Sunny, I really liked St Mary's. They are very scientific in the way they address everything and have a protocol for what to test when. Unfortunately, my problem seems to have been outside the standard box. That is why I went for the nk cell testing with Mr S. St Mary's don't do the nkcell testing or treatment because it hasn't been proven yet. If Prof Quenby manages to get a large enough cohort for her study and can prove that the treatment works then St Mary's will consider it.
If you haven't had all the tests then definitely go to St Mary's as they are very thorough and there is a very high chance that they can help you. Their team is very reassuring and believe strongly in TLC so you get regular scans and there is a lovely nurse you can call if you are ever worried.
Tasha/heart, clexane is proven to be just as effective as fragmin or tinzaparin or any of the other low molecular weight heparins. Of all the lmwh, I believe clexane is the most widely used in pregnancy and therefore considered the safest.
The dosage is calculated by your weight and is aimed at putting your blood clotting in broadly two target ranges (not entirely true as there is a third but that is irrelevant here). The higher range is the so-called treatment dose. Tasha will have been on this initially when she was diagnosed with an active clot (dvt). The lower is the so-called preventative dose. In theory, when you are on lmwh and pregnant you should have regular blood tests to make sure that the dose you are on puts you in the correct target range. As you get heavier with pregnancy you might move into a higher weight category and need a slightly higher dose to get you into the target range.
My haematologists, in desperation, put me on a higher dose which puts my blood within the treatment range. There is no evidence that this is necessary and I know of nobody who has this higher target range without an active clot. You could ask your doctors for this, Tasha, but as you probably know from your previous treatment, higher doses of blood thinners do not come without risk so not every doctor will agree to it. If you want my (my doctor's) details to help with this, you can PM me.
Interestingly, Mr S is more than happy with me being within the higher target range and has asked for me to try and continue with it until I complete my treatment (six weeks post partum).
Hopeful, when you were put on clexane you were put on it as if you had a clotting issue and that was how your dose was calculated. So someone of your weight with known clotting issues will be on the sane dose.
The official NHS guidelines don't actually ask for everyone with a clotting gene to go on heparin. Mostly it is unnecessary and not worth the extra bleeding risk. It is 'only' if you have more than one gene, APS, a history of clots or recurrent losses that you are to be put in it.
Urgh, here I am banging on about what seems to be my favourite topic at the mo. Sorry! It's not true! As of today, my favourite thing is to look at my belly and watch (yes, watch!) ducky kicking
I wanted the pic to reflect my true bump and not my ridiculous bloat. At night I can push my stomach out and look at least 5 months pregnant if not 6!
but I only got my consultant's agreement to let me do (light and gentle!) exercise this week.
just one more week until V-day 
