Recurrent Miscarriage Thread

[Chilli]

Hi everyone
I've dipped in here before a LONG time ago and follow you all so thought it was about time to make contact again. Maybe that's a good sign - am I nearly brave enough to start TTC again?!! Also came accross my test results last night (and scans of my babies but actualy didn't cry for hours!!!!) All the tests are abbreviated so I have no idea what they are - I'll try and put abbreviations on sometime.

AS will read back to find out what test results were for you...

 

[lauraperrysan]

hey chilli, nice to hear from you..... how are you doing on being reffered and ttc?? i had my rmc in london yesterday, got pcos but they dont think thats the reason, have to have a scan on my uterus in feb to access for fibroids and scarring
9 week wait arghhhhh
xxxxx

 

[fluffyblue]

hey chilli, nice to hear from you..... how are you doing on being reffered and ttc?? i had my rmc in london yesterday, got pcos but they dont think thats the reason, have to have a scan on my uterus in feb to access for fibroids and scarring
9 week wait arghhhhh
xxxxx

Hi Laura how did you get on.

I saw docs today and surprisingly got some news !

The lupus thingy (its not actual lupus) just some raised antibody could be positive becuase of my current hcg levels even though they are 8 ! but more than likely this is a weak positive. Have to be tested again in Jan then 8 weeks later but if I get PG they will treat me as positive for this.

I have to have a full history on 6th Jan they are rushing my chromosome tests to be back for 6th as well. I am also going to see the consultant haemotologist as well on 6th ! She was really really good.

They are also going to investigate me for scarring as I have had 4 evacs as they said and that could but unlikely be an issue, also if i get PG i will be investigate at 14 weeks for an incompetent cervix which again is unlikely as ive had 2 full term births but if this is needed I will get a cerclage (stitch).

I have also got to keep my appt with fertility specialist so when I can TTC again I am having progesterone and HCG shots at CD21 after ovulation so its all go... at first appointment, was chuffed to bits !!

How do you feel... xxx

 

[moonmama]

Hey Fluffyblu,
sounds good that your getting some results! It must be a relief having some sort of answers even if they're not definate yet! I had previously decided that I cant possibly have that anti pospholopid syndrome because I've have healthy pregnancies in the past. But you have too haven't you? So is it possibly an age onset condition (sorry dont know how old you are!)

xxx

 

[AS1]

Hi everyone
I've dipped in here before a LONG time ago and follow you all so thought it was about time to make contact again. Maybe that's a good sign - am I nearly brave enough to start TTC again?!! Also came accross my test results last night (and scans of my babies but actualy didn't cry for hours!!!!) All the tests are abbreviated so I have no idea what they are - I'll try and put abbreviations on sometime.

AS will read back to find out what test results were for you...

Welcome back Chilli

Yes, I think the fact that you're back here means you've hopefully got the strength to ttc again soon!! No tears is a big step, one that I haven't quite reached yet... xxx

 

[AS1]

Hi Laura how did you get on.

I saw docs today and surprisingly got some news !

The lupus thingy (its not actual lupus) just some raised antibody could be positive becuase of my current hcg levels even though they are 8 ! but more than likely this is a weak positive. Have to be tested again in Jan then 8 weeks later but if I get PG they will treat me as positive for this.

I have to have a full history on 6th Jan they are rushing my chromosome tests to be back for 6th as well. I am also going to see the consultant haemotologist as well on 6th ! She was really really good.

They are also going to investigate me for scarring as I have had 4 evacs as they said and that could but unlikely be an issue, also if i get PG i will be investigate at 14 weeks for an incompetent cervix which again is unlikely as ive had 2 full term births but if this is needed I will get a cerclage (stitch).

I have also got to keep my appt with fertility specialist so when I can TTC again I am having progesterone and HCG shots at CD21 after ovulation so its all go... at first appointment, was chuffed to bits !!

How do you feel... xxx

Thats great Fluffy that you've got some answers....yeah its the lupus anticoagulant I think - I'm being treated for that when I get my next with aspirin/heparin even though I have tested negative for it, just as a precaution, but I'm prepared to try anything!! On a positive note I've had 3 erpc's too and last week when they found the uterine septum there were no real scarring/adhesions from the ops so I think the uterus is fairly good at healing itself or else the surgeons have been v accurate

 

[lauraperrysan]

hey fluffy, great news!!! u must be so pleased that ur making progress and have some meds ready for next time ekkkk!!
my appointment went well, have pcos but they dont think thats the problem.... They want to do an xray on my woomb (sp?) which involves putting a liquid inside me until it fills all the way down my f.tubes....the dr said it's very painful but not as bad as child birth....so not looking forward to that!! but i have a 8 or 10 week wait till then!!
glad ur's went so well
how are you feeling?

any one else here had an xray of the woomb (sorry im rubbish at spelling)

xxx

 

[fluffyblue]

Hi well its over for me - HCG levels are 2 !

