Hi everyone,
SKP - I'm so sorry to hear your news. It's heartbreaking.
It wonderful to read how everyone is doing, time is flying by so quickly.
Afm: I've been away for a while as I felt so worried that our donor embryo cycle might fail. We had a lovely trip over to Athens at the start of June for a few days & only waiting on my lining made things easier to plan. We had 2 embryos put back. Amazingly we got a positive test! Between each beta & scan I kept thinking the babies would disappear, I couldn't believe we could be so lucky. Its been quite a few weeks, at our first scan we found out we had twins, but they thought they were in the same sac (this happens in 1% of twins & is massive high risk to the babies).
We went back last Friday (10w1d), the great news was their little hearts were beating away and they are in their own sacs. Breathe again! They can't decide if they are sharing a placenta or not, it looks to be that way. If they are they are identical.
Unfortunately, that is where the good news ends, within a minute I came crashing down, they found a cystic hygroma around one of the babies heads, which is water retention. In itself its not a problem, but it is a marker for serious issues. In 100 babies, 60 would have downs/edwards/pateu/turner syndrome, 20 would have cardiac issues (varying seriousness) & 20 ok.
We are going back for the harmony test which is a blood test tues 18 August but the results take 2 wks to come through (the babies were too little before). The harmony test tests for all the above syndromes. If they are identical they will both have the issues if there are any. If only one has issues we will need an amnio at 16wks to work out which twin it is. The basic amnio takes 3 days to come back, but then we'll need to do the full one to check for as many genetic conditions as they can. They can't check everything. I think we'll need an amnio either way.
Cardiac issues can't be checked til 18-20 wks. The Dr says we also need to prepare ourselves that nature may take its course by 12 wks (seeing those heartbeats I'm not so sure). The next appt is 12w5d.
I have been researching online, there's 2 camps when this happens - the all the bad stuff happens to their baby camps & the miracle camp where it goes away & its all ok. - So pretty much what the Dr says.
Praying for a miracle. I can't believe something so wonderful has turned out like this. Our donor was only 20, I never thought we could get these issues. I've never realised how long these tests take and they need the babies to be biggger to get a proper look at them. 11w today. I was hoping to come back with good news but instead its so uncertain.
. Hope you recover soon from your C-section .
. Do upload more pics !! About 32 weeks, it is not same as 8 months coz some months have 5 weeks and some 4 weeks. So as time goes by the difference increases.
My GP took over after my IVF's always ordering extra scans if I needed reassurance over varying concerns. Glad to hear your team has been responsive!
. Will be 19 weeks soon but I am still paranoid sometime that something might go wrong. Till now I cannot feel any movement just some flutters sometimes.
