Girls with Endo............. :-) :-) :-) :-)

[Elski]

Hello ladies, just thought I'd pop in and say hi as I have Grade 4 endo, have had countless lap & excisions and was told that conceiving naturally would be difficult. I have a 17 month old so it's definitely possible! We're gonna start TTC later this year and I'm very worried we won't have so much luck this time so I'll be stalking your thread

Lots and lots of luck to all of you and congrats to those who have their BFPs

 

[petitpas]

Ooh, sugarlove - look at your beautiful ticker!!!

mpepe, I have no answers as I've never taken clomid
You mention that your endo is probable based on ultrasounds. Do you have other symptoms that suggest endo, too?

 

[floofymad]

Ooh Sugar, just noticed your ticker too!

Were you still taking clomid?...

 

[mpepe32]

floofy - not considering a lap and at this point and doc doesn't think it's necessary. He thinks if it is endo, not at a bad stage. Either way, I'm not too crazy about clomid's effects. I appreciate your response. Thank you

petitpas - thanks and yes, various symptoms like low back pain and paintful periods. I also have a cyst on my left ovary but again doc isn't not overly concerned.

I'm thinking that if I was able to conceive twice already naturally, I have to hope it will happen again, just might take time. And the fact that you have endo and have been able to conceive 4 times is super encouraging for me

 

[petitpas]

Yeay, I'm glad I can encourage someone although to be fair I've only got mild endo. I have had endo removed from my left ovary which created at least two of my pregnancies (saw the luteal cycst on ultrasound)!

I'm at 6dpo right now hoping for my 5th pregnancy (sticky one, please!)

If you're not sure of clomid, you could try soy? It didn't work for me when I took it but a lot of women on here have had success stories.

 

[mpepe32]

thanks petitpas. Hope you get your sticky bean this month

 

[star31]

hi

I hope I can join you girls! Had a scan 6 weeks ago and they discovered a v small cyst on my right ovary. Went back today and it's grown slightly so they want me to have a laparoscopy to check it out. The doc thinks it looks like an endo cyst which I'm not surprised about as I've had painful AFs for years. Told I will get op in under 9 weeks time and they will remove cyst and laser off any endo they find.


Have been ttc for over a year now and I'm 32. Just found out tonight that one of my best friends is pregnant after only trying for a couple of months. Trying to be happy for her but just feel really upset.....

Would love to hear from anyone in a similar situation or any success stories! I've been trying to be positive for most of this ttc journey but days like this just get me down :O(

 

[petitpas]

Hi star :wave: I'm 32, too. Ho-hum...

It's a bummer, but sometimes I think that it is 'nice' to find out something is wrong so that something can be fixed. You could let your lap coordinator know that you are available at short notice in case someone cancels. Sometimes that flexibility gets you in earlier.

Otherwise, big and sorry you need to pop by here xxx

 

[gem1985x]

Just a wee hello from me ! dont post much on BnB anymore but thinking of everyone! xx

 

[petitpas]

Beautiful ticker for you, too, gem xxx

 

[petitpas]

thanks petitpas. Hope you get your sticky bean this month

Got something time will tell if it's sticky...

 

[floofymad]

Hey how is everyone?...... :wave:

 

[petitpas]

I'm doing ok so far. First scan on Thursday showed a 5mm diameter gestational sac with a tiny yolk sac inside. Foetal pole was too small to see. I am going back on the 14th to see whether we have a heartbeat (fxfxfxfxfx). Still hoping it might be fifth time lucky...
How are you doing, floofy? When was your last surgery? Xxx

 

[floofymad]

That's fab news petit! Hope your next scan goes well. My last surgery was April. Had lap with excision and hysteroscopy. They've stuck me back on clomid for 3 more months now x

 

[petitpas]

Floofy, I'm wishing you all the luck in the world on top of what seem to be the best conditions for your body. Xxx

 

[gem1985x]

Hi girls long time no talk ! I have a 6 month old beautiful boy called Daniel James ! Who is my world !!! I see we also have a few more preggys in here !!! I have been so busy since DJ came into my life I literally haven't got a minute ! DJ was born profoundly deaf . He has the cutest blue hearing aids and is being tested for cochlear implants in June and if he's suitable will be operated on dec ! He's amazing my little miracle ! And in June we start ttc our little miracle no 2 ! Im on Facebook if anyone wants to add me- Gemma ohagan with apic of me witha gorgeous 6 month old ! Live to
U all ! I miss u all terribly - especially you floofymad! Xx

 

[OnErth&InHvn]

I thought i had a dermoid cyst since 2006 but when i went to the RE for the 1st time on the 22nd, he confirmed i have Endo He says I cant do lap to remove it, he has to re-open my c-section scar, which SCARES me!

