Reflux Help & Support Thread

[KellyC75]

Hi Amy...

It does sound very similair to my LO's symptoms before she was disgnosed with silent reflux.

Have you tried talking to your health visitor or going to the doctor?

My LO is now on ranintadine & is doing so much better

Good luck, I know how frustrating & upsetting it is

 

[Farie]

Sapphire, I'd say you need to investigate using Omeprazol rather than Ranitadene, I found it worked much better for us.

I use Neocate rather than nutramigon, if it's a true full cmpi then nutramigon won't be enough as it's still made from very broken down dairy proteins rather than amino acids etc of Neocate. That said if it's mild you will see a difference within a few days.

Puppymom, the loose shouldn't effect the vomiting tbh, only helps with the pain, if you think he's pain free without it then go for it, I can't lower mins dose at all as within 36h she's screaming, so if hes ok after 2-3 days he should be fine med free.

Amy, sounds like SR, pop to your GP and tell him you want to try Ranitadene or omeprazol, if you can fight against Gaviscon as it often makes SR worse as it thickens the liquid so it sticks in their throats and burns for longer.

 

[Jibber Jabber]

Hi ladies,

My LO has been really hysterical when feeding for the last few days and the Dr thinks that he may have silent reflux, he normally takes around 6ozs per bottle and I was only getting 1-2ozs into him and it was so upsetting as he was just hysterical. Well we have been prescribed infant gaviscon and it seems to be doing the trick so far in just a few feeds! He even had 4 1/2 ozs in his dreamfeed last night although he only had 3 ozs at 6am today.

Is this something that clears up or will he always have it?

 

[Farie]

He should slowly grow out of it and be better once he reaches weaning

In some cases (like my LO) it's shows no improvement with age and will be an issue and medicated until they are mobile/walking and gravity keeps the acid down more and more. My paed reckons my LO will be off meds by 9-12 months.

 

[AP]

It is rare for babies to go and have it til an older age, but it does happen. My LO is one of 3 children I know who still have it at an older age, but this is probably down to her 3 month prematurity.

But its certainly no-where near the level we had as a baby. She sleeps right through and as long as we have the right meds we generally keep on top of it and have no problems at all, you wouldnt know. Being up most of the time, and eating more solid foods all help!


As for us, well, 20mg of omeprazole in her fruit pot in the mornings ' seems ' to be doing the trick Only had one incident the other night but tbh i dont think this was down to reflux. We've been using the dummy a lot more than we would want to but I guess its more important she puts on weight. Having the dummy helps a lot!

 

[sapphire1]

I use Neocate rather than nutramigon, if it's a true full cmpi then nutramigon won't be enough as it's still made from very broken down dairy proteins rather than amino acids etc of Neocate. That said if it's mild you will see a difference within a few days.

It is the amino acid one, I didn't realise but there are a couple of different types of nutramigen. She was already on a hypoallergenic formula made from broken down dairy proteins. I started her on it yesterday, and the weird child seems to love it. It is absolutely rank, smells and tastes like liquid instant mash! I didn't even have to sweeten it so am really lucky. Might investigate the omperazole though, thanks Farie.

 

[Peach Blossom]

Hi there My LO has bad reflux... she vomits all or most of a feed about 60% of the time. She is on Gaviscon, Ranitadine and Domperidone. We only started the Domperidone today and she seems to be vomiting more... has anyone else experienced this? We try to keep her upright as long as possible after a feed, but even then we have exorcist moments! Does anyone have any magic tricks to help?

 

[Farie]

My LO is on 20mg losec daily (10 morning - 10 night) and Erythromycin 3x daily. Plus the Neocate.
SB22 - we also use a dum a lot, I hated the idea of them but now we have her I'd be lost without ours!!

Sapphire, ahh also didn't realise there were different types! Sounds like its a lot more palatable than Neocate LOL

PB, we found Domperidone to harsh and it made her very grizzly and gave her cramps and more sick ups. Dums help as the sucking reflex which can reduce vomiting a little. Also baby wearing helps.

