Recurrent Miscarriage Thread

[lauraperrysan]

p.s thank you for the link smiler xxx

 

[moonmama]

Hi all

I'm ok smiler. have been really struggling though, really really down and felt I didn't have anything to look forward to anymore. But i've had some acupuncture because I read it can help depression and I wanted to help my anaemia too. I must say I really think it helped me feel more positive. I dont know how it worked but it just did!!

really interested to hear how everyone else is getting on with their testing.

Hi Rabiah- sorry about your losses- you've come to the right place

 

[Rabiah]

Thanks Ladies
Have just spent a while reading up on the RMC at St Mary's. It sounds excellent.
I am so absoutely terrified of even thinking of trying for another baby - I feel sick at the idea of being told yet again that there is no heart beat and having to give birth to a dead baby... Yet, I so need to try to know why my three babies died... Is there something wrong with me? Were they connected? Can I be fixed?... I'm sure you all know this...

 

[moonmama]

Rabiah I totally know where your coming from!! I need answers too- but so scared of what the answers will be and then the thought of getting pregnant again and going through this nightmare yet again is just too much to contemplate at the moment.

Chilli- really hope you've turned the corner! Got everything crossed for you xxx

 

[bklove]

I think we all get impatient at several points in this journey.

 

[Smiler13]

Hi ladies, how're you all doing? How're you feeling about Christmas and stuff?

I'm good. Am finding counselling helpful. Saw my specialist last week, who advised that if I have another m/c with the current treatment there is another option to try the next time, so that is good news. Had a negative pregnancy test for this month (I have to take a test each month as the medication I'm on delays my period and need to know am not pregnant to stop taking it - stressful!), which strangely is a relief - my first m/c was this time last year and it spoiled my birthday and Christmas, so at least I know that this year I can relax a bit, have a drink etc.

Though am sad too - am a year and four early m/c on.

Hope that 2010 is a good year for all of us xxx

 

[AS1]

Hi ladies, how're you all doing? How're you feeling about Christmas and stuff?

I'm good. Am finding counselling helpful. Saw my specialist last week, who advised that if I have another m/c with the current treatment there is another option to try the next time, so that is good news. Had a negative pregnancy test for this month (I have to take a test each month as the medication I'm on delays my period and need to know am not pregnant to stop taking it - stressful!), which strangely is a relief - my first m/c was this time last year and it spoiled my birthday and Christmas, so at least I know that this year I can relax a bit, have a drink etc.

Though am sad too - am a year and four early m/c on.

Hope that 2010 is a good year for all of us xxx

Hey Smiler

glad you finding the counselling useful. I had my first session last week too and cried the entire time.....have been very teary since but suppose its good to get it out!!
I'm trying to be positive about christmas and enjoy it too as I was pregnant the last two christmases and sadly mc both, so am looking forward to a few drinks this year I also have to settle myself and realise that I can't ttc til after my surgery....

Also hoping that 2010 is our year - I am v hopeful that we'll at least be in one of the trimester sections before the year is out if not have our littles ones for next crimbo xxx

 

[lauraperrysan]

loving the pma ladies!! here's to 2010 bumps or eveb better babies!!! xxxx

 

[bklove]

I was finally able to get the results back from the Dqalpha, natural killer cells and chromosome bit. Apparently me and the hubby are genetically similar and I have high natural killer cells and that combination causes the body to attack the embryo and causes m/c. Atleast thats what he says, i'm still trying to wrap my mind around it, but it is treatable, but I would be under constant tx till I get pregnant and then until 10 weeks of pregnancy, which sucks...well I imagine it does as it may take a bit to get pregnant. Granted I may be pregnant now (going for a blood test today to confirm) and then from there he may put me on something to suppress the immune system. Can't really say much else about it, not sure how I feel, I think i'm still in a state of understanding what it all means. Not sure if this is just one more person with a theory, but i'm looking forward to sitting down and asking more questions.

 

[moonmama]

bklove- really pleased you got some answers but it sounds like alot to get you head around . Will you get anymore results or is that the definative answer now?

 

[AS1]

I was finally able to get the results back from the Dqalpha, natural killer cells and chromosome bit. Apparently me and the hubby are genetically similar and I have high natural killer cells and that combination causes the body to attack the embryo and causes m/c. Atleast thats what he says, i'm still trying to wrap my mind around it, but it is treatable, but I would be under constant tx till I get pregnant and then until 10 weeks of pregnancy, which sucks...well I imagine it does as it may take a bit to get pregnant. Granted I may be pregnant now (going for a blood test today to confirm) and then from there he may put me on something to suppress the immune system. Can't really say much else about it, not sure how I feel, I think i'm still in a state of understanding what it all means. Not sure if this is just one more person with a theory, but i'm looking forward to sitting down and asking more questions.