It was kind of easier believing it was a cyst, now that its endo i feel like im completely beaten down.

 

[petitpas]

Oh Gem, how nice to hear from you! Congratulations on your gorgeous little boy
Fingers crossed that he will be eligible for the implants as I can only imagine how joyful it will be for you to introduce him to the world of sound...

My update is that after 5 losses we finally found the right treatment for me! I was already on heparin, aspirin and progesterone but my fifth loss was tested for genetic abnormalities and came back as normal. It was proof that the existing treatment was just not enough. My DH and I then went to see a new specialist who tested me for natural killer cells. Basically, it is an immune issue where the body is too aggressive and attacks the foetus as if it were a foreign body. The problem is supposedly more common with women who have other immune issues such as... yes: endometriosis!
The research on this topic and the treatment is still ongoing but DH and I took a leap of faith. All I had to do was take steroids for the first three months in pregnancy (in addition to everything else I was already on, which I need for a clotting problem) and now I am 25 weeks pregnant with a little boy!

How is everyone else on here doing?

Onearth, may I suggest that you get a second opinion from a gynae who specialises in endometriosis? I don't know how your RE could diagnose you without actually opening you up as that is usually the only way to confirm endometriosis
In any case, a second opinion might give you other options or just give you the opportunity to get someone else's perspective on reopening your existing scar. Good luck with everything

 

[OnErth&InHvn]

Oh Gem, how nice to hear from you! Congratulations on your gorgeous little boy
Fingers crossed that he will be eligible for the implants as I can only imagine how joyful it will be for you to introduce him to the world of sound...

My update is that after 5 losses we finally found the right treatment for me! I was already on heparin, aspirin and progesterone but my fifth loss was tested for genetic abnormalities and came back as normal. It was proof that the existing treatment was just not enough. My DH and I then went to see a new specialist who tested me for natural killer cells. Basically, it is an immune issue where the body is too aggressive and attacks the foetus as if it were a foreign body. The problem is supposedly more common with women who have other immune issues such as... yes: endometriosis!
The research on this topic and the treatment is still ongoing but DH and I took a leap of faith. All I had to do was take steroids for the first three months in pregnancy (in addition to everything else I was already on, which I need for a clotting problem) and now I am 25 weeks pregnant with a little boy!

How is everyone else on here doing?

Onearth, may I suggest that you get a second opinion from a gynae who specialises in endometriosis? I don't know how your RE could diagnose you without actually opening you up as that is usually the only way to confirm endometriosis
In any case, a second opinion might give you other options or just give you the opportunity to get someone else's perspective on reopening your existing scar. Good luck with everything

well hes one of the top rated REs in the city im in, but i know that doesnt always mean Beans. lol. He showed and told us the difference between what a dermoid cyst and Endo would look like and what i have looks more like endo (based on u/s). They also called it a Chocolate Cyst.
I plan to give my OB/GYN a call and see what he thinks because he can do the lap too and i trust him just as much as the RE, but i trust him more with listening to me and what I want (a lap NOT re-opening my scar).

Now DH claims the RE says he wanted to re-open me to "peel the endo off so it doesnt return" and that by doing a lap, he can miss some of it and it can come back.. im not sure what to think of that?

 

[petitpas]

Hi onearth, I really can't comment on the peeling back

Sorry, I really didn't mean to say your RE isn't good at what he does, I just meant that there are some docs who specialise in endometriosis and are more up to date and practised in the latest techniques.
Would your insurance pay for a second opinion? Even if it is just to set your mind at ease that what your RE is suggesting is the best option for you.