Reflux Help & Support Thread

[Farie]

Nim's on Neocate, its helped her weight gain massively. I did try the elimination diet but sadly my LO is also allergic to my milk so we are on FF permanently. For many people it works well.

Generally allergy babies are windy, crampy, have sore tummies, are either runny or constipated, mucusy poo, have coughs, respiratory issues, dry skin etc

Still bad in my house, vomity, sore and not feeding great

 

[AP]

Hey guys. Hope you all had a lovely mothers day! We had a vomity one . Has anyone been told not to give ranitadine and Domperidone at the same time? My GP said it would be ok, but online they say not to mix the 2... Just wondering if that's what has caused the vomit fountains today!

Definatly the pair are fine. Its difficult googling these things because people pick things up from others online and soon you get the wrong info

If Lili has just got them, it can take up to 2 weeks for domperidone kick in.

Ranitidine & Domperidione are certainly fine because they do two different things altogether.

Ranitidine & Omeprazole are questionable however, and its best to give up the Ranitidine if at all possible, or at least

Peach Blossom could you look at increasing the dose if Lili's been on them for a while? They need to go up with weight. Doc's will give minimum dosage for their weights but this leaves room for it to be put up.

In the end domperidone was a culprit for making Alex sick, which was unusual. The hospital didnt believe us until we showed them, the staff there that night were shocked. I don't know what it was that made this happen!

 

[Peach Blossom]

Thanks sb. My query is more about taking the two at the same feed. We have stopped giving the 2 doses together and split them between feeds which seems to have helped... I will book in to see the GP though and discuss the dose. I hadn't really thought about the dose needing to increase with weight, but it totally makes sense! Thanks for the advice! Xx

 

[AP]

oh i see.... stupid me
oh well that'll help someone lol!

i found together made her sick so we split them where we could, are you mixing them in milk or syringing it? x

 

[Peach Blossom]

Syringing at the mo... Can you mix it with the milk then?

 

[AP]

Noo I wouldnt, it'll prob give a funny taste. x

 

[Peach Blossom]

Haha ok! Will keep syringing then!

 

[Peachypoo]

hi happyface82... im from north london... i have been given it on prescription, but still feel bad as its soo expensive...i dont think i can eliminate from my diet, i wouldnt do well at all.. did your lo have an intolerance?
ive given her neocate and she has taken it well seemed pretty settled afterwards.. im thinking how about combi feed...
btw how many cans do you get per week?

farie... she has mucousy poo, seems stuffy since she was born, especially at night... i could hear her wheezing a few times, i thought it was maybe chest infection but told it wasnt... and she is always vomiting.. through feeds, after feeds and inbetween feeds... sometimes its clear fluid.. is that normal? no1 in my family has intolerance, or dont know much about it...oh and she starts showing discomfort and wriggling and then she brings up the feed, and becomes comfortable... anyone else experience that?
im thinking should i maybe stop bf... and full time neocate...

 

[Peachypoo]

hi peachy blossom, my lo was on domeperdione and renidetine... few dif docs told me to drop domperidone, as the contents of sodium is high... i noticed that it made no diff to her as well...

also i gave both renidetine and domperdione together, but it didnt work well, but when i have gave domperdione every 6 hours, and renidine every 8 hours it helped alot...(over 24 hours)... now ive ditched the domperdome...

 

[happyface82]

Hi peachypoo!

I'm in North London as well! Near Holloway Rd. Where abouts do u live?

I think it does sound like an intolerance/allergy. Katerina does have an intolerance/allergy and we're still battling to see what else she is allergic to not an easy thing to do I can't tell u to stop bf this is ur decision. Maybe smt to discuss with ur GP?

We get 8 tins of Neocate per month. She doesn't have that much any more she is on 3 solid meals per day. But I know what u mean about the cost. It shocks me every time! But if they need it then

 

[Peachypoo]

Happyface82 I live a little more north to you Harrow. Lol... I really enjoy bf and find it soo much easier for.. With first lo I had to stop from right side due to severe mastitis and I was so sad but carried on with the left side... And now I may have to stop again Grrrr.. It's so strange that my lo may have an allergy as I don't think anyone in my family does, or no1 has picked it up... I'm the youngest, my lo the baby of the family so all the other children in my family are grown up... In regards to the allergy, she doesn't have a rash though, unless I'm mistaking it for heat rash??? The only other thing I've noticed is that she develops lots of milk spots too... Is that normal?

 

[Farie]

Sadly I had to stop BFing cos even on a really strict elimination diet my milk still caused reactions.
Nim got a heat rash type thing from the allergies (pic below - it was also bad on her face)
I wont lie - the vomiting reflux issues really havent changed on Neocate, just her general happiness, comfort and tummy issues.

