Recurrent Miscarriage Thread

[Widger]

to everyone. Sorry you have had to join Moonmama. You will get lots of support on here xx

 

[fluffyblue]

Waheyyyyyyyyyyyyyyyy got my referral date through today 25th November (next week) am so happy its come so quick xx

 

[bklove]

Hey moonmama, sorry for your losses as well and you are in great company.
I'm going to meet with a new dr. who deals with immunological and reproductive health, so we will see what that turns up, and I'll keep you guys posted on the tests they do.

 

[Smiler13]

Hi moonmama, the ladies on here are fab, I find it really helpful. Sorry you've had to join us though.

Fluffyblue - good news about your referral coming through.

Widger - so glad things are going well for you, keep us posted when you have your next scan! Are you going to find out the sex of the baby?

Peach Blossom - with respect to the study in the link, couldn't find any information about the study methodology, size of sample etc.

As for me, we are going to TTC straight away after my chemical last week, not feeling too bad actually. I had hoped to be pregnant again before the estimated-due-date for my third miscarriage, which was new year's eve. Silly really, dates don't matter. Since that one I have deliberately not worked out the due date, as it becomes an unhappy milestone.

 

[Widger]

Waheyyyyyyyyyyyyyyyy got my referral date through today 25th November (next week) am so happy its come so quick xx

So glad fluffyblue. That is such a fast referral date. About time they got their act together xx

BKLove - Good luck with new docs xx

Smiler13 - I so desperately wanted to be pregnant in August and had convinced myself I was for that same 'milestone' reason. It didn't happen and I was so upset. I felt so cross with myself for even thinking about it but it is totally natural. Good luck with TTC

 

[AS1]

hi: Hi all

I had my third mmc on Sunday I had my first in sept 08 resulting in an erpc, then the next one in feb 09 resulting in 2 erpcs because I got an infection following retained products and this time I opted for medical management to avoid an erpc but it went horribly wrong and I lost a horrendous amount of blood, collapsed and had an erpc anyway. Feel thoroughly low and anaemic! Dont know where to go from here- dont know if I can cope with any more- so glad I found this thread- thought I was the only one.

Would love to know how people have the strength to carry on xxxx

Ah moonmama so sorry you've had to join us
I've had 3 ERPC's too - all mmc no real bleeding or anything so I can kinda relate to what you're going through (even had incomplete erpc and infection with 2nd like you!!). We got our testing done and it took 3 mths for results but I'm still leaving it to new yr to ttc.....I'm dreading it to be honest but it does get a bit better as this time 3 mths ago I was saying I don't know if I can do this again but we seem to get the strength from somewhere.....xx

 

[AS1]

Waheyyyyyyyyyyyyyyyy got my referral date through today 25th November (next week) am so happy its come so quick xx

Good luck at your apt fluffyblue hope you get some answers

 

[AS1]

Hey moonmama, sorry for your losses as well and you are in great company.
I'm going to meet with a new dr. who deals with immunological and reproductive health, so we will see what that turns up, and I'll keep you guys posted on the tests they do.

good luck at your apt bklove xx

 

[moonmama]

Thanks to all your warm welcomes, thats so lovely

Brilliant you got date fluffyblue- you will have to let us know how you get on!

Thanks AS1- 3 months sounds like such a long time to wait for answers, what were results? did they find anything significant? At the moment I'm still thinking that I cant go through it again. We're going up for tests on 22nd Dec so maybe take one step at a time depending on what if anything comes up.

right now i feel 'stuck' i cant bare thought of ttc and mc again- but i've been trying for so long there will be a void in my life if i give it up (if that makes sense!)

xxx

 

[fluffyblue]

Thanks to all your warm welcomes, thats so lovely

Brilliant you got date fluffyblue- you will have to let us know how you get on!

Thanks AS1- 3 months sounds like such a long time to wait for answers, what were results? did they find anything significant? At the moment I'm still thinking that I cant go through it again. We're going up for tests on 22nd Dec so maybe take one step at a time depending on what if anything comes up.

right now i feel 'stuck' i cant bare thought of ttc and mc again- but i've been trying for so long there will be a void in my life if i give it up (if that makes sense!)

xxx

Hi hunny so sorry you are here again. Taking a break is not as hard as it seems - i feel kinda excited knowing I have to wait weird I know but ive set it as like a little treat to myself - if im patient I can try again and i cant wait for Feb but can wait if you get me.

