Recurrent Miscarriage Thread

[Tasha]

Oh and I had the uterine biopsy with one Dr and the blood tests with another, both were high x

 

[floridamomma]

Y steroids were also started from iui(ovulation). My dr said it was necessary and was painful to test for nk cells he said the treatment is the same and just went straight to steroids. I had 2 mc maybe 3 where we possibly got a hb and then lost it. All others is just start bleeding. There was also a possible chemical may 2013. I got several bfp them went negative and had heavy af

 

[floridamomma]

I also worry about mmc. I feel so indifferent to this situation. I want to have faith and believe but I just feel like why get excited you'll just miscarry like before. When does that feeling go away?

 

[Hope39]

It doesn't ever really go away Florida . When I was pregnant with Isaac, I had excited moments occasionally but i also always thought I wouldn't bring him home and i was right , my little man didn't come home with us.

For me I will never believe I be bringing a baby home till its in my arms alive and kicking, anyone that has had a late loss probably thinks that way

Xx

 

[Tasha]

I will spoiler this because it's how I feel about this pregnancy and some may not want to read it but I wrote it the other day and it is exactly how I feel.

Spoiler

99% of the time I'm fine. I made a conscious decision to fall in love with this baby, to get every last bit of joy, excitement and love we can. And I do because whatever happens there will be no regrets. I know why I made that decision but in those moments that the future seems both uncertain and scary, I almost wish I hadn't, that the pain will drown me if anything happens.


Rationally I know that nothing makes it easier if your baby dies but sometimes I have a wobbly day, where there is no sense nor being rational.

 

[Hope39]

I liked that you was very open about it although it made me cry, lol

You put it perfectly x

 

[floridamomma]

I feel the same hope I don't think I'll trust it until we are on our way home with our little one. Tasha I'm going to try to adopt that attitude. It'll hurt either way I might as well fall in love with my lo

 

[SweetV]

Steph - welcome . It's a hard club to be a part of but you have found a very supportive group of ladies! I'm so very sorry for your losses and I have a feeling that my doctor will be rolling her eyes when I go next week armed with what I would like my plan of action to be. She recently told me that I will not be able to try again so I have a feeling it may be my last appointment with her. I agree that with 3 back to back mc it may be a good idea to let your body take a break and build up some much needed resources.

blue - I always have mmc too. Not panicking is not in my mindset lol. best of luck. It is interesting to see what different doctors do to tackle the situations. It's kinda sad that mine just wants me to give up when it seems like there is so much more she could try.

hope - I totally agree about the late loss and not believing I will be brining home a baby until it actually happens but....

tasha - I love your out look. You have been through so much and it's amazing that you can look at it this way!

afm - it is getting closer to o day and I have that "it's go time" mentality. I always feel so good at this time of month. Keep everything crossed for me ladies!!!

 

[dairymomma]

Steph-I take it from bfp but as I mentioned before, I think it's more the anti-inflammatory effects that help me than the blood thinning effects. My dr initially put me on it as a 'just in case' measure because I hadn't had clotting testing done but had had 3 m/c in a row. He also put me on progesterone and it was mentioned once in passing that sometimes progesterone can make your blood a wee bit thicker so some dr will prescribe the aspirin/progesterone combo for that reason. For me though, I feel like it calms my endometrium down just enough for my baby to implant and for the placenta to attach properly. I've taken it from bfp til 14 weeks then off/on after that (when I remember to) til 34 weeks.
I was prescribed progesterone because my dr felt it was the best solution for me. I didn't have any testing aside from your usual thyroid function and rH factor done until after my 5th loss but my dr said based on when and how I was miscarrying (7-9 weeks and usually within days of seeing a healthy hb), he felt it was a progesterone issue. I started off with 100mg 2x/day from bfp til 13-14 weeks and that (along with the baby aspirin) took me to full term with my DS and DD1. Then I continued having losses after DD1 even with the meds so we started looking into more testing. Overall, I've had everything my dr will test for except an hsg and the only thing we know is an issue for me is my hormones stay low (but very normal) for my pgs. Progesterone will hover around the low end of the scale (9.8 at 4 weeks when the low threshold is 9.4) even if I'm supplementing and we've kicked my dosage up to 200mg 2x/day. My hCG levels also stay lower and I typically don't see any more doubling every 48 hours after 5 weeks.

