Recurrent Miscarriage Thread

[Widger]

Just thought I would quickly update and tell you that we have our first referral for RMC on 27 January - I am bricking it!

I'm glad you have your referral through Rumpskin. I remember being so terrified yet gagging to get through it, scared of what they would find but glad to finally have answers - if you get what I mean.

For me I didn't get any answers - all my results were clear and that can be frustrating in itself (even though I was incredibly grateful that nothing was wrong) - I found it difficult to believe that there wasn't something wrong?

Anyway, good luck with your referral and hope you get some answers xxx


Good luck to Fluffyblue too as I know you have yours early in the new year xxx

 

[MrsJD]

Just thought I would quickly update and tell you that we have our first referral for RMC on 27 January - I am bricking it!

Honey that's fantastic news, the 27th will be here before you know it!

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[wishing4bub#3]

Hello all long time no chat.
I have struggled since my last update on what they found wrong.
Now they keep testing to see why my body is doing that even tho it's normal now

I found out 2 days ago that we are execting on the 28th aug. I feel good but crap at the same time. I can't stop dreaming of what mght be but I know it's too early for me to celerbrate. Hubby is away with work but he still supportive of my fear.
If anyone has any spare sticky dust can you send it my way please.

 

[debgreasby]

Buckets of sticky to you xxx

 

[fluffyblue]

Hello all long time no chat.
I have struggled since my last update on what they found wrong.
Now they keep testing to see why my body is doing that even tho it's normal now

I found out 2 days ago that we are execting on the 28th aug. I feel good but crap at the same time. I can't stop dreaming of what mght be but I know it's too early for me to celerbrate. Hubby is away with work but he still supportive of my fear.
If anyone has any spare sticky dust can you send it my way please.

A tentavie congrats then and loads of sticky stuff to ya xxxxxxx

 

[fluffyblue]

Hi ladies I have to write a history of my losses but am struggling on the second one, it was in 2007 and I lost babe at 10 weeks, however I didnt even know I was pregnant. I was going through a very bad time, hubs and I had split up (but having make up break up sex)!

My periods were all over the place sometimes 30 days sometimes 65 days etc at that time I never tracked anything at all and frankly my periods were the last thing on my mind!

How would you write about this loss - could it have been a missed miscarriage as I think if it had just happened then I would have known at 10 weeks I was pregnant - can you give me your opinions as this ones the hardest to write about?

 

[eblondie]

I have been reading some of your posts this evening and because of my past experiences I would really like to pass on some of the things that have happened to me. As you can see from my ticker tho I'm not sure whether pregnant ladies stop by here.... and I certainly don't want to intrude...

 

[Smiler13]

Hi all,

Good wishes to the pregnant ladies, hope you're all well.

Fluffyblue, thanks for bumping up, I rely on this thread! Have replied about your having to write a history on another thread. I have a folder with medical details etc. and I just stick everything in there, then refer to it before appointments and never at any other time!

Those of you with appointments coming up, hope they go well. I find that whatever the news, I feel positive after each appointment, from having "done something" and talked to a doctor etc. But then I get a come-down a few days afterwards.

Have just found out that am not eligible for the NKC Liverpool trial, as in my case there is an identified problem with my ovaries and the trial is only for women with "unexplained" RMC. And there is nowhere as far as I know that is doing the tests / offering the treatment privately - argh! Am annoyed as the specialist I'm seeing in London says that the problem with my overies may not be the cause of my losses. Feel like a potential avenue for hope has been closed off.

Am trying to enjoy Christmas though - hope it isn't too hard for others. Is the time of year that can bring a load of emotions to the surface.

Take care and keep warm all xxx

 

[Smiler13]

Not intruding, please share eblondie.

 

[Smiler13]

Book recommendation for anyone who finds "self help" books useful - "Feel the Fear and Do It Anyway" by Susan Jeffers. Basic message - we can handle anything.

I am finding it helpful in approaching TTC after recurrent miscarriage.

 

[moonmama]

Hi ladies,

Need some advice please- I went for my Recurrent miscarriage blood tests yesterday, appointment was crap- they didnt have me down as having an appointment despite 126mile round trip, so didnt have my notes, so couldnt tell me the outcome of tissue they took from baby during erpc so that was really disappointing.But the thing that really bothers me is that apparently I wont get a follow up appt re bloods- just a letter and apparently 90% of results come back negative anyway so now I feel totally abandoned and I still have many unanswered questions. Such as - how can they test for progesterone deficiency if I'm not pregnant now? Apparently they dont treat unless clinically indicated - but if they arent going to test how do they know untill its too late?!

Does anyone know of anywhere that does all these investigations and treatments privately? Its a long shot because we cant really afford it but I've just lost all faith in my gynae dept- its all too vague and I dont want to leave it all to chance a fourth time!

I have be tentatively NTNP but now I dont have a clue what we should do!
Any suggestions welcomed thanks xx

 

[fluffyblue]

Hi ladies,

Need some advice please- I went for my Recurrent miscarriage blood tests yesterday, appointment was crap- they didnt have me down as having an appointment despite 126mile round trip, so didnt have my notes, so couldnt tell me the outcome of tissue they took from baby during erpc so that was really disappointing.But the thing that really bothers me is that apparently I wont get a follow up appt re bloods- just a letter and apparently 90% of results come back negative anyway so now I feel totally abandoned and I still have many unanswered questions. Such as - how can they test for progesterone deficiency if I'm not pregnant now? Apparently they dont treat unless clinically indicated - but if they arent going to test how do they know untill its too late?!