I know its sooooooooooooooooo hard but enjoy christmas and new year - get drunk, have lots of sex (not baby making sex) relax and then start over in New Year you will feel much more relaxed I promise you.

Try and relax and take it easy xxxxxxxxxxxxxx

 

[bklove]

moonmama that makes alot of sense. I felt so disappointed before my last AF arrived just knowing it may not arrive, and to have to go through another cycle, it hurt alot, and I definitly felt that void. But I know that its made me even more passionate about ttc, and i'm not about to give up, so we are at it again! One day and cycle at a time I guess, I just hope it doesn't have to be that long for any of us. It sucks enough!

 

[AS1]

Thanks to all your warm welcomes, thats so lovely

Brilliant you got date fluffyblue- you will have to let us know how you get on!

Thanks AS1- 3 months sounds like such a long time to wait for answers, what were results? did they find anything significant? At the moment I'm still thinking that I cant go through it again. We're going up for tests on 22nd Dec so maybe take one step at a time depending on what if anything comes up.

right now i feel 'stuck' i cant bare thought of ttc and mc again- but i've been trying for so long there will be a void in my life if i give it up (if that makes sense!)

xxx

Hi Moonmama
Most of the tests are back within 4-6 weeks but the chromosone ones take longer, all my results were clear though.

However, I then had a hysterscopy today and found I have a septum in my uterus!! Means my womb is heart shaped, so I need an op to fix it. It may explain why I've had mmc's as I've had hb's and then somthing obv caused these to stop and apparently the shape my womb is restricts blood flow to uterus which can cause mc! I'm a wee tiny bit peeved that they've done 3 D&C's and never noticed this but hey?!
I totally understand where you're coming from, its so hard when you've had mmc/d&c's like you, you can't spring back the next month and try again as I know my body is certainly out of synch for a while after each. The mmc are also so cruel as you are oblivious until the scan, but I know you will get the strength when this horrible time passes as I definately felt the same Might be worth looking into a hysteroscopy if you haven't had one as your story sounds very similar to mine......xx

ps: have you had the fetal tissue etc... tested after your ERPC's?

 

[fluffyblue]

Hi ladies my MIL told me the other day she was rhesus negative - hubby doesnt have a clue about his blood group, has anybody heard this could cause issues.

We have had one child together?

 

[fluffyblue]

Thanks to all your warm welcomes, thats so lovely

Brilliant you got date fluffyblue- you will have to let us know how you get on!

Thanks AS1- 3 months sounds like such a long time to wait for answers, what were results? did they find anything significant? At the moment I'm still thinking that I cant go through it again. We're going up for tests on 22nd Dec so maybe take one step at a time depending on what if anything comes up.

right now i feel 'stuck' i cant bare thought of ttc and mc again- but i've been trying for so long there will be a void in my life if i give it up (if that makes sense!)

xxx

Hi Moonmama
Most of the tests are back within 4-6 weeks but the chromosone ones take longer, all my results were clear though.

However, I then had a hysterscopy today and found I have a septum in my uterus!! Means my womb is heart shaped, so I need an op to fix it. It may explain why I've had mmc's as I've had hb's and then somthing obv caused these to stop and apparently the shape my womb is restricts blood flow to uterus which can cause mc! I'm a wee tiny bit peeved that they've done 3 D&C's and never noticed this but hey?!
I totally understand where you're coming from, its so hard when you've had mmc/d&c's like you, you can't spring back the next month and try again as I know my body is certainly out of synch for a while after each. The mmc are also so cruel as you are oblivious until the scan, but I know you will get the strength when this horrible time passes as I definately felt the same Might be worth looking into a hysteroscopy if you haven't had one as your story sounds very similar to mine......xx

ps: have you had the fetal tissue etc... tested after your ERPC's?

