorm]

Welcome hopeful. I'm sorry to hear about the biopsy results, that must have been a blow. Best of luck to you with DS - I'm sure it will work out great.

So I had bad news today - my cycle may be canceled. I've been really upset all morning. So basically, it sounds like I have 15 total follicles, most still under 10, with a couple at 11, and one big one at 16mm. The doctor said that it's likely that the big one is suppressing all the others and therefore my cycle may be canceled. Devastated by this.

It just seems like there are SO many hurdles to overcome - even just to make it to egg retrieval, much less have enough mature eggs, fertilization, making it to blast, having normal embryos... I'm just feeling really disappointed, frustrated, disheartened, discouraged.

I have put in a call to my doctor and to my nurse to discuss. The doctor I saw today advised me to start the ganerelix tonight, and to come back on Saturday. So I guess it's not over yet, but it doesn't look too good.

To make matters worse, is that I won't be able to cycle right away again - we are going on a family trip (my FIL 80th birthday) - the first we in July. So if there is no retrieval this month, I'm pretty sure I won't be able to cycle until August. It is just so aggravating to wait and wait and wait, and then there are no guarantees. I'm really struggling to keep the faith.

Welcome Hopeful

Daisy - I am so devested for you. I can't even believe this I ever even thought about this happening. I really hope there is still something they can do. Is there any hope of making this into an IUI instead

 

[DaisyQ]

I guess so - but with 1% morph, I'm not sure there's really a point. ?

Also wondering if I may have already ovulated since the doc originally thought my 16mm follicle was a cyst, and I'm also having a lot of creamy CM, which is typical post O for me.

This whole thing just bites the big one.

 

[ashknowsbest]

Daisy - sorry to hear the devastating news. I hope they get everything sorted out and you can still move forward with your first IVF. FX'd for you that you can still go ahead with it.

As for your OH's morph, miracles do happen

 

[jchic]

Ugh. I cant even tell you how upset I am for you Daisy. I really hope it all gets sorted out, and if it doesnt, that at least a protocol is in place that will make your ovaries work marathon style producing those big fat eggies. All my love!

 

[DaisyQ]

Thanks Jess.

 

[Hopeful523]

DaisyQ- Im sorry to hear theres a set back in your cycle. It is very frustrating when you keep looking towards your end goal and you have so many things to get through to get there. Hang in and have faith that things will work out. Im a big believer in timing and it will all work out. Ill be rooting for you. So far after everything my husband and I have been through, faith is what mostly keeps me going. Big hugs

 

[ashknowsbest]

Hey ladies, I have a question.

For those of you who need authorization for IVF how long did it take your insurance company to approve the procedure? I'm pretty sure I'm not going to be able to do IVF this cycle coming up if AF comes on time because AF starts on Saturday and I'm supposed to start the IVF medicine the first day of my cycle so .... I'm getting bummed out and just wondering if the process has been quick for any of you?

I mean, if I have to do injectables IUI this cycle then at least we're doing something but I really just wanted to move on already.

 

[jerseygirl412]

Welcome Hopeful!! This is the BEST thread ever!! The women on here have really become my rock!!
Daisy girl I'm so sorry ...please hold on to a little faith you never know miracles can happen when does the doctor want you to go in again for a scan? I will say a prayer right now for you!!!

 

[jerseygirl412]

Hey ladies, I have a question.

For those of you who need authorization for IVF how long did it take your insurance company to approve the procedure? I'm pretty sure I'm not going to be able to do IVF this cycle coming up if AF comes on time because AF starts on Saturday and I'm supposed to start the IVF medicine the first day of my cycle so .... I'm getting bummed out and just wondering if the process has been quick for any of you?

I mean, if I have to do injectables IUI this cycle then at least we're doing something but I really just wanted to move on already.