I've had one pregnancy where I conceived right after a m/c and it was an accident. We weren't ttc but it still happened and the result was my hardest (mentally) pg yet. I had threatened m/c symptoms from 5-11 weeks and nearly lost it more than once because my anxiety was SO bad. But the end result was my LO and I can't help but feel blessed that despite everything that happened with her pg, she's here. If this is your 3rd in a row though, I'd say maybe wait at least one cycle.It can't hurt to let your uterus heal a bit and your hormones calm down, right? I know well how much that NEED to ttc right off the bat can be (I'm dealing with it now as my latest loss was two weeks ago) but I also need a few months of not being pg so I can have the hsg done. I've had 4 BO where I know I've ovd on the left side and that's not normal so I want that investigated. In my mind the benefits outweigh the waiting. If we find out from the test that something is wrong with my left ovary/tube/scarring on the left side of my uterus, etc. it'll finally be the first answer I'll have gotten in my 7 years of ttc.

And I agree, this thread is a lifesaver. I've been on/off here for the last few years and I don't know what I would have done without these ladies.

 

[dairymomma]

Oh and Florida-yep it's $35-$45 per test. They bill it as pregnancy test so I have to pay. Now if it were to confirm a pg, then I'd pay the initial test fee and after that everything is covered because it's coded as prenatal and any further bloods are labeled history of miscarriage. But since this tracking a miscarriage and not a healthy pg, my prenatal insurance coverage doesn't extend to it. So I pay. Just another kick to the gut really. Like the insurance company is saying, "You lost the baby so we'll have you pay even more."

 

[Lamburai1703]

Ok, I must have forgot what blood tests do I need on hydroxycloroquine ?

My gp prescribed no problem x

Hope I have to have 3 monthly full blood count and liver function tests.

Lambs, 34 weeks here too but again I've had two late loses so it might be different.

Florida they usually try steroids first, because the hydro is such a strong drug. We need eye tests every three months on it and blood tests too. The steroids didn't work for me but the hydroxycloroquine and steroids together as well as very high dose blood thinners seems to be (fingers crossed).

Steph, the hugest of hugs. Is your doctor a specialist?

I was sorting out my tablets this morning and I only have enough hydroxychloriquine to last until Thursday. I've emailed Mr s office to ask for another prescription but now I'm freaking out in case I run out. I take 400mg daily you see. Don't suppose either of you could post me some and I'll pay them back?!?

Will get on to my gp and beg on Monday. Failing that maybe I'll pretend I'm going on holiday to a malarial country!

 

[steph.]

Have the tests been done within six weeks of pregnancy Steph? As they shouldn't really. Yep my steroids are from ovulation, also on the hydroxycloroquine because of late loses and the fact that I miscarried again with steroids.

Yes the bloods were done 2 weeks later and my hcg was still 9 at the time. That was after my 7w loss with a hb. How can it affect the tests?

 

[Hope39]

Ok, I must have forgot what blood tests do I need on hydroxycloroquine ?

My gp prescribed no problem x

Hope I have to have 3 monthly full blood count and liver function tests.

Lambs, 34 weeks here too but again I've had two late loses so it might be different.

Florida they usually try steroids first, because the hydro is such a strong drug. We need eye tests every three months on it and blood tests too. The steroids didn't work for me but the hydroxycloroquine and steroids together as well as very high dose blood thinners seems to be (fingers crossed).

Steph, the hugest of hugs. Is your doctor a specialist?

