Developmental disorders/learning disabilities/genetic syndromes & more support group

[essie0828]

Afternoon lovelies. Just wishing you all a merry christmas and I hope you all have an exciting time.

Merry Christmas AP!

 

[bumpin2012]

Well ladies

 

[sequeena]

Ah congratulations!!

How's Christmas going for everyone? Thomas refused to open anything until gone 12pm. He did get into the swing of things eventually. He LOVES his remote controlled Thomas train as well as his leapfrog leaptop however, all his toys and all he wants to play with now is the cbeebies app on Sean's phone

In the middle of cooking Christmas dinner. Yum yum!!

I'm sick so I'm going to have to cancel going to my cousin's tomorrow. Boo.

 

[justhoping]

merry x mas everyone and congrats bumpin2012

 

[essie0828]

Congratulations on your little lady bumpin! She will have you guys wrapped around her tiny little finger

Hope you feel better sequena T sounds like he had a good Christmas. DD was a little overwhelmed at first to

It looks like a toy store threw up in my house DD is totally spoiled. My brother gets the loudest most obnoxious toys for her and our dog just to torture me I'm sure Squeaky toys + Jack Russel + excited toddler = Headache. Christmas was a total blast

 

[essie0828]

I woke up to a brand new GE oven and range installed. Momma is Happy!

 

[sequeena]

Oh wow esssie im so jealous!!

so here's something I discovered. Thomas' play food is made out of wood but can come apart and stick back together because it has velcro on it. Thomas spent the majority of the day rubbing the velcro up and down his face. He really loved the sensation. Bit odd but it made him happy

family are coming to us soon to exchange gifts seeing as we cant go anywhere x

 

[essie0828]

Hun you should have seen the old stove. It was a wreck we hobbled along with till 2 days before Christmas when I opened the oven and the heating element was welding itself to the inside. Crazyness!

That's so interesting about T rubbing Velcro on his face! Hayley does this with a few different things on her face and palms. Tell his OT about it. They will probably integrate tactile stuff into his therapy. Especially if its calming. Ask T if he wants a piece of Velcro on a lovey he likes. It may end up being a wonderful distraction during tantrums or just a calming influence.

 

[essie0828]

Hayley has to have a blanket with corners that is a certain texture to rub on her lips and face. She folds the corner a special way and flips it with her fingers. She's like Linus from Charlie Brown. We go everywhere with a blanket.

 

[essie0828]

My baby girl turned 22 months today and she took her first 2 wobbly steps all on her own. She did it in therapy today and we recreated it for her Dad when he got home. Grammy got to see it as well and she broke down into tears. Super happy day. More hopeful than ever that she will walk independently even if its just for short distances.

 

[bumpin2012]

Essie, that's wonderful! GO HAYLEY!!!

 

[bumpin2012]

Just found out my GP's office will be closing in a few months. My GP works in a clinic with a few other physicians, and has recently been off due to illness. I guess she's told the office she won't be returning, and the owner of the clinic has decided to close.

So now birth myself and G are left without a Dr. He's being followed by a pediatrician for his development, but not general health. I can't make appointments if he's sick or something seems off. Myself, is not overly an issue as I'm being seen by an OB until we move. When we move back here, though, we may not be ableto find a new GP. I was hoping to be kept on, but not seen until our return... Now i have idea what to do...

 

[sequeena]

You know... I'm very pleased Thomas isn't sick anymore but I really don't appreciate him bothering me for food at 3am

Well done Hayley, that's really great

Can you not just register with another doctor bumpin? I guess things are done differently in Canada x here we'd just go to a gp, register and that's it.

 

[essie0828]

Lol. He's a hungry boy after fighting off that sickness. But being up at 3am for anything sucks glad the little guy is feeling better. It's past midnight here and Hayley is just now winding down I may see 3am tonight myself.

Bumpin what exactly are GPs? General Physician? What about phoning Gabes pediatrician and asking what to do if he needs non emergency immediate care? Mabey they can put you in touch with someone. Hayleys pediatrician when she was 4 months old just up and left our local clinic without saying a word. She was the only doc we had seen with Hayley and I called to bring her in for her 4 month check and they just said Dr. E doesn't work here anymore. It's such a pain to go through finding a new doc.

