Developmental disorders/learning disabilities/genetic syndromes & more support group

[sequeena]

I'll have to keep an eye out for them x bless Hayley I hope she's better soon and can enjoy Christmas xx

 

[essie0828]

Kiddo woke up and I had to run. Those drinks are Pediasure Sidekicks. They are a supplement so not really for everyday but nice to have on those sick days.

 

[bumpin2012]

Sequeena: That sounds like a really promising report!

I may or may not be on before Christmas. The inlaws arrive on Monday, and im working, so if I don't

Merry Christmas!

 

[RachA]

The report sounds good Sequeena


We are wrapping everything unassembled as if we put things together I wouldn't be able to wrap them lol

 

[essie0828]

I couldn't be bothered with wrapping this yr. We just bought a big bow! She will have tons of wrapped stuff at the family dinner. Shew last yr it was so hard to keep her from EATING it, and from the looks of the confetti diaper the next day I did a terrible job.

She has oral issues and is still putting everything in her mouth. We have to do oral desensitization stuff with her to kind of help her get over that need for oral input and to help with drooling/swallowing. BTW ladies, any of you that have kiddos with oral sensitivities, or weakness, feeding issues, ect. Here is a website for reasonably priced therapy aids. www.arktherapeutic.com
I think they have tactile stuff to. I'm not affiliated with them or anything. We just ordered a bunch of stuff from there that our OT and ST friends recommended to help Hayley.

 

[sequeena]

Thanks essie I'll take a look. Thomas is still puts everything in his mouth and dribbles like no tomorrow!

 

[essie0828]

Hayley dribbles a lot as well. Her OT and ST both recommended the z-vibe. I got the customized kit and 3 extra batteries for $66 shipped. We do an oral protocol with her where we touch all her teeth, the gums, cheek pockets and tongue with various tips. She hates having her teeth brushed and this is helping.

 

[essie0828]

Btw our ST said a good vibrating toothbrush will do if in a pinch. We tried it with DD and she pulls out the bristles and swallows them. She will do the same to a regular bristle toothbrush if given half the chance so we brush her teeth with a rubber tip on the z-vibe. Helps loads!

 

[essie0828]

Does T grind his teeth?

 

[sequeena]

Oh that's interesting. T isn't too bad having his teeth brushed... as long as he's the one brushing them (insert 'sucking the toothpaste off the brush' instead of brushing). I'll get a vibrating toothbrush and see how he is.

No he's not a grinder, he wiggles his tongue a lot instead.

 

[essie0828]

Oh that's interesting. T isn't too bad having his teeth brushed... as long as he's the one brushing them (insert 'sucking the toothpaste off the brush' instead of brushing). I'll get a vibrating toothbrush and see how he is.

No he's not a grinder, he wiggles his tongue a lot instead.

that's some tasty toothpaste mum! Too cute. Hayley will not brush her own teeth, she will eat the toothpaste and pull out the bristles. It's a battle every time. Rubber type toothbrushs though, she likes a tiny bit better.

 

[essie0828]

The tongue wiggling thing may be a blessing in disguise when it comes time for speech. Hayleys ST is always trying to get her to move her tongue to different positions in her mouth. We actually have a small tube we put pudding and other yummy stuff on that we put inside her cheeks to encourage her to move her tongue over there. There's a lot to it really, her oral issues are pretty bad.

 

[essie0828]

One of her therapists suggested a barium swallow test when we were discussing the drooling issue. I'm not really thrilled to do it just over her drooling. If she were choking on it or her food I would but I don't think it's time for that just yet. The mouth and breathing exercises are helping her swallow some and bless her she has started wiping her mouth when she feels it.

 

[essie0828]

Sequeena: That sounds like a really promising report!

I may or may not be on before Christmas. The inlaws arrive on Monday, and im working, so if I don't

Merry Christmas!

Merry Christmas dear! Don't work too hard and please update us with the gender news when you can.

 

[RachA]

Merry Christmas to all you lovely ladies.

 

[justhoping]

my 18 yr old daughter just picked this kind of toothbrush up..its sings for two minutes while u brush..lol yea i know..
but my little one likes it now so maybe try that for teeth brushing..lol

 

[Feathers]

Hi ladies! Just a quick update as my net time is limited with a little one. Our little boy Paris was born just fine by c-section on the 6th and is doing well Had a skull issue at birth which looks to be resolving but we've been referred to the outpatients paediatrics to keep an eye on it. I'm trying not to worry but after Olivia I guess I overreact a little.

Olivia is fine, her MRI came back clear which is amazing news though they are retesting when she is three and on another good note, she has her Geneticist appointment for early January which is far sooner than we thought it would be! She's adjusting to having a new brother and going to a new nursery which specialises in speech development issues and should be much better for her!

Wishing you all a very happy Christmas and hopefully I'll be able to read properly and catch up soon. Hope all is well with you all ladies!

 

[AP]

Afternoon lovelies. Just wishing you all a merry christmas and I hope you all have an exciting time.

 

[essie0828]

my 18 yr old daughter just picked this kind of toothbrush up..its sings for two minutes while u brush..lol yea i know..
but my little one likes it now so maybe try that for teeth brushing..lol

I have resorted to singing anything and everything to get her to cooperate with brushing her teeth...if there's a toothbrush that will do the singing part I'm game!

 

[essie0828]

Hi ladies! Just a quick update as my net time is limited with a little one. Our little boy Paris was born just fine by c-section on the 6th and is doing well Had a skull issue at birth which looks to be resolving but we've been referred to the outpatients paediatrics to keep an eye on it. I'm trying not to worry but after Olivia I guess I overreact a little.

Olivia is fine, her MRI came back clear which is amazing news though they are retesting when she is three and on another good note, she has her Geneticist appointment for early January which is far sooner than we thought it would be! She's adjusting to having a new brother and going to a new nursery which specialises in speech development issues and should be much better for her!

Wishing you all a very happy Christmas and hopefully I'll be able to read properly and catch up soon. Hope all is well with you all ladies!

Congrats! Welcome home baby Paris! Fab news about Olivia as well. Merry Christmas and enjoy your little ones.