I was sorting out my tablets this morning and I only have enough hydroxychloriquine to last until Thursday. I've emailed Mr s office to ask for another prescription but now I'm freaking out in case I run out. I take 400mg daily you see. Don't suppose either of you could post me some and I'll pay them back?!?

Will get on to my gp and beg on Monday. Failing that maybe I'll pretend I'm going on holiday to a malarial country!

I didn't start mine till nov 21st, phew, I've not actually missed any blood tests then. I'm seeing a consultant Thursday so I ask them to do them

Mine are 200mg hun xx

 

[Hope39]

Have the tests been done within six weeks of pregnancy Steph? As they shouldn't really. Yep my steroids are from ovulation, also on the hydroxycloroquine because of late loses and the fact that I miscarried again with steroids.

Yes the bloods were done 2 weeks later and my hcg was still 9 at the time. That was after my 7w loss with a hb. How can it affect the tests?

Your meant to wait 6w for all the hcg to be out your system and your hormones are settled (I think)

Xx

 

[Hope39]

Do you take 2x200 lambs?

 

[Lamburai1703]

Do you take 2x200 lambs?

Yes - 2 x 200.

 

[Hope39]

Do you take 2x200 lambs?

Yes - 2 x 200.

I send you some of mine then hun

Send me a pm on B&B with your address and I post Monday

Xx

 

[blueblue]

Hope - thanks, I'm trying not to. I can't imagine what you are going through this time round, it must be so hard My partner suggested I try visualising everything going well - we both know it won't necessarily happen, but I know the anxiety is not going to help things work out (stress hormones - cortisol can "steal" progesterone as they have the same precursor - pregnenolone - https://paleoforwomen.com/hpa-axis-what-is-pregnenolone-steal/ - because my miscarriages are unexplained - no blood clotting issues etc, I worry that this may play a part). I'm imagining all the scans going well and getting through it, as if I get too anxious I'm not sure I'll be able to go through it again. As I'm under hospital care this time, there's more scans.

Tasha -

florida -

 

[BlessedWith6]

Hi ladies,
I hope no one is offended by my posting as I have six healthy, beautiful children. However, I am at a loss as to what's going on and need some help. About 5 months ago, I experienced my first M/C - a M/MC at 9 weeks and had a D&C. Dr. said it was fine to try as soon as we were ready so after one normal cycle, I got pregnant again. A chemical pregnancy this time. I immediately conceived again and have lost this one - another M/MC at 6 1/2 weeks. I've always had a progesterone issue and so this time, upped it to 200 mg and took baby aspirin as well. Still miscarried. Doctor is finally ordering some tests - had thyroid already done a few months ago and was normal. I was hoping someone could point me in the right direction as far as what tests I should advocate for myself. I don't feel confident in my doctor's care as he seems kind of nonchalant - I know I have six children and am blessed but these miscarriages hurt bad and I would love to have another - if nothing else, I would like to find out what's going on. I'm 36 so I know my eggs are getting older but this just doesn't seem right.

The only change I've made since my last birth is that I started taking magnesium for my aches and pains - I sit at a computer most of the day. While it has worked very well for that, it's causing my to ovulate earlier in my cycle than normal for me (around day 15). I typically have a longer cycle and ovulate late (which apparently is not good but maybe in my body it is?). Not sure if this is related but maybe I have immature eggs?

I will be praying for you all as I know how bad these losses hurt, especially for you moms that don't have any babies to hold yet. Cassie

 

[Hope39]

Hi cassie

Welcome! I would suggest you get a thyroid antibody test, you can have a normal thyroid function but have the antibodies too

Full thrombophilia screen that includes, aps, Leiden factor 5, lupus anticoagulant, mthfr, protein c, protein s and a few others

Are you uk based? If so you probably won't get all those tests I've listed initially unless you see specific consultants

If you are uk there a few trials being run at the moment, Tablet Trial and Respinse Trial - you Mir want to look at them x

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