Great news you have found some answers hopefully. Im thinking this is what they gonna check next week and maybe suggest to me this course of action xx

 

[moonmama]

Hi

As1 - they did send fetal tissue- I'm hoping to get the results when I go back on 22nd Dec - dont know how long it usually takes though? To be honest i'd be suprised if there's a prob with the shape of my uterus because I've have children. I have a bunch ranging from 21-10 from a previous marriage and I have a 3year old with my DH so this sudden inability to get to 12 weeks is a real mystery!

bklove - I do admire you for for being at the stage where you can try again. I was totally neurotic this last pregnancy, i think I'd have to be sedated for the first 3 months if I ever did it again!

thanks for advice fluffyblue- when you put it like that it sounds quite appealing! i'm impressed with your willpower anyway. I know I'm
going to have to wait and see what the tests reveal and take it from there!xxx

 

[bklove]

awww moonmama It would probably be rough at first but well worth it, so go get um!

Fluffy with rh negative I believe you may need a shot as the baby's blood may not be compatible with the mothers, somethng like that.

AS1 I went to see a immuno gyno specialist guy and he did to the hystocopy also but my uterus is clear. I know the septum bit is easily corrected and could be a huge cause to m/c so I hope this is it for you. Next up for me is a full immune work up and some DNA and chromosome stuff along with my hubby to make sure the body isn't attacking when it shouldn't be. I'm looking forward to what this produces, the Dr. is really confident about finding whats up, which is great because its been so crazy already, finally someone who can take on this challenge!

 

[AS1]

awww moonmama It would probably be rough at first but well worth it, so go get um!

Fluffy with rh negative I believe you may need a shot as the baby's blood may not be compatible with the mothers, somethng like that.

AS1 I went to see a immuno gyno specialist guy and he did to the hystocopy also but my uterus is clear. I know the septum bit is easily corrected and could be a huge cause to m/c so I hope this is it for you. Next up for me is a full immune work up and some DNA and chromosome stuff along with my hubby to make sure the body isn't attacking when it shouldn't be. I'm looking forward to what this produces, the Dr. is really confident about finding whats up, which is great because its been so crazy already, finally someone who can take on this challenge!

Thanks bklove, thats reassuring as I haven't actually heard of anyone else with a septum so didn't know much about it and didn't even get a chance to ask....was just told I'd be sent an appointment for op!!

Fluffy - I'm rh- and have had a shot after each mc, I think it dosen't affect the first pregnancy but it does future ones if neg and postive blood have mixed and antibodies are produced......might be worth looking into xx

 

[tansey]

Hi ladies - i've moved house and started a new job and finally got our phone line and internet sorted

I see there has been lots of ups and downs while i've been away - a big for you all!

I finished my antibiotics and actually got a bit of ewcm and bad OV pains this month BUT what a surprise no BFP!
I'm back to the gyny 16th Dec to discuss where we go from here with no successful pregnancy (although i'll be in the 1ww).

Anyway I'll leave my message here before i get all bitter and moany

 

[Poppy44]

Hi everyone....

I hope you don't mind me jumping on your forum.....I stumbled across this website and area after searching the internet.

I have just started investigations for recurrent miscarriage after suffering our 3rd loss just 5 weeks ago. We have been trying to conceive for 15 months now and suffered all our miscarriages in the last 9 months.

We have yet to see a consultant or anyone yet to discuss the tests that are to be done. We left the EPU with an information pack and all the blood and scans forms and have been left to sort them out ourselves. We have finally received an appointment for 22/12 to see a consultant nurse at recurrent miscarriage clinic where I presume we will receive our results and answer any questions.

I am trying to arm myself with a list of questions for our appointment as I know what I will be like when I get there and I am sure to forget something. Just looking for a bit of advise from anyone about their previous experience and questions that I really should be thinking about (my head is still spinning at the moment from miscarriage.

Any advice and help gratefully received thank you x

 

[fluffyblue]

Hi well phase one done see below !

One test was positive for the below, lupus anticoagulant antiphospholipid syndrome which can increase women's chances of recurrent miscarriages. The reason for this is unclear; some researchers believe that antiphospholipid syndrome causes tiny blood clots to block the blood supply to the placenta. Others believe that having antiphospholipid syndrome may interfere with the fertilized egg’s ability to implant in the lining of the uterus.!

More testing in 6 weeks when hcg levels are 0 so gotta wait till 6th Jan but im ok with that !!