So its now wait for full cycle and see how I am. Glad its all over and I can relax for a month - I have counted and ive had 11 visits to EPU since PG loss diagnosed and 42 vialls of blood taken !! Today when she tried to take blood from left arm it wouldnt play ball lol.

 

[fluffyblue]

hey fluffy, great news!!! u must be so pleased that ur making progress and have some meds ready for next time ekkkk!!
my appointment went well, have pcos but they dont think thats the problem.... They want to do an xray on my woomb (sp?) which involves putting a liquid inside me until it fills all the way down my f.tubes....the dr said it's very painful but not as bad as child birth....so not looking forward to that!! but i have a 8 or 10 week wait till then!!
glad ur's went so well
how are you feeling?

any one else here had an xray of the woomb (sorry im rubbish at spelling)

xxx

I think thats the HSG isnt it, ive heard its painful but very very good for diagnosis of anything - thats an awful long wait like mine in a bit even tho test showed something they have to be repeated in 6 weeks so bit like a new start after xmas , next appointment 6th Jan !

 

[Smiler13]

Hi ladies, sounds like there have been lots of appointments and stuff.

Tansey - welcome back, sorry this wasn't your month for a BFP. Hope you're settling into the new place.

Laura - sorry you have to wait 9 weeks, how frustrating! I've had an HSG, didn't hurt at all in my case (took ibuprofen an hour before, and the dr was gentle), it was quite embarrassing though, felt more invasive that an internal ultrasound. It's a good test for checking out the womb

Fluffyblue - sounds like your drs are on the ball and thorough, which is good. Are you looking forward to Xmas?

AS1 - as others say, septum can be cause of m/c, hope it's a step forward for you. Know what you mean about it being frustrating when things aren't found earlier, but I understand that with ERPCs etc they can't see very much.

Chilli and Poppy - nice to (virtually) meet you, sorry it's in these circumstances though.

Poppy, re. appointments with specialists, they normally ask for a history of your m/c, so it's worth writing this down in advance and bringing any info, e.g. from scans, since then you don't have to go through it verbally. Is also worth reading up on the various tests that can be done - somewhere on this or another thread is a link to info from the Royal College of Obstetricians and Gynaecologists for couples with recurrent m/c, which describes many of the tests. There are also some good books, e.g. by Lesley Regan. At the appointment you'll want to ask about tests and how long the results take etc. There is a blood test for your partner too, to check for genetic abnormalities.

I have made an appointment with a local counsellor, as have been struggling a bit, so am (strangely) looking forward to that. Have also made a private appointment with the specialist to ask some questions that have been in my head since my problem (dicky ovaries / low progesterone) was diagnosed and my recent chemical pregnancy. Feel like I need to know whether or not, if the current treatment doesn't work, there are any other options, so I can start to work through stuff. Apart from that am looking forward to the odd drink in December!

 

[Chilli]

Doesn't all the waiting drive you all mad? I just hope that they were right with my tests being ok and that theonly other waiting I have to do is for 9 months.

Laura that doesn't sound very nice, but we'll do anything won't we

 

[Smiler13]

Moonmama, how're you doing? Can totally understand your mixed feelings about TTC, hope time goes quickly til 22nd December.

BKLove - immunological testing sounds interesting - lots of drs here in the UK are quite negative about it, but it seems to be done a lot more stateside. Let us know how it goes?

 

[Chilli]

Hi Smiler

 

[lauraperrysan]

hey fluffy, great news!!! u must be so pleased that ur making progress and have some meds ready for next time ekkkk!!
my appointment went well, have pcos but they dont think thats the problem.... They want to do an xray on my woomb (sp?) which involves putting a liquid inside me until it fills all the way down my f.tubes....the dr said it's very painful but not as bad as child birth....so not looking forward to that!! but i have a 8 or 10 week wait till then!!
glad ur's went so well
how are you feeling?

any one else here had an xray of the woomb (sorry im rubbish at spelling)

xxx

I think thats the HSG isnt it, ive heard its painful but very very good for diagnosis of anything - thats an awful long wait like mine in a bit even tho test showed something they have to be repeated in 6 weeks so bit like a new start after xmas , next appointment 6th Jan !

i've got an appointment on the 6th jan in london too but just for bloods to be taken!! xxx

 

[lauraperrysan]

Hi ladies, sounds like there have been lots of appointments and stuff.

Tansey - welcome back, sorry this wasn't your month for a BFP. Hope you're settling into the new place.

