Reflux Help & Support Thread

[Srrme]

My LO has reflux due to prematurity. He isn't on any medication, because it's not that bad. He only spits up occasionally, and it's never a large amount. However, he does grunt and moan A LOT when he's sleeping. Could this be due to his reflux?

 

[happyface82]

Hi girls!

Ameliepoulain, you will get used of the baby sick I'm afraid but if ur LO is in no apparent pain then I guess you're right just let it be but keep an eye on it!

Chobby, yes we have silent reflux. Keterina hardly ever spits up but her reflux is so bad. She is on Losec and Gaviscon and still wakes up every couple of hours at night screaming

Jeanettekaren, yes do ask to be referred and insist!!! It took us 2months on the NHS where docs and HVs would tell us she is just constipated and has got colic again!!!

Stardust I am sorry you are going through this. Maybe discuss your concern with the doctor. I'm sure she will take the bottle afterwards. I don't think its something she will forget. I mean, imagine all babies that have had an intestine infection (we've had it when she 1 week old) and they need to fed with fluids with a drip (not sure this is the correct word?) so no bottle for a few days, they still get back to drinking from a bottle, right?

I'm sure it will be fine. I think you are right that it might increase her appetite so do you good in the end!

I hope I haven't forgotten anyone! We are doing so and so today. Day 2 on Gaviscon and of course our good old friend losec and she spit up again at her last feed and cried a lot Hope she sleeps a bit better tonight. Tomorrow we r going to a private doctor, can't wait for a month to see the NHS one

Oh! I have also started a parenting journal for anyone who wants to pop in!

xxx

 

[2016]

Faerie...how was your LO tested for cmpa? I was told if the domperidone didn't help LO they would look into cmpa next but all they would do is make me stop eating all dairy and see if it helped. His eczema is better now though so I reckon it's only slight if he has one. The most dairy I have in a day is the milk on my cereal in the morning so I may switch that to soy as it will cut out 2/3rds of my dairy.
Not sure I can live without chocolate though but I don't want to stop BF.

 

[Farie]

2016, they did skin prick testing for her, he only did the main 10 or something as he said if she had one of those it was enough to indicate a hypoallergenic formula was necessary. I had already been dairy, gluten and soy free for over 2 weeks (1 week with an almost religious fervor!)

Elimination diet with no dairy is the 1st thing to try, but I'd preempt the Dr and do it before you go back, that way you will already have an idea if it helps. It's hard but doable, it only gets almost impossible when you start trying to exclude gluten and soy as well!

My girl is so so much better even in 36h on neocate tho, and she's still getting 50% EBM. It's just hard as she's missing booby cuddles etc, but I'm sure she'll gradually adjust (and so will I)

 

[happyface82]

Hey girls!

I hope you've all had a good day! We had kind of a better night last night but we still went to the doctor today. We went private as she's been steadily getting worse for 3 weeks now and couldn't wait for another month for the NHS!!

So he said that she is already on the maximum does of Losec so can't have any more. He gave her 3ml of ranitidine on top of it and said to go back in 3 weeks. If she is not better he will want to do an endoscopy to check for esophagitis...

Lets hope she get better before that!!

 

[dinkiedoo]

We've had an awful day with our lo, hubby & I are barely talking this pm as Toot been screaming on & off for hours. I'm starting to think there is something seriously wrong with this child. She's only had 19 oz milk and believe me every oz has been a struggle, she had a bad dose of thrush when born & I'm wondering if she's still suffering from it as no milk makes an difference, she's seems to be in so much discomfort from her tummy! she's also on the max dose of losec, sorry for the rant I'm really struggling at the mo & feel like everything I try isn't working, she took a choking fit today and really struggled to catch her breath the milk was refluxing out her nose very frightening.

 

[HelenFS]

Hi ladies,
Sorry it's been awhile. Had a tough few days trying to get omeprazole suspension into Freya epoch proved a disaster. We ended up getting losec mups yesterday so she is now on 10mg of that daily. Although I'm not sure she is getting the whole dose she is getting much more than she did of the suspension.
Farie - fab news about Nim. Can I ask how long it took for the losec to kick in? I know your lo has cmpi but would be interested to know.
Happyface82- what dose is your DD on? I'll go have a nosy in your journal now!
Stardust - I'm so sorry that you are going through this. Have you managed to get DD to take more today?
Helen xxx

 

[HelenFS]

Dinkiedoo - you mentioned thrush and Freya has that too. Did your little one (or you) have antibiotics at anytime during pg or from birth? I've been researching and there are some discussions online about a link between thrush/overgrowth of Candida in the gut and reflux symptoms. Freya had antibiotics when born due to a rash so I'm beginning to wonder.
Xxx

 

[happyface82]

Hey Helen,

I am sorry you are having a tough time with the omeprazole. I think the tables are better than the suspension one though so that's good!

