June Dragonflies 2016 Babies and Beyond!

[Lil_Pixie]

Unfortunately camhs won't look at him until he's older. A lady from the sure start is coming to observe him next week but she can't actually help us. We've just got to wait till he's older

What makes it even worse is when he's having a good day there's honestly no one better - he's so smart and loving and funny. But he can't sustain it for even a full day

 

[Teeny Weeny]

I don't understand why your area wont give more help. Two of my young nephews have been diagnosed with autism. Different boys completely. K is only 3 and they will make provisions for a specialist school next year. Actually, he is a poo smearer too. My SIL had them both assessed by the age of 3 and D who is 8 goes to a specialist school with transport there and back. He is very high functioning aspergers but still had help from young.
X obviously needs assessing and the quicker he gets help the better for you all. I'm sorry you can't find the help and support you need lovely. Xx

Dory, please don't be upset. I understood your post perfectly and it was obviously written to be helpful and so that Pixie didn't feel like X is the only 4yr old to act that way. Xx

 

[mommyxofxone]

I wasn't trying to shoot you down dory I was just saying my kids five and we have a lot of four year olds around us. In my experience it's definitely not normal. I'm saying she shouldn't be spoken to like that and most kids don't talk to their parents like that. You even said you thought it was from the previous family?

Sorry you took it badly dory

 

[mommyxofxone]

Maybe I shouldn't give any opinions lol I just piss people off. I don't mean to. Most times I'm just thinking and sharing. It's not meant to be anything other than talking.

 

[Teeny Weeny]

Maybe I shouldn't give any opinions lol I just piss people off. I don't mean to. Most times I'm just thinking and sharing. It's not meant to be anything other than talking.

This made me laugh! I tend to do that too. I'm not so good at getting my opinion across correctly via the Internet. xx

 

[vaniilla]

Dory - I would still go to the gp too but ask for a referral to talking therapies


Pixie - I think you're stronger than you think, you're doing really and making sure they're fed and looked after, the amount of support or lack of should I say is frankly shocking, I know in a lot of parts of the UK they will support children of all ages so it makes it all the worse you're getting nothing. Have you tried pushing your gp for a referral since? there must be guidelines on this that you can print off and show them if they try to argue.

 

[Starlight32]

Stressful day. Called 911 because thought she wasn't breathing. She's ok but the cascade of events were so stressful. Not coping well

 

[vaniilla]

Stressful day. Called 911 because thought she wasn't breathing. She's ok but the cascade of events were so stressful. Not coping well

Oh no, that sounds really stressful, I'm glad she's okay now

 

[Boo44]

Oh my goodness starlight what happened? Hope Hannah is ok and you have some support? Xxx

Feel awful for you pixie with Xander's issues - you don't really have much of a choice tolerating it do you, if he's not responding to your discipline and all the other things you've tried I agree with the other girls that surely services could be inputted now? I know autistic children diagnosed age 2, (not that I'm saying X is autistic, just I've seen services be utilised by HVs early on). Could you contact your HV and outline just exactly how you are struggling. If they realise the effect it is having on your mental health as well as just Xander's issues they surely have to help?

Georgia Florence is a beautiful little girl

 

[Starlight32]

Trying to catch up...

Pixie I hope things are able to improve with X. You're strong to handle all that

 

[Lil_Pixie]

The HV is coming back to repeat Georgia's 6 week check in two weeks so I'll ask her then. As far as I know the gp can just send the referral which he's already done but apparently the school can do it too so I'll ask them too.

The woman from sure start said they only usually refer younger if there's a clear issue ( sever autism etc) my bosses daughter was referred and diagnosed at about 18m but she was completely non verbal until she was six so no questioning it really. The school and the sure start said he may slip through the cracks because he's ahead of his peers in school. He won't be able to keep that up though

Mommy I'm sorry I was a bit short. I'm generally an overly gentle person so it's been suggested a few times that xander behaves as he does because I allow it (until they see for themselves) so I'm a bit sensitive to it.

Starlight I'm so sorry you've had such a scare what happened? Is hannah OK now? What aren't you coping with hun?

Lol boo my sister is furious with me for dressing Georgie in "boys" clothes. I made a point of digging out the star dungers just to cheer myself up

 

[mum22ttc#3]

Only just kind of caught up, this thread moves pretty quickly.

Mommy, I feel like that sometimes too, I find it much harder to express opinions over the Internet and sometimes over compensate with emojis lol Keep giving your opinions, I'm sure people appreciate that your trying to help

Pixie, sorry your having to deal with Xander on your own and that your not getting the help that you should be, sorry I haven't much advice but sending

Dory, (pretty sure it was you, sorry if not) I haven't had pnd but agree with whoever else said I think you should at least speak with your doctor or HV, there's no harm in at least talking through your feelings with them and they certainly aren't there to judge. Again not really got any advice but sending

Starlight, I hope that Hannah is ok?

Sorry if I've missed anyone out.