Laura - sorry you have to wait 9 weeks, how frustrating! I've had an HSG, didn't hurt at all in my case (took ibuprofen an hour before, and the dr was gentle), it was quite embarrassing though, felt more invasive that an internal ultrasound. It's a good test for checking out the womb

Fluffyblue - sounds like your drs are on the ball and thorough, which is good. Are you looking forward to Xmas?

AS1 - as others say, septum can be cause of m/c, hope it's a step forward for you. Know what you mean about it being frustrating when things aren't found earlier, but I understand that with ERPCs etc they can't see very much.

Chilli and Poppy - nice to (virtually) meet you, sorry it's in these circumstances though.

Poppy, re. appointments with specialists, they normally ask for a history of your m/c, so it's worth writing this down in advance and bringing any info, e.g. from scans, since then you don't have to go through it verbally. Is also worth reading up on the various tests that can be done - somewhere on this or another thread is a link to info from the Royal College of Obstetricians and Gynaecologists for couples with recurrent m/c, which describes many of the tests. There are also some good books, e.g. by Lesley Regan. At the appointment you'll want to ask about tests and how long the results take etc. There is a blood test for your partner too, to check for genetic abnormalities.

I have made an appointment with a local counsellor, as have been struggling a bit, so am (strangely) looking forward to that. Have also made a private appointment with the specialist to ask some questions that have been in my head since my problem (dicky ovaries / low progesterone) was diagnosed and my recent chemical pregnancy. Feel like I need to know whether or not, if the current treatment doesn't work, there are any other options, so I can start to work through stuff. Apart from that am looking forward to the odd drink in December!

oh good thats it's not as bad as he was making it out it could be, guessing being a guy he can only go on what others have told him. Can cope with embarrasing lol...do u know what they are looking for when they do it? They didn't really say or they might of but it was information over load a bit!!

hope you ladies are all ok tonight

chilli - hope u get ur 9 month wait in the new year with a very sticky bean
smiler - good luck with going private

everyone - thank goodness we have eachother to help us all thro xx

 

[fluffyblue]

I dont know if anyone knows how long it takes for AF to return after methotrexate, I think (but am no expert) that if my HCG levels are now zilch that I should return to a normal cycle. Im talking law of averages but just wondered if anyone knew xxx

 

[Smiler13]

Laura - some information is https://www.sharedjourney.com/define/hsg.html, the HSG checks for lots of things, e.g. any scarring in the womb, fibroids, the shape of the inside of the womb and the fallopian tubes. You can see stuff on the screen as they do it, which I found quite interesting.

In most cases the doctor doing the test will tell you what they can see, but in mine the dr saw something, wasn't sure whether it was slight scarring or not, so wanted to check the images and do a follow-up ultrasound. Had a two week stressful wait for the ultrasound (which found "no significant" issues with the womb - hmmm - but, by coincidence that my ovaries weren't doing too well). At the time I was really stressed but am glad it happened as I got a "bonus" ultrasound that found my problem.

 

[bklove]

Fluffy- It does sound like you are moving in the right direction with the news you got. as for the shot it can vary when af comes, but it should go back 2 ur normal cycle.

Smiler13- I think its great you decifded to go get counseling, its a great way to get support in what you are experiencing. good luck to you

Poppy44- Welcome. I'm sure just in the last few posts you can get some idea in what to ask about. I think the basics is for lupus and clotting issues, tests to look at structure of uterus and tubes, tests for chromosomal issues on u and OH and I just started testing for immunological causes which not everyone believes in. I'm not sure what else but I guess the girls can add to this.

laura- What a long wait. It seems over there you do have to wait a bit for testing. Are you going to continue ttc in the mean time? As for testing I have had the one that just looked at the womb with the dye and the camera, a hysterscopy. That did hurt for a little bit, felt like strong period pains.

 

[Rabiah]

Hi All

Having just had my third miscarriage in a row my doctor is referring me to the recurrent miscarriage clinic at St Mary's in London.

Haven't heard from them yet - but just wandering what to expect, what should be by early questions etc...

Also, am having my follow up appointment post the 3rd miscarriage on 23rd December at my local hospital. What information shall I try to get out of them? After my second miscarriage I had one of these appointments and it was 5 minutes of useless platitudes that told me nothing...

 

[lauraperrysan]

hi rabiah, so sorry to hear of your loss you will find lot's of support on here

I am currenly under the care of the RMC @ st.mary's and so far so good, they have a great success rate (about 80%)!! The waiting list is about 6 weeks so not too long

Hopefully you'll have an appointment for January

bklove, thank you, the reason i have to wait so long is because i have to have my bloods done on day 2 of my cycle and i have irregular periods plus they need to leave enough time to tests them and get the results ready for my follow up appointment, so i guess it cant be helped....im just rather impatient lol!

to all, hope your all enjoying ur sunday xxxx