Dealing with azoospermia?

[tulip11]

Hi arzoo
I am really sorry for what you are facing. Dont worry InshaAllah everything will be ok... my prayers are with you.

 

[MoBaby]

sorry arzoo for what you guys are facing. I am sure they will be able to help you and DH. It is very crushing diagnosis but luckily we have all these wonderful women on this thread who are dealing with the same issues for support. I hope mr ramsay has some answers for you guys.

 

[arzoo]

Thank you Tulip and MoBaby.
I spend the whole of today reading this forum (still 100s of pages to g0), and I am feeling a sense of great relief to have someone I can share my thoughts, doubts, fears with in this time of tears and heatache.

While we are waiting to see the Dr. I have got my DH the Wellman vitamin tablets (hanging on to any hope) does anyone know if they can be counter productive? as in cause change in hormone levels which will give confusing diagnosis?

 

[MoBaby]

The vitamins will not help or change the hormone levels but if he is making any in his testicles that can be retrieved it may make it healthier. My DH is on them and he started some meds about 6 wks ago.. we still have to see how they are helping.

 

[deafgal01]

arzoo- might be something to think about... Have you ever considered maybe undergoing counseling? Not any counselor but one that specializes in infertility issues? They can help you sort thru your feelings and make sure you both are communicating with each other. Not only that, the counselor I had recently was helpful in giving ideas of what we can expect when we finally undergo our IUI procedures and some tips for getting thru the wait period of two weeks. I'm sorry to hear you have to join our boat but you've come to the right place and we've had a few successful hits (some of the girls that started in this thread are now holding their babies and raising them) so you do have some hope of some kind.

 

[arzoo]

After the initial bad news of Azoo , I read online about the different kinds of azoo and also read that FSH levels could be used to determine the type of azoo. Based on this DH had his FSH levels tested. Further bad news, very high FSH (21 normal is below 8) I am loosing all hope. Is there some out there who has had a success story of finding sperms despite having high FSH ?

 

[deafgal01]

arzoo- mine isn't. We could try mtese but we opted out of that due to our budget, we don't want to be in debt trying to find sperms for the next two years so we are going to use donor. But it's not the same for every couple so don't lose hope. If the dr knows what they are doing and you have the funds for it, go for it and find out if that's possible to use the sperms from your husband.

High FSH means the body recognizes that something's not right and is trying to fix it (but usually needs help fixing it to get it working).

 

[MrsG30]

Arzoo, Sorry to find you dealing wit this shitty condition but were all in the same boat here and will help you as much as we can.
Ive have used this thread and forum sine the day we found out, it actually keeps me sane.
My hubby's FH IS 35.1!! We live in the UK and the MTESE was offered to us on the NHS, so you will get the chance of it regardless. We, like deafgal decided against the op, as it was not for £££ reasons, but ones of personal choice, its each to there own I guess.
Deb who started this thread will be along at some point and she will give you hope, she is raising her little AZOO baby now. Infact there are lots of ladies on here who have there little bundles either from MTese or S.
Either way hun , decide what right for you, you will get there at some point, just like the rest of us.
any questions just ask xxxx

After the initial bad news of Azoo , I read online about the different kinds of azoo and also read that FSH levels could be used to determine the type of azoo. Based on this DH had his FSH levels tested. Further bad news, very high FSH (21 normal is below 8) I am loosing all hope. Is there some out there who has had a success story of finding sperms despite having high FSH ?

 

[arzoo]

Thank you for your support. it really means a lot .

My DH and I have spoke about it at length and we want to do all we can to have our own baby. Right now , all I want is hope that it is possible. we are willing to sacrifice whatever it takes from ourside time money etc. We lost few month due to incompetence of our GP , and now have decided to go and see the urologist privately just for our peace of mind and to know the cause of azoo. The appointment is 2weeks time. In the mean time I came across posts from Deb and we requested few blood tests from the GP and the rest we have paid for. Just hoping that the appointment with the urologist does not give us further bad news. We are still waiting for the karotype results

 

[deafgal01]

Praying you hear good results. It is hard to get bad news but yes you have a great group of supportive ladies on here.

 

[Rainbow123]

Thank you for your support. it really means a lot .

My DH and I have spoke about it at length and we want to do all we can to have our own baby. Right now , all I want is hope that it is possible. we are willing to sacrifice whatever it takes from ourside time money etc. We lost few month due to incompetence of our GP , and now have decided to go and see the urologist privately just for our peace of mind and to know the cause of azoo. The appointment is 2weeks time. In the mean time I came across posts from Deb and we requested few blood tests from the GP and the rest we have paid for. Just hoping that the appointment with the urologist does not give us further bad news. We are still waiting for the karotype results

Sorry that you are having to go through this Arzoo, but glad you found us! I have heard/read excellent things about Dr Ramsay, so I am sure that he will be able to give you the best advice. My DH and I really want to go and see him, but due to costs involved we are going to see what the NHS will offer us first whilst we save some money. My hubby also has high FSH which is associated with non-obstructive azoospermia, due to testicular failure. It really is crappy how long it takes once you find out, and there is little support offered by the NHS to help keep you sane, but so glad I found the ladies on this forum! I think I may have had a nervous break down if it wasn't for this site!
Let us know how you get on with Dr Ramsay, and if you don't mind sharing, please can you let me know how much the initial consultation costs please?
Lots of love and hugs XXXXXXX

 

[MadCatLady]

Hi all, haven't been on here for a while so it has taken me a while to catch up on everyone. MrsMo, really sorry to hear your news, hope you're as ok as you can be and that things take positive turn soon. Hi Arzoo, welcome, you have found a very friendly and supportive forum here with lots of lovely ladies on it!