Katerina is on 10mg in the morning and 10mg in the evening... Can't get any higher than that at 8kg! Are you seeing any results yet?

 

[HelenFS]

Hiya,
No improvements noticed as yer but only been on losec since yesterday. She was also given domperidone and thick & easy. Unfortunately the domperidone causes diarrhoea and we've has 4 clothing changes/3 baths today. I'm really hoping it works. Hope the ranitidine works on top for your lo. Did you try ranitidine on its on before losec?
Xxx

 

[happyface82]

Oh I see. Give it a few days... it might take about a week to see a full effect I guess. We were put straight on Losec. Because she was having problems for 2 months and the GP was telling us its just constipation and coli when we went private her symptoms very really bad, she kept waking up every 30 min. She he put her straight on losec. But even that only worked after we gave her the current dose.

 

[HelenFS]

Poor you and your lo waking up every 30 mins. Is she worse at night then? Freya is bad in the evening but once down for the night sleeps well. If she is sleeping when we feed her at night then she goes straight down otherwise it's a lot of screaming whilst we rock her and she e eventually crashes. We can guarantee that on those nights she will sleep 10hrs in one go. We have to tummy sleep her with a breathing monitor though. She is really bad during the day.
Xxx

 

[HelenFS]

Just seen that it has increased to every two hrs now. Silent reflux is just awful isn't it?

 

[KellyC75]

Those that are giving formula to their LO's

Please visit my thread:

https://www.babyandbump.com/formula-feeding/521737-reflux-babies-formula.html

Thankyou

 

[Farie]

Helen, the Losec took about 4 days to kick in then another couple to really really make a difference.
Nim started on 10 mg daily but was still sore at times so we upped it to 20mg which did wonders. I've dropped it back down but she seems a little more spitty/unsettled after eating so I'm going to see if I can up it again. We are changing over to neocate and I need her comfy so the switch is as easy as possible as apparently it tastes pretty gross!!

Happyface, fingers crossed the Ranitadene works - it acts on a different acid producers so hopefully it will make the difference.

Dinkydoo, I'd go to see a Ped hon, just to check there's nothing more going on. It's so hard when they are inconsolable.

Stardust, how are you getting on sweetie?

And everyone else? How are you and your bubs?

 

[happyface82]

Oh dear! We've had such a bad night!!!! She went to bed at 8 and I was up at 845, and then at 12 till 145, 3, 4, and at 4 with her feed I gave her calpol so she slept until 730. I'm sooo tired Does the ranitidine also take a few days to kick in, does anyone know?

 

[2016]

Happyface82...I think the ranatidine stops the acid immediately, but if LO was still a bit sore from the acid that came up previously, it may take up to a week to heal.

We are on day 4 of Domperidone and it seems to be going well. Much less spit up and we've gone from 10+ projectiles in a day to NONE in 4 days!
LO is currently going through a growth spurt though and wants to eat more which does make his reflux worse. He woke up last night and cried from 2am to 4am and kept bringing up curds. I had missed his 4th dose of Dom yesersat because it needs to be given 1/2 hour before food but, with the spurt he was eating anywhere between 45 mins and 3 hours apart!
Finally got his nhs paed referral through. 22nd March. He will be 17 weeks by then which I think is appalling as I have been asking for help since he was 2 weeks old. I was hoping he'd have outgrown the reflux by 17 weeks! What's the point of that??? So glad I went private!

On a more positive note, have been doing baby massage with LO since Tuesday and it really soothes him. . Going for our second appointment with the osteopath today then later his first jabs.

 

[happyface82]

2016 I'm so glad you are doing better!!! I really hope it only gets better from here!

NHS is appalling I have to agree. . . We've gone private too but we couldn't afford the endoscopy if it is needed. . . we'll see what we'll do when the times comes. Its just so hard to have such long waiting times when it involves a baby whose needs might be different a month later.. . .!

 

[KellyC75]

Oh dear! We've had such a bad night!!!! She went to bed at 8 and I was up at 845, and then at 12 till 145, 3, 4, and at 4 with her feed I gave her calpol so she slept until 730. I'm sooo tired Does the ranitidine also take a few days to kick in, does anyone know?

So sorry to hear about you & your LO's bad nite

When I started my Daughter on ranitidine, the effect was immediate, I was shocked, but very relieved!

Good luck, really hope it helps

 

[Farie]

Happyface, you should notice if the Ranitadene has effect within about 48h ish, although if she's sore it might take a little longer to really make a difference.

It's a random suggestion but have you tried gripe water to sooth her throat? It always works for us, although my LO is younger, not sure if that makes a difference?

2016, brilliant news hope it keeps improving