 

[Peach Blossom]

Thanks Farie. x

 

[Farie]

No worries, reflux is a daily fight in our house, I'm currently trying to find even more onesies on trade me to stock up ... the 10 have aren't enough I'm dreading winter and not getting stuff dried on the line

Anyway, on a lighter note, good day today, shes taking 4oz at almost every feed and the puking is still there but shes not loosing 1-2oz per feed now and is a happy chucker. Shes still gaining really well and on the 50% percentile.
We went to a friends 2yr olds b'day today and she was fab, happy throughout, fed and slept and even coo'd and tooted at people! Like a whole new baby.

Right, off to bed for me, wakey wakey every couple of hours still ... need all the zzzz I can get!

 

[Peach Blossom]

That's good Farie! It's reassuring to know that other people have an hourly battle with the vom!! 50th centile is great! Little Lil isn't even on the 0.4th yet!! We call her bonsai! even though she's a vomit monster she's still putting on weight though. I think I change my clothes as many times as her at the moment!! She has plenty of clothes, but I'm running out! Have a good sleep!

 

[fluffyblue]

Hi girls havent been on for a bit, Ollie is still suffering with his tummy turning over and regurgitation its so loud, he has been on comfort only now for a few weeks and to be honest is it helping?? I dont know.

Am back at docs this week as he has very bad botty wind which is causing 2 hour sleeping and feeding fits !!

Also he has started spitting up lately

 

[happyface82]

Hi Fluffyblue. I am sorry you are still having a bad time. Could it be that he is intolerant to the milk? Maybe worth asking the doctor. We had terrible issues with wind and Katerina waking up every hour or even less sometimes and she was so much better couple of weeks after changing milk!

 

[Farie]

PB - yup, def battling the hourly vom monster!
I say that its ok really as shes got so many nice clothes I get to use them all at least!! I got her dressed this morning, within 10 mins of having her looking cute, feeding her shes vom'd down the entire outfit!

One day = 5 outfits LOL

 

[amy19604]

Hi Amy...

It does sound very similair to my LO's symptoms before she was disgnosed with silent reflux.

Have you tried talking to your health visitor or going to the doctor?

My LO is now on ranintadine & is doing so much better

Good luck, I know how frustrating & upsetting it is

Thanks, i tried going along to baby clinic and it was cancelled so i was waiting for a hv to call me, so frustrating! finally spoke to her and she agreed it might be, so i am taking him to the docs.
it also seems my lo has thrush in his mouth,so im not sure now if that is whats been up with him or if he has both. hopefully ill get some answers xx

 

[amy19604]

Sapphire, I'd say you need to investigate using Omeprazol rather than Ranitadene, I found it worked much better for us.

I use Neocate rather than nutramigon, if it's a true full cmpi then nutramigon won't be enough as it's still made from very broken down dairy proteins rather than amino acids etc of Neocate. That said if it's mild you will see a difference within a few days.

Puppymom, the loose shouldn't effect the vomiting tbh, only helps with the pain, if you think he's pain free without it then go for it, I can't lower mins dose at all as within 36h she's screaming, so if hes ok after 2-3 days he should be fine med free.

Amy, sounds like SR, pop to your GP and tell him you want to try Ranitadene or omeprazol, if you can fight against Gaviscon as it often makes SR worse as it thickens the liquid so it sticks in their throats and burns for longer.

Thank you, i didn't know that about gaviscon x

 

[KellyC75]

Hi Amy...

It does sound very similair to my LO's symptoms before she was disgnosed with silent reflux.

Have you tried talking to your health visitor or going to the doctor?

My LO is now on ranintadine & is doing so much better

Good luck, I know how frustrating & upsetting it is

Thanks, i tried going along to baby clinic and it was cancelled so i was waiting for a hv to call me, so frustrating! finally spoke to her and she agreed it might be, so i am taking him to the docs.
it also seems my lo has thrush in his mouth,so im not sure now if that is whats been up with him or if he has both. hopefully ill get some answers xx

Good luck at the doctors Let us know what they say

 

[Peach Blossom]

Fluffy, are you on formula of BM? I was told by our consultant to try a dairy free diet and it seemed to make a bit of a difference. She was keeping it down a bit more.

