Developmental disorders/learning disabilities/genetic syndromes & more support group

[sequeena]

Oh and something to hopefully make you smile. A selfie Thomas took today yes the dribble is back with a vengeance.

 

[emyandpotato]

He has the most beautiful eyes.

 

[sequeena]

Thank you I love his eye lashes especially they're so long x

 

[essie0828]

Awww what a cutie. I didn't know his eyes were so brown, adorable!

 

[essie0828]

UMMM.... ESSIE!!!! Congratulations! Thats amazing news. I hope you get in to see the specialist you want. (thats some grape juice for both of us!) Cheers to an easy, uneventful pregnancy!


Sequeena: Soooo glad to hear you guys are getting some sleep! Hopefully this continues for you guys. Its certainly about time!

Aliss: Im sooooooo happy to hear that you guys are getting your transfer to Alberta. I can only imagine how frustrating it is to be in a system where you cant even understand what they are telling you and vice versa


I leave on vacation and this thread moves FAST!

Lol, Cheers! Thanks hun. Our little valentines day suprise Pretty sure is what caused all this can't believe your 28 weeks already, little lady will be here so soon

 

[JASMAK]

Essie you can get touchable bubble mix and a bubble machine quite cheaply- might be an idea!

Jasmak sorry to hear that about Makena. How is she doing with it all? Is she in mainstream school?

Rory has his 2 year assessment next week after so hopefully we might begin to get some answers! By the way, does anyone have any experience of LOs beginning nursery when quite far behind? Rory's due to start in September but I'm worried that he doesn't meet any of the requirements.

Thanks...yes, mainstream school with a full time aid. Well, she does okay. I have her in 2.5 hours of tutoring a week on top of school. She struggles, socially. She tells me this. She runs back and forth during recess breaks talking to herself. I try to encourage her to play with peers, but she doesn't ask. I am trying to get her in a social play lesson, but it seems next to impossible. There just isn't anything here.

 

[Tiff]

Claire loves bubbles too! My work has these virtually indestructible bubbles and she LOVES when I blow them for her.

Lucky girl! Any job that involves bubbles has to rock, I'm jealous

I work at Gymboree, its a kids clothing store over here. Their "bubbles oodles" are amazing! They're expensive to buy bubble wise, but I get an employee discount and the bottle lasts forever.

We'll blow them for kiddos who are getting bored with their parents shopping. Other stores in the mall have mentioned that they've found bubbles in their stores halfway across the mall ha ha.

Congrats, btw on your pregnancy!

Squeena - T is such a cutie!

 

[bumpin2012]

Essie: wine always seems to be involved in surprise pregnancies!

And 28 weeks is really freaking me out! With an impending move across the country, and NOTHING ready for this baby, I'm wondering wtf we are doing... She can stay put for quite a while!

 

[essie0828]

Oooh we have a Gymboree about 30min north of us. I have never been, but I think we will go soon. DD is turning 2 next week and some super bubbles sound like a good gift idea. Still jealous of your job Tiff, it sounds like a blast.

Omg bumpin that sounds like a full plate. Are you switching OB's in late pregnancy? Its a nightmare to do that here. When will you take maternity leave?

Well got an assesment in today about DDs gross motor skills and it broke my heart some. She's at the level of a 13month old in gross motor. Her origional assesment put her at the 10month old level, so in just about 5 months we've progressed 3months of development. It's progress and I'm thankful but it's hard to hear she's a year behind even after intense therapy. We have another review of her overall development in mid March and I'm nervous. Like you ladies have said before, it's hard to see it in black and white.

 

[essie0828]

Essie: wine always seems to be involved in surprise pregnancies!

And 28 weeks is really freaking me out! With an impending move across the country, and NOTHING ready for this baby, I'm wondering wtf we are doing... She can stay put for quite a while!

Lol. I've been wondering wtf we are doing since valentines day. When DD is being especially difficult I really think I'm in over my head and how in the hell am I going to manage 2 Most days denial is my best friend

 

[Tiff]

Definitely go! Its pricey but if you shop sales (they have a different one each week) its actually very cost effective! Not to mention, their clothes last for-ev-er!

Its all Claire wears. Awesome because she has textile difficulties and they have a 'basics' table that is all the jersey (t shirt fabric) material, leggings, shirts, shorts. We live off of that stuff ha ha.

 

[JASMAK]

Oooh we have a Gymboree about 30min north of us. I have never been, but I think we will go soon. DD is turning 2 next week and some super bubbles sound like a good gift idea. Still jealous of your job Tiff, it sounds like a blast.

Omg bumpin that sounds like a full plate. Are you switching OB's in late pregnancy? Its a nightmare to do that here. When will you take maternity leave?

Well got an assesment in today about DDs gross motor skills and it broke my heart some. She's at the level of a 13month old in gross motor. Her origional assesment put her at the 10month old level, so in just about 5 months we've progressed 3months of development. It's progress and I'm thankful but it's hard to hear she's a year behind even after intense therapy. We have another review of her overall development in mid March and I'm nervous. Like you ladies have said before, it's hard to see it in black and white.

Oh, it is SO hard, but three months of progress in five months is pretty darn awesome! I always get emotional after each assessment too....even after all these years. I have learned to try not to compare with other, on track, children...it is very hard tho.

 

[essie0828]

Definitely go! Its pricey but if you shop sales (they have a different one each week) its actually very cost effective! Not to mention, their clothes last for-ev-er!