Afm, not much going on really. Arthur had his jabs monday and coped brilliantly, hardly cried and was fine afterwards.

We have had problems the last 2/3 days with him being fussy over bottles, usually he eats 30 oz a day, 5 bottles of 6 oz. The last few days though he has been drinking 4 oz and averaging about 20-24 oz. Even that has been a struggle at times.
If anyone has any advice it would be great. I have been thinking that it maybe an after effect of his jabs? I've also read about a 8 week wonder week which does state they could lose their appetite? Just knowing that it is going to end and that he will go back to the great eater that he was before would be great lol

 

[Starlight32]

Totally not caught up but saw last post and wanted to rep,y about jab

Mum22 h decreased feedings too. Really been stressed about feedings . More later

 

[mum22ttc#3]

Thanks for replying especially as your going through a stressful time.
I have found it quite frustrating mainly because he was such a good eater until the last 2/3 days so really just want him to go back to his usual self. Glad that he's not the only one though and hoping that it's pretty normal.

 

[mommyxofxone]

Omg starlight what happened?!

Thanks ladies. Please remember I don't work and so I don't have a lot of adult contact. My daily conversations consist of sentences missing words lol. When I do see grown ups it's with children so broken convos as well. Doesn't help I've always been socially awkward. So if I say anything that sounds snotty I swear its not meant like that. I'm terrible at putting thoughts into words. :/

 

[mommyxofxone]

Oh and I read 8 weeks is a big growth spurt so can be very fussy about meals and frustrated!

 

[Starlight32]

Haven't caught up but wanted to pop on before bed (already so late, 9pm !) and continue the story of today.

Feeding h has always been stressful. She's bottle fed (although I'm trying to bf more.. That's a different issue). she cried so much at feedings. When I go to burp her, I have no idea of her screams are because she's still hungry and wants bottle back or if she's sick and needs to spit up. She rarely burps and then stops crying. She usually cries until she spits up and then she will cry on and off for a bit. I never know if she's still hungry but I don't give her more if she spits up. I hope that's the right thing to do. I talked to the pediatrician about all this and she was no help. She said babies spit up and it's normal etc. she said she could give an rx but I was worried about who being on medicine. Dr said it wasn't reflux though so I'm unsure what med she was referring to anyway.

Today she was crying a lot then it seemed like she stopped breathing or was having a lot of trouble. Called 911 but as I was on phone, she went back to normal. They still sent paramedics. Paramedics came and said that I should go in the ambulance of the hosp as that is what they suggest to everyone when this happens as they suggest for the pediatric dept to do a once over check. I felt uneasy about this because I didn't want her poked and prodded at the hosp, would rather send her to her pediatrician. But I wasn't sure what to do. They wanted me to pack a bag etcfor going to hosp. They also wanted to put her in the car seat. I didn't want them messing with her so I said I would put her in the car seat. But while I was upstairs getting shoes (I stupidly didn't bring her up with me and put her in bassinet downstairs), they put her in the car seat and started walking across the st with her to the ambulance. I ran outside and said don't take my baby! I ended up refusing transport and calling the pediatrician. I have an appt on Monday. Not sure what to really discuss as they said nothing can be done. I want to ask more about the rx though. I hate that every feeding is a struggle with screaming and spitting up.. She seems like she's in so much pain and is so upset 9 out of 10 times (there will be like the one random time where she's not too bad).

I'm to the point where I'm scared to feed her. I know it's horrible to say and I obviously still do it but I dread it. The 911 drama today made me feel stupid since she was fine when they got there and then there was the scene where I freaked because they took my baby out of the house without asking or letting me know before they did it. That was so upsetting. I'm glad today is over.

 

[ehjmorris]

Aw Starlight, i hope hannah is doing better today, im sorry i cant really give any advice as to what it could be, but im here if you need to vent xxx

 

[Squig34]

I can't offer any insights Starlight, but I'm sorry to hear you had such a scare & so much stress.

Has anyone else found they are clumsier as a result of pregnancy /birth? I seem to be fine with things like driving or handling the actual baby, but I'm becoming such a butterfingers with smaller things like crockery/the lid of the water filter jug/other random stuff. I just keep fumbling stuff. Especially with my left hand. I'm wondering if it's somehow a normal thing (though I don't know why it would be) or if it's maybe a very early sign of something more sinister...

 

[AngelofTroy]

Oh Starlight that sounds so scary, I'm not surprised your instincts kicked in when the paramedics took her out. I had a similar thing when they put Juni's cannula in when we went back into hospital. I freaked out and started crying begging them not to even though I knew they were just doing what she needed. What happened when H was struggling? Was she gasping or just a long pause? I hope the paediatrician can help. Reflux meds may help if she was choking on her milk? I'm so sorry you had to go through that.

Squig I have broken loads of things too, and OH has too! So we have put it down to tiredness rather than hormones or anything. I doubt it is anything sinister, I was clumsy when Micah was tiny too. I think sleep deprivation causes clumsiness but our instincts also put all our effort into protecting our baby and sacrifice the crockery!