LOL Farie, I'm so determined for Lil to wear an outfit for more than half an hour that I have her wrapped in muslin cloths until the vomiting seems to have stopped! I go through about 20 cloths a day though!

Is anyone else's LO on Domperidone? Orignially the GP prescribed 0.5ml 3 times a day, but took her off of it after 2 days. The consultant told us to try the domperidone again, but put her on a dose of 1.25 4 times a day... from what I've read that seems like a really high dose... Not sure who I should contact about it though. It doesn't seem like it's working anyway. She seems worse on it. Last night I couldn't put her down at all. She would go to sleep on my chest then scream if I tried to put her on her back...

 

[stardust599]

Hey guys

Haven't been on here in ages - I keep forgetting about this thread since it's not in Baby Club anymore!

Still struggling on and off with reflux, we're having a good few days just now but have just passed an awful 2 weeks! Thought Macy had taken a reaction to the milk after coming off Neocate as she had a rash, diarrhea and was more sick than usual but it turned out we think she had a little bug and she seems okay now.

As well as the reflux she still seems hugely constipated and seems to have trapped wind after each bottle, she strains, grunts and whinges for an hour afterwards then seems okay. She still can't poo on her own either - we have to use a suppository or massage round her little bum with a cold wipe to get her to go or she just stores it up for days and it comes out a big huge hard mass and gives her terrible reflux!

I stopped using DR Brown's as she takes more with the Avent, been giving Infacol which seems to be helping but I'm praying it doesn't set the reflux off again badly, hoping that it's under control enough with the solids and higher dose of Omeprazole to stop it flaring up! We're on 15mg most of the time and 20mg for a few days when it flares up, seems to keep about 80% of the pain under control.

A couple of nights ago Macy projectile vomited in her sleep, my OH got up to feed her at 3am and found her head to toe soaked in 7ounces of milk, soaked right through the crib, onto the floor and everything. It was freezing cold as well and she was just lying in it, feel awful as she must have vomited straight after her 11pm feed! Thank goodness she was lying on her side, I feel so scared that she'd have choked and I wouldn't have known if she was on her back as she's in her own room now!!

She's still a very needy/clingy baby but after all she's been through I really can't blame her - I've taken to baby wearing and just spending all day playing and cuddles and it seems to be doing the trick. She just likes to be with Mummy and Daddy though - no-one gets to hold her even for a few mins as she has a meltdown and she hates noise or anything, not sure if it's reflux related and she's looking for reassurance that Mummy and Daddy are around or just her personality. Also no-one else can feed her either because she finds it so stressful and I either feed her in her carseat while OH is driving or I rock her with music or cartoons on, not a great habit but it works for now!

Weight gain wasn't so good last time - only 2.5ounces in 2 weeks so she's now 11lb13.5 at 5months!!!! Some babies are that at a few days old. She's really long though - was 63cm over a month ago and on the 75th centile so I worry she's too thin for her size Still on the 2nd centile for weight. I see on her hospital notes that they have "significant/severe GERD" so I wondering if they think it's something she's stuck with or if it's just reflux she'll grow out of. No sign of it getting better yet though, without the Omeprazole we'd be a mess!

Sleeping going not too badly, generally up 1-3 times a night but slept through last night, I still couldn't bloody sleep though so you'd think I'd been up all night with her!

fluffyblue - I bought tablets, they were from Helios Homeopathy for about £4.00.

Peach Blossom
- have you tried side-sleeping? I know it's not recommended but there's no way in hell I'd ever get any sleep if I tried to put Macy on her back, she's so uncomfortable and if she manages to turn over in her sleep she gets bad reflux pain and I have to go soothe her then turn her over. I have an Angelcare monitor for reassurance

xxx

 

[Farie]

Hey all

Not such a great day today, really rather a lot of vomit and shes been a bit low. She struggled to settle a little this evening, I've had to pop in a few times and give her her dummy. Will go and dream feed in a few mins.

We side sleep too, works so much better.
Nim's a clingy girl too, I figure I just go with it for the time being, I'd be lost without my moby!