Well, I managed to get in to see the FS today (got my pre-op appt today instead of Monday). The clincher for moving it up was I'm having stabbing bladder pains when I pee and I'm pretty sure I've gotten a bladder infection from the catheter they used during surgery. They are testing my urine for that and will get back with me in 1 or 2 days.
Regarding the prolactin, the FS isn't concerned for my ultimate success, but I will have to take Cabergoline for sure, regardless of what they find on the MRI that I definitely have to have. They will be calling to sched that after they are done wrestling with my insurance co. in 2 - 3 days. Wimper~
I'm claustrophobic, so they are going to have to dope me up good to get me in the MRI machine. The FS doesn't expect to find a tumor since my levels are only a little high (33 at highest and they don't usually start to see a tumor until 50, or more usually 100), but he has to check to find out what is causing it if anything can be determined to be causing it (from what I've read, probably if they don't find anything it just means the benign tumor is too small to show up on MRI). He did assure me that I wouldn't have to have brain surgery, though, so that's a relief. Now my biggest worry is for the side effects of the Cabergoline. It has lower side effects than the other drug that a lot of FS tend to use called bromocriptine (mine doesn't because all his patients hate it) but it still has a risk of nasty side effects like nausea, dizzyness, insomnia, depression, and hallucinations. Hopefully I can withstand it long enough for whatever side effects to subside, as I hear they subside after a week or so.
In other news, it turns out my mom and DH misheard when the FS was going over my surgery, because it turns out the big endometrioma was in my left ovary! And it wasn't a kidney that was adhered to my uterus, but that left ovary. When they freed it from the adhesions, the endo revealed itself and broke open, so lefty lost a little good tissue along with the endo, but only from where the endo wall was. So my ovarian reserve of that ovary will be a bit lower, but due to the adhesions and whatnot the eggs weren't getting where they needed to go, so it's still an improvement for my fertility. And the FS assures me it won't lower my AMH much and I should still be optimal, just not as optimal.
On the bright side, even with the high prolactin and the slightly damaged left ovary, the FS is encouraging us to try natural for 6 more months before moving on to treatments (other than the Cabergoline), so that's encouraging. The last study I read on success rate for endo patients after surgery gives me a 50% chance of ultimate success from natural. I have the option of only trying natural a month or two and moving on to Femera etc, but I'm content to try the 6 months. I've had enough adventure with the surgery that I'm willing to roll the dice with natural and it also gives us time to wait for open insurance enrollment in Oct., where DH can most likely choose the advanced plan and get us coverage for the drugs, IUI, and IVF, if need be. I sure hope I get my bfp within those 6 months though. The less drugs and procedures and expense I have to go through the better.
Also, they told me that surgery will mess up my bbt too much for it to be reliable this cycle, so I shouldn't temp for this cycle. I wish they'd told me that earlier, to save me some panic. Still don't know if I should opk. I won't be trying this month, bc I don't want to be PG during the MRI and risk mutations or whatnot, and I'm not feeling up to it with this bladder infection and I'm still feeling sore in the abdomen, but I do like knowing when to expect AF.
Oh, and I just discovered when showing DH how my incisions are healing that I do have stitches in my bellybutton! They are right in there, in such a way that they looked like the normal folds of the bellybutton until closer inspection. The FS didn't remove them today, and he inspected all my incisions, so I guess it's not time to remove them yet. I'll have to double check next time I talk with the clinic staff when they are due to be removed.
I still hate that I have to deal with the high prolactin, but the shock of it is wearing off and I'm no longer despairing. A bit concerned for the drug side effects and bummed I have to deal with getting the MRI and taking the drugs, but not despairing.
Ugh, TTC with clinical depression and OCD/generalized anxiety is hard. I'm thinking it probably wouldn't be so intense if I didn't have those issues to begin with.
I really hope that FS can give you some answers
It sucks when everything piles up like that
. I'd look at your chart for you but I have no idea how to use those things...and I'm not even sure I'm trusting my OPKs this month
AFM, I'm thinking today is going to be a cry day. First thing this morning I checked my email, Facebook, Instagram like I do every day and BAM there's my friend's first ultrasound from her first Dr. appointment on Instagram
It took a lot for me to not chuck my phone across the room and start bawling. It's just so unfair that the only ultrasound I ever got was when I was miscarrying and even though it looked like a blighted ovum to me and my sister at the time the US tech was saying that it looked healthy and was saying she could see the yolk sac which we didn't but I'm not the expert so I was trusting her
and got my hopes up. I'm just ready for my rainbow baby
Thanks for the encouragement and sympathy!
Sorry you are having a cry day, but totally understandable
I hope you get your rainbow baby real soon!
STG, im glad you're feeling better. There are going to be a lot of bumps in the road, but you will make it and get the baby you're trying for! I vote use OPK's as well as FF, because FF seems to have some "off days".
Oh and I were laughing last night at how I brought up that I wanted to TTC/ have a baby. I literally just blurted it out at dinner one night and then carried on the conversation we had been previously having. He sat there stunned for a few then said "okay". How did you all bring it up with OH? Or did they bring it up to you?
Thanks for the encouragement and whatnot
Yeah, I think I'm going to use opk's at least for a few more days to see what happens.
We'd talked before getting married about whether we wanted kids or not someday, and I said I could go either way (at the time feeling ambivalent) and he said he wanted two, so I was fine with that and we figured we'd try someday. Then when I got my miracle vestibulitis cure I took it a a sign we should try before my eggs get any older and it's too late, if he still wanted to have kids. He said that he did, so I pointed out it was time to get cracking' or possibly miss out. And then once he agreed to ttc, I got highly invested and moved from ambivalent to desperately wanting. I miss the ambivalence, sometimes, since it was easier to deal with, but the heart wants what it wants and as long as I won't be denied my desire I want it and want to want it. If denied, it's just torture. Before ttc I never knew I could want a baby so much. It's like I opened a gate or something.
STG- I know you are nervous. I would be too! However, prolactin is an easy fix. There are 2 meds they can put you on and both are great. Your numbers are nothing compared to mine that were in the 200's. With the meds they were able to get me preggo. I believe the month I fell preggo I was around 26. I have faith in you!
Thanks, that's very encouraging!
I'll have to remind myself of your success with the treatment, when I'm tempted to despair.
Did you have any side effects and if so from which drug? I'm just hoping I don't have bad side effects (or too many). (Although I still hate to have that MRI - tight spaces, why's it gotta be tight spaces).
STG- I looked at your FF chart. I don't think you O'ed but time will tell. The dotted lines means FF isn't positive either, just suggesting it.
Yeah, after what the FS office said, I'm suspecting I didn't O yet. Thanks for looking at it and giving me input
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Disney, glad you are on the right track with your levels.
I hope you get AF soon so you can start your next cycle!
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Yay for clear tubes, Mirolee!
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Welcome, Mizzy D!
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Julie, yay for longer LP!