We have got an appt eventually to see fertility clinic on NHS in Sheffield, we were recommended to go here as London is a wee bit too far from West Yorkshire (!) and also a friend of a friend recommended Mr Skull as a specialist in male infertility, and so with no help or guidance from anyone else, esp GP, we decided to go there! 3 weeks still seems such a long way off but I hope by then all our test results are in. Apparently DH chromosome bloodwork is waiting for Dr to see, feel bit ill about it as like I have said before, he has a lot of markers for Klinefelter's syndrome, but will have to see what results say!

DH is quite determined he wants mTESE, although with what I have heard re waiting lists for this I may well be classed as decrepit if we wait for it! Don't want to be negative against something he wants to try though. Again, hopefully get some more answers in Sheffield.

Hugs to everyone x

 

[arzoo]

Hi Rainbow, we are lucky that we are in London and so have access to the clinics visited my Mr.Ramsay. The wait for private appointments is not bad, we are having an extra week delay as I think Mr.Ramsay is on holiday. The initial consultation cost is about £200, which is far lesser than what some other consultants are charging. To save us time and money while we wait for our appointment we are getting few blood tests done e.g. Karyotype (requested through our GP) and Ychromosome micro deletion (privately £166). What I would say to anyone who is in similar situation is , please make sure you request your GP to and get the following tests, most GPs are clueless (we had to spell out Karyotype to ours! I did basic biology in school and I know about this test ! sigh!)
-FSH
-LH
-Testosterone
-Karyotype
-Ychromosome micro deletion
- Cystic Fybrosis

 

[tulip11]

Hi my hubby previous blood tests results which was ordered by GP shows almost normal FSH he said that its a lil bit higher than normal range so according to him thats not so serious to take it....but now we ill get results of blood tests as ordered by urologist ...so my question is that is a lil difference of FSH shows something ? What I know that hubby has NOA as there is no blockage, normal flow of blood.

 

[Rainbow123]

Hi Rainbow, we are lucky that we are in London and so have access to the clinics visited my Mr.Ramsay. The wait for private appointments is not bad, we are having an extra week delay as I think Mr.Ramsay is on holiday. The initial consultation cost is about £200, which is far lesser than what some other consultants are charging. To save us time and money while we wait for our appointment we are getting few blood tests done e.g. Karyotype (requested through our GP) and Ychromosome micro deletion (privately £166). What I would say to anyone who is in similar situation is , please make sure you request your GP to and get the following tests, most GPs are clueless (we had to spell out Karyotype to ours! I did basic biology in school and I know about this test ! sigh!)
-FSH
-LH
-Testosterone
-Karyotype
-Ychromosome micro deletion
- Cystic Fybrosis

Thank you Arzoo, that's really helpful I will see if I can get hubby to ask for the Karatype, Ychrom and Cystic Fyb tests (he's had the others done already). £200 is much less than I thought, it will probably cost us more to get the plane to London as we live in the Isle of Man and it's so darn expensive to get off our lovely rock!
2 weeks is really quick, I think that we might see how NHS goes - supposedly going to be around August time which is rubbish but hey - and then book to see him after that. I've seen that he does Saturdays which is handy!
XXXXX

 

[arzoo]

Yes Mr Ramsay does satudays at a clinic in Windsor.

 

[Mikihob]

Hi arzoo welcome!!

My DH has azoospermia, diagnosed in Nov. 2012. His progesterone, LH and FSH are all within the normal range. Whether high or low normal, we are not sure but we know they are within the normal range. He is currently taking HCG to try to boost his production of swimmers. His moodiness has slightly increased since started two weeks ago, but his sex drive has gone up and he seems to be sleeping a little better and has a slightly less cloudy memory. Overall so far so good. We are hoping that this helps boost sperm production because if it doesn't we are headed to Seattle for a testicular biopsy to see if he is even producing at all.

HCG is pretty costly and it's costing us an arm and a leg but if you don't get any answers or definitive reasons for the azoo you can always try HCG before a biopsy or mTese. We are doing three injections a week of 2000ml. It sucks and DH hates the shots but if it helps we feel it's worth it.

Welcome to this thread. These ladies are magnificent and are the only reason my head has not exploded from stress!! Good luck in your journey.

 

[MadCatLady]

Why oh why don't Doctors help? We were told that the dr would be phoning on Tues to go through DH blood test results, so she phones to say she has been called away and she will phone him the next day to go through it. So she phones today, says she can't go through the results on the phone so will write a letter to GP and then we will have to go see them sometime!!!!!!!!!!!!!!!!!!!!!
Even though we've said it several times we have appt at fertility clinic in two weeks so need all the results with us - none of this extra faffing and not telling us what is happening. Plus can't help feeling that it can't be good news

 

[deafgal01]

Mad- that's annoying Hate it when they give you the run around and delay giving you the results.

 

[Hopeful Cat]

Hey ladies unfortunately after all the excitement and happiness of finding sperm in hubby and getting 2 embryos transferred it seems my first ivf cycle is a bust. Got af yesterday and a bfn on a hpt have blood test on saturday to conFirm. So i guess its down to our 2 frozen embryos and then another mtese if they fail too. Im feeling so disheartened.