Its all Claire wears. Awesome because she has textile difficulties and they have a 'basics' table that is all the jersey (t shirt fabric) material, leggings, shirts, shorts. We live off of that stuff ha ha.

That's awesome! DD is a knee walker and her pants suffer Tough clothes and tough bubbles, I am so going there Sunday! Btw totally pictured the movie "The Sandlot" when I read for-ev-er If you haven't seen it you gotta find it. Best movie ever!

 

[essie0828]

Oooh we have a Gymboree about 30min north of us. I have never been, but I think we will go soon. DD is turning 2 next week and some super bubbles sound like a good gift idea. Still jealous of your job Tiff, it sounds like a blast.

Omg bumpin that sounds like a full plate. Are you switching OB's in late pregnancy? Its a nightmare to do that here. When will you take maternity leave?

Well got an assesment in today about DDs gross motor skills and it broke my heart some. She's at the level of a 13month old in gross motor. Her origional assesment put her at the 10month old level, so in just about 5 months we've progressed 3months of development. It's progress and I'm thankful but it's hard to hear she's a year behind even after intense therapy. We have another review of her overall development in mid March and I'm nervous. Like you ladies have said before, it's hard to see it in black and white.

Oh, it is SO hard, but three months of progress in five months is pretty darn awesome! I always get emotional after each assessment too....even after all these years. I have learned to try not to compare with other, on track, children...it is very hard tho.

Thank you so much hun We've only been at this whole therapy/assesment stuff since August of last year and my skin isn't thick enough yet. My perspective of DD is so different than the world's perspective of her and when those two clash I have trouble. To me she's the most amazing thing I've ever witnessed and I can't believe she made it after all our troubles. To others she seems damaged and they want to fix her.

 

[sequeena]

oh essie that is fab truly. The gap may be big still but she is closing it xxx

We had a report through the door too. Thomas' first Ruth Griffith report it said amended copy on it and to refer to the highlighted section. So I did. The only bit highlighted was GQ centile: 54, under 1st centile. When I had the report originally it only said 54. I looked on the back and it was only sent to us so I guess his paediatrician was trying to make it easier for us to understand.

Except it's upset me further. I knew Thomas was behind on his first one but it was the second report that told me he's under first. Basically there was no change is 7 months.

it's pissed me off. Why send me the first one why not send me an explanation of the second report?! FFS.

 

[JASMAK]

Oooh we have a Gymboree about 30min north of us. I have never been, but I think we will go soon. DD is turning 2 next week and some super bubbles sound like a good gift idea. Still jealous of your job Tiff, it sounds like a blast.

Omg bumpin that sounds like a full plate. Are you switching OB's in late pregnancy? Its a nightmare to do that here. When will you take maternity leave?

Well got an assesment in today about DDs gross motor skills and it broke my heart some. She's at the level of a 13month old in gross motor. Her origional assesment put her at the 10month old level, so in just about 5 months we've progressed 3months of development. It's progress and I'm thankful but it's hard to hear she's a year behind even after intense therapy. We have another review of her overall development in mid March and I'm nervous. Like you ladies have said before, it's hard to see it in black and white.

Oh, it is SO hard, but three months of progress in five months is pretty darn awesome! I always get emotional after each assessment too....even after all these years. I have learned to try not to compare with other, on track, children...it is very hard tho.

Thank you so much hun We've only been at this whole therapy/assesment stuff since August of last year and my skin isn't thick enough yet. My perspective of DD is so different than the world's perspective of her and when those two clash I have trouble. To me she's the most amazing thing I've ever witnessed and I can't believe she made it after all our troubles. To others she seems damaged and they want to fix her.

That's exactly it isn't it. You hit the nail on the head. It's not that we don't know their behind, it's how they act like they are damaged or wrong and need fixing. Dissecting every weakness and bringing it to our close attention while forgetting all the wonderfulness they truly are. So much more than their struggles are these perfect little people.

 

[essie0828]

oh essie that is fab truly. The gap may be big still but she is closing it xxx

We had a report through the door too. Thomas' first Ruth Griffith report it said amended copy on it and to refer to the highlighted section. So I did. The only bit highlighted was GQ centile: 54, under 1st centile. When I had the report originally it only said 54. I looked on the back and it was only sent to us so I guess his paediatrician was trying to make it easier for us to understand.

Except it's upset me further. I knew Thomas was behind on his first one but it was the second report that told me he's under first. Basically there was no change is 7 months.

it's pissed me off. Why send me the first one why not send me an explanation of the second report?! FFS.

Thanks hun Surely it can't mean he hasn't made any progress because he has. I don't think Hayley has had a Ruth Griffin test and the results are confusing. Mabey it was amended just to show the percentile ranking but was the same results? I understand why you are upset about it though. He is doing a lot better since you started this thread, and he's about the cutest thing I've ever seen. I know it's hard but don't be upset mama, that paediatrician can piss off with his papers

 

[emyandpotato]

Rory had his 2 year check this morning and he's finally being referred for speech therapy! And the lovely HV has said that he's eligible for special needs support at nursery but that he should have no problem with starting in September and they can't turn him down because of his delay, which is fantastic.

 

[bumpin2012]

Sequeena: big hugs. You know he's made some progress, he's doing things he want the last time. I hope your next report is more encouraging

 

[sequeena]

Thanks girls

Emy that's great. Does your LO attend a nursery now? You should inquire about Portage - they're therapists who come to the house once a week for an hour to work with the child. It's a very good service.