Bklove - good news that they have found something and that it can be treated. I kinda felt a bit weird a few weeks ago too when I found out about my uterus as I hadn't seen anyone else on here with that problem so had to do a bit of research!!

Will they treat you with a steroid or something when you next get pregnant? I know MrsJD had uterine NKC and she had to take them but I'm not sure if your situation is the same......

 

[MrsJD]

I was finally able to get the results back from the Dqalpha, natural killer cells and chromosome bit. Apparently me and the hubby are genetically similar and I have high natural killer cells and that combination causes the body to attack the embryo and causes m/c. Atleast thats what he says, i'm still trying to wrap my mind around it, but it is treatable, but I would be under constant tx till I get pregnant and then until 10 weeks of pregnancy, which sucks...well I imagine it does as it may take a bit to get pregnant. Granted I may be pregnant now (going for a blood test today to confirm) and then from there he may put me on something to suppress the immune system. Can't really say much else about it, not sure how I feel, I think i'm still in a state of understanding what it all means. Not sure if this is just one more person with a theory, but i'm looking forward to sitting down and asking more questions.

Honey, I too have high levels of uternine natural killer cells and after 5 MC's (6babies) I'm over 17 weeks pregnant. Prenisolone is the best thing that ever happened to me, okay I was grumpy on them, even lost weight instead of graining it.

To be honest my first gyne told me there was nothing wrong with me, now that is soul destroying. But I was over the moon to find the root of the problem knowing it can be treated.

uNKC's can be treated, okay it's only a trial in the uk but if your consultant can prescribe the drugs privately then I'd say go for it.

XXXXX

 

[bklove]

Oh what a blessing to come on and find people who have tried it and been successful. I'm pregnant now Found out today, and its a little late in the game but he wants to put me on pregnazone(?) and intralipids asap. The hubby is giving some opposition though, but we are on a time crunch, so I don't know ladies but I want to fight for my baby.
MrsJD- did you have alot of opposition from your hubby? ugggh, I just want to shake him. But I can't tell you how much your story gives me hope.

 

[MrsJD]

Oh what a blessing to come on and find people who have tried it and been successful. I'm pregnant now Found out today, and its a little late in the game but he wants to put me on pregnazone(?) and intralipids asap. The hubby is giving some opposition though, but we are on a time crunch, so I don't know ladies but I want to fight for my baby.
MrsJD- did you have alot of opposition from your hubby? ugggh, I just want to shake him. But I can't tell you how much your story gives me hope.

Firstly, congratulations honey

None at all, we had lost 6 babies (5 losses) and he was as desperate as me. The steriods will save your baby and he needs to understand the implication of uNKCs. The steriod side effects for me were well worth it, two main one's I had:

Sleepless nights
Moody - majorly!!!!

Hopefully, he'll come round as you only take them in the first trimester.

This may help him understand what's going on in the UK.

https://www.babyandbump.com/miscarriage-support/165113-rcm-no-explanation-look-here.html




XXX

 

[Widger]

Congrats again Bklove

Let's hope that you are the start of more good news for this thread xx

 

[moonmama]

Congratulations BKLove!!

 

[fluffyblue]

Oh what a blessing to come on and find people who have tried it and been successful. I'm pregnant now Found out today, and its a little late in the game but he wants to put me on pregnazone(?) and intralipids asap. The hubby is giving some opposition though, but we are on a time crunch, so I don't know ladies but I want to fight for my baby.
MrsJD- did you have alot of opposition from your hubby? ugggh, I just want to shake him. But I can't tell you how much your story gives me hope.

BK what fab news

Really hope this is it for you xxxxxxxxxxxxxx

 

[fluffyblue]

Well my AF has finished so im not edging towards the fertile time again. Am taking nothing at all this cycle all down to mother nature, no vits, epo, clomid, aspirin etc, the only thing I am using is mother nature and my CBFM not even temping.

Think 8 months on here has learnt me so many things that I know I ovulate etc so cant be bothered with all the shenanigans of it for a while.

I dont want to get PG yet dont not want to - does that make sense. Thought I could do patience but think I need a big box of it for chrimbo !!!

 

[fluffyblue]

Wanted to keep this thread near the top for the new ladies who are going through losses, there is so much information in this thread.

As for me I have to write a detailed synopsis of each and every loss. Its gonna kill me x

 

[Rumpskin]

Just thought I would quickly update and tell you that we have our first referral for RMC on 27 January - I am bricking it!