Does anyone know of anywhere that does all these investigations and treatments privately? Its a long shot because we cant really afford it but I've just lost all faith in my gynae dept- its all too vague and I dont want to leave it all to chance a fourth time!

I have be tentatively NTNP but now I dont have a clue what we should do!
Any suggestions welcomed thanks xx

Hi there sorry you had a bad time with RMC testing. Ive had 3 ERPC and given consent for testing and never had results so if theres nothing wrong I dont think you here, some women I know have waited 3-6 months for results on tissue testing.

Progesterone deficiency can be detected via blood testing on CD21 of your cycle even if your not pregnant, if its low then the docs usually recommend pessaries from ovulation just incase you do get pregnant, this is what they did with me and as soon as I got PG they increased the dosage, even though it made no difference.

The general bloods they take are chromosomal blood tests have you had these offered?

I would go back to your GP and insist on another appointment. My first appointment I had bloods etc and i have a follow up on 6th Jan, this will be a full history of losses, more bloods and infection screening.

 

[Widger]

Wishing4bab#3 - Sending sticky dust over to you xxx Please let us know how you get on.

Moonmama - I'm with Fluffyblue on this one. Go to your GP and insist on more testing. If you have a look at the first/second page of this thread you will see all that I was tested for. You could technically get this done again at your GP as I had bloods taken there, but then again at hospital as GP was trying to be helpful but didn't tick all the boxes.

They checked my progesterone by taking my blood at CD21 and I wasn't pregnant. In my hospital I should have been given progesterone pessaries even though all my recurrent mc tests were clear as this is just what they do for unexplained mcs. I didn't in the end though due to an incompetent secretary of the consultant. To say my consultant was raging with her for not booking me in was an understatement. Luckily, all seems well at the moment.

Don't ever give up on getting what you deserve - proper advice/treatment. You deserve to have answers.

Fluffy - I'm sorry you have to go through writing your mc history all down. Must be terribly difficult for you. I would just write down what you can and then they should be able to classify what type of loss you had. I should imagine it would have been a missed mc but I'm not too sure xx

Smiler13 - Sorry you have hit another brick wall with NKC trial. It must be incredibly frustrating. Can your consultant not say that he thinks the ovaries are nothing to do with your problem.

Eblondie - Any advice or previous experience will be welcome on here as you may just give new information etc that could be useful for the ladies that are TTC or waiting for clinic appointments. Congrats on pregnancy xx

Sending to everyone xxx

 

[eblondie]

Book recommendation for anyone who finds "self help" books useful - "Feel the Fear and Do It Anyway" by Susan Jeffers. Basic message - we can handle anything.

I am finding it helpful in approaching TTC after recurrent miscarriage.

I would definitely recommend this book. I also bought it for a friend as she was going through a hard time and she found it useful too.

 

[eblondie]

Thank you so much for your welcome. I know how important these forums are as I was a regular on another site when I was going through my miscarriages..... I hadn't found Baby and Bump!

So a little background from me..... I'm 36 yrs old now and have been trying for a baby since I was 21. I've had 4 miscarriages. 2 of those have been missed miscarriages. My 4th miscarriage was found to be because the baby had chromosome abnormalities.... which was a huge shock to me as I was told that this would be unlikely. After my 4th I was referred to St Marys London.... (2 years last Nov). At that time the waiting list was about 6 months. I was told that I wouldn't get an appointment until June 08.... which was a bad time for me as DH was due to be away in Afghanistan with the RAF. The hospital were very understanding about this and offered me a cancellation in Jan 08. If you are put on a long waiting list I would definitely contact them and offer to take any cancellation they can offer. Myself and DH underwent several tests and I got the results in May... unfortunately DH couldn't be with me and it meant that I got my results on my own. I wasn't particularly worried at the time as I was told by the consultant that after looking through my notes they thought it was unlikely that anything would show up in the tests..... they were WRONG! I have elevated factor 8 and a few other things.... which meant that if I got pregnant again then I would need to take Clexane, Aspirin and be carefully monitored. I was shocked and totally blamed myself.

Well as you can see from my ticker.... I am pregnant. For the first 12 weeks I was regularly seen at St Marys and started Clexane and Aspirin at 5 weeks... as soon as they confirmed my pregnancy. No it hasn't been easy and I still can't believe that I have got this far... never managed past 12 weeks previously. I have had very close monitoring from my Dr, hospital Consultants and Midwives.... I really can't fault the care that I have been given.

I know that RMC is anything but easy and I wish you all well. If I can answer any questions about St Marys etc then please ask.
Big hugs to everyone
Emma x

 

[debgreasby]

Glad things are going well xxx

 

[bklove]

Seems to be a difference in the level of care in the states and UK, seems harder to get services in the UK, what do you guys think?

 

[moonmama]

Thanks for responses fluffy and widger. They took bloods from me and DH so that must be for chromosomal testing- I actually got a phone call from the hospital yesterday saying they have found my notes which showed that the feotal tissue had come back as normal- so looks like the problem must be with me somehow. They said if blood samples came back as normal they wouldnt offer me another appointment so I said I would really like to discuss this further so they have agreed a follow up appointment in 6 weeks thankfully!

I mentioned the progesterone query on the phone and she instantly dismissed me saying its highly unlikely! I have a feeling I need to be more insistant!

Hi eblondie- congrats on your pregnancy!

 

[moonmama]

Seems to be a difference in the level of care in the states and UK, seems harder to get services in the UK, what do you guys think?

Yes there tend to be alot of regional variations in UK too- some people seem to have amazingly thorough care- whilst some of us dont!

 

[MrsJD]

Smiler sent you a private message about the uNKC's

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