 

[essie0828]

So evidently wide strips of velcro are hard to find. Thinking about T liking it made me want to get a few pieces for hanging a couple of Hayleys puzzles up on the wall. 2" wide strips are the biggest I've found so far. Surely is made wider.

 

[bumpin2012]

There is such a shortage for Drs here, it's really hard to find one accepting new patients, let alone a good one. I've gotten a few recommendations from friends, so I'm going to be calling around during the week. I would like to have one before we move. I think it will be easier to find one for me and G first, because they will generally take on new baby without hassle. Coming back, I need a GP to take on 3 new patients...

GP is general practitioner - your family Dr. Here you need one for basic health care, vaccines, referrals etc. I'm sure ours similar to your system in the UK. We sees G's pediatrician at the end of January and I'll ask her for help if I haven't found someone then. She only runs a clinic twice a month, and she fills up really fast. She's a specialist pediatrician, not a general one...

 

[sequeena]

Yes we have GPs here x it's where you go if you have a chest infection to get antibiotics etc. they also have nurses at the surgery who give vaccinations, smear tests and the like etc. Children don't automatically see Paediatrician's here. We have health visitors instead who are assigned to the child from birth to 5 years old. Thomas has a Paediatrician but only because of his problems. Paediatrician's are specialist doctors here.

 

[essie0828]

There is such a shortage for Drs here, it's really hard to find one accepting new patients, let alone a good one. I've gotten a few recommendations from friends, so I'm going to be calling around during the week. I would like to have one before we move. I think it will be easier to find one for me and G first, because they will generally take on new baby without hassle. Coming back, I need a GP to take on 3 new patients...

GP is general practitioner - your family Dr. Here you need one for basic health care, vaccines, referrals etc. I'm sure ours similar to your system in the UK. We sees G's pediatrician at the end of January and I'll ask her for help if I haven't found someone then. She only runs a clinic twice a month, and she fills up really fast. She's a specialist pediatrician, not a general one...

Ok I see That's very similar to the US, but there are plenty doctors. Here the trick is sorting through the crappy ones. To see a specialist pediatrician here is similar. Some you can only see once a yr unless it's an emergency. Like the neurologist and CP specialist. A GP sounds like a Family Physician here. They treat all ages for common stuff and they do referrals for the rest.

 

[essie0828]

Yes we have GPs here x it's where you go if you have a chest infection to get antibiotics etc. they also have nurses at the surgery who give vaccinations, smear tests and the like etc. Children don't automatically see Paediatrician's here. We have health visitors instead who are assigned to the child from birth to 5 years old. Thomas has a Paediatrician but only because of his problems. Paediatrician's are specialist doctors here.

That's quite different from here. You have to choose which type of doctor you are most comfortable with, Family Physician or Pediatrician, when the child is born. And your choices are based on the type of insurance you have, in network or outta network........it's a freaking maze. Honestly. I grew up with one Doc who treated my whole family, and now with Hayley we've seen over a dozen We have recently joined a Continuity Clinic where DD will see one of three resident docs supervised by one experienced Pediatrician. DD has been treated by this lady doc 5 times and she really likes Hayley. She has helped us with referrals and early intervention stuff because she has a special needs child. We've been waiting and searching for a smart, experienced doc to bond with Hayley and show genuine interest. I'm really hoping we've found the right person.

 

[bumpin2012]

Sorry, Essie. For some reason I thought you were in the UK

Canada is similar to you, just without the maze of insurance. Everyone sees a GP (or family Dr) and the pediatrician is only by referral.

I could not live in the US because of the health care issues. Even with the shortage here, it just means I have to go to a walk in for basic care until I find a new Dr to take us on. Sometimes when you go to the same walk in for a while, the clinic will take you on when they get an opening, it's just a pain listening to the "why don't you have a GP yet" spiel every time you go in...