Ash...not sure which insurance you have, I have Aetna and I had to register on the fertility hotline, they ask you a bunch of questions...The nurse had everything done for me as far as having the cycles approved, but I know for mine each cycle had to be authorized even with an ulimited amount of IUI's...for me getting my medicine ( even though I had refills for my injectibles) authorized was a pain in the ass..not from RE but from Aetna itself but once Aetna receives the authorization from RE I have my meds delivered the next day... Now, I start my bcp today had my bw not pregnant and everything else they check on cd#3 is good( which we all knew but insurance makes them do a preg test anyway)

 

[ashknowsbest]

Jersey - I have the same insurance it seems. I have aetna ... with unlimited IUI's which have already been approved but now need the authorization for IVF. All of my authorizations seem to be done like yours, I don't deal with them at all, my RE's office does. Thanks for the info though ... I'm pretty sure I can get the medication delivered overnight because they did that with my ovidrel a couple months ago ... I believe with my first IUI but I think it's the authorization process that's going to take the longest ... not the med delivery.

 

[DaisyQ]

Thanks Jersey & hopeful.

Call RMA and have them "escalate" your request for authorization. I ran into trouble too, getting it authorized in time, and the people at RMA NJ kept calling and calling my insurance, and I called too, and it went through the day before I was due to start meds. Get on it! And good luck.

 

[ashknowsbest]

daisy - I called RMANY this morning again and told them it was urgent and she said she would note that in the request to call me and then we could get it going .. I mean for all I know they're already starting the process but I want to make sure. Thanks!

 

[DaisyQ]

No prob.

 

[jerseygirl412]

That's what I had to do as well, call up...but I find I get a faster response through email with my nurse...she faxes it to Aetna, and I call Aetna's specialty pharmacy like every 10 mins to see if they got it...then when they say it's there but not processed I call the fertility hotline up upset ( not yelling) about ready to cry and they really help push things through...now mind you this was my 2nd IUI cycle which I couldn't understand why I had to go through all the bs of authirization with re-fills drove me crazy...
I didn't get any meds yet for the IVF just starting the bcp tonight which I think I'll leave my office for a little go get that filled and sit outside it's absolutely beautiful out!!

 

[ashknowsbest]

jersey - do you mind me asking if you know how much you'll be spending on your meds?

 

[jerseygirl412]

Ash...no I don't mind at all....not sure how much meds are going to be for the IVF...but my meds for injectible cost me $ 150.00 (Gonal F and Ovidrel)
Going into IVF I have all of the Gonal F that I should need nurse said if I run short she'll give me a 300 pen so I really don't know what else I'm going to be on besides that and the Ovidrel

If I find out anything I will let you know

 

[ashknowsbest]

Ok thanks so much! And do you have prescription insurance through aetna ... ? Maybe that's a weird question but I have aetna for medical insurance and I have CVS caremark for prescription coverage. It's so weird and it confuses everybody. I'm just trying to figure out how much I'm going to have to spend on medication. I won't know obviously the exact number until I find out what the exact medication are going to be but I'm a little stressed about it. For my ovidrel it was a $15 co-pay but I know that IVF and Injectables with IUI calls for a lot more medication ... so I'm worried. :\

 

[jerseygirl412]

Ash...my prescription plan's with Aetna as well, and they told me depending on which plan the employer picks depends on which end the fertilitiy medicine comes out of...could be the medical side where you'd have to meet whichever deductable amount you have or the prescription side of it...mine lands under the prescription plan ( which is horrible by the way ) I can't remember off hand the cost breakdown of both medicines but the total was $ 150.00 Sounds like you have an awesome prescription plan...I just dropped off my script for the bc pills and it's going to cost $ 19.56 for the month lol

 

[DaisyQ]

Ash, RMA NY will find out what your prescription plan covers for you - they do all the "heavy lifting," which is nice.

I have Medco for my prescription coverage, and it had an $1800 cap on fertility meds, and I had already reached almost 1k with the two IUIs - I guess for clomid and ovidrel.

My regluar insurance is supposed to cover injectable meds under the 10K fertility cap, and so we used 3K+ of my fertility benefit to cover injectables for this IVF. It was a mistake though, because the prices that are charged to insurance can be 200% higher than the cash price - so really we should have paid cash, and kept our 10K fertility benefit intact.

Paying cash - these meds can cost 3K+. It depends on your dosage, and how many days you stim. Doing a long lupron protocol costs more because there are more shots.

I am spending ~ $300 a day in injectable meds. It's crazy. But it could be worse.