You could try full Neocate for a few days and pump and dump at the same time? That way you can go back to BFing if the Neocate doesn't help much after a week?

 

[happyface82]

The heat rash you are describing might be a reaction but also not all babies get a rash when they have an allergy. Some have a bigger reaction of their gut (hence the bad tummy) and don't get skin rashes. We just used to get bad flushing cheeks and really really dry skin patches on her legs which at the time we thought it was from her jumping in the jumperoo too much

 

[aliss]

I am proud to say that one day before his 10 month birthday, we have not had any projectile vomit for ONE WEEK! Whoooo hoo! Still painful gas but no projectiles! Yay.

 

[happyface82]

Yay!!!

 

[Peach Blossom]

that's great news aliss!

I saw the HV on Tues and I was asking her about weaning Lili early due to the reflux and she said "oh well they normally grow out of the reflux by 4 months"... she had also never heard of Ranitadine or Domperidone... Little bit scary that a health professional in charge of advising me on the well being of my baby is so clueless!! Think I'll just leave my questions for the Pead!

 

[aliss]

that's great news aliss!

I saw the HV on Tues and I was asking her about weaning Lili early due to the reflux and she said "oh well they normally grow out of the reflux by 4 months"... she had also never heard of Ranitadine or Domperidone... Little bit scary that a health professional in charge of advising me on the well being of my baby is so clueless!! Think I'll just leave my questions for the Pead!

Uh oh

Well the good news is that yes, most of them outgrow it by 6 months (not 4... lol), we're a bit exceptional at past 10 months and there's a few that go longer (although the ones that go past 1 year seem to also be preemies).

But to have never heard of those prescriptions? Run for the hills!!! We did wean early, "sort of", for reflux - 1 tsp or tbsp of banana puree in the mornings from 4-6 months. After that, we went straight to BLW.

Oh speak of the devil, someone's moaning and up from his nap!

 

[Peachypoo]

@farie ive tried it today.. she has been bringing up water and seemed to be more comfortable with neocate then my milk..... see what happens through out the night...
she doesnt seem to have a rash like nim.. but gets it around her mouth, but has lots of milk spots which i find weird....

@happyface82 she has really bad tummy pains, and the she's suffocated a few times when vomit has come out through her nose rather then mouth.. gave me a heart attack..oh and her cheeks get flushed...

btw have you both got it neocate on repeat. and how many.? apparently i have to call my pharmacist and he will sort it out for me.. i found that weird...

 

[Farie]

Aliss - Woohooooooo no projectile!! I dream of that day!

Yup, I get neocate on repeat, 3 months at a time, about 35 tins!
I'll try to find a pic of Nims face rash ....

Ok day today, not too much vom, although not much drinking either, still waiting to hear back from the paed regarding Neocate/Elecare possible switch - poor lamb is still SO bunged up

Off to have a bath and ...................... shock horror ...................................... shave my legs!

 

[stardust599]

Hi guys

Sorry I haven't been on, I've been busy making up a blog for Macy all about how she's battled through reflux and where we are now. It's macyacidreflux.blogspot.com if anyone wants a look - I've tried to make it a funny happy blog (light at the end of the tunnel for everyone still really struggling) and also included lots of tips on reflux. It's not finished yet but I'm halfway there.

We are doing really good. Still on 15mg Omeprazole per day, I give it all in one dose half an hour before bedtime bottle as she is most uncomfortable at night. It also helps with the first thing in the morning bottle although she can get a little uncomfortable for the lunch and teatime bottle, as long as I'm careful to take my time and keep the feeds small she does okay. Still around 20ounces per day though, don't think she'll ever take anymore and we are now on 3 proper meals with carbs, protein and veg and 2 puddings and a fruity snack too! We see the paediatrician on Tuesday so I'll find out what her weight is, hopefully it's a good gain as I'm really concentrating on high-calorie foods.

Generally 5/7 days she feeds pretty well with minimal pain and takes enough milk to see her through the night and then for around 1 or 2 days a week she's back in a bit of pain again - back arching, pulling off bottle, projectile vomiting and not sleeping. She also struggles majorly with most fruits so I worry she's not getting enough variety.

She does well with banana, papaya, apple and pear so I tend to switch between these. I've been trying to give her prunes in the morning with her porridge for her constipation (which is still awful) but it seems to cause a reflux flare up Also found mango causes flare ups. And avocado too - I'm desperate for her to have this as it's such a high-calorie superfood but it seems to cause reflux within a few hours and it takes ages to calm down again. Peach I'm not 100% on yet, going to try again in a few days as we've had no refluxy pains for a few days. Don't think she's intolerant to these fruits but I think they are just harder for her to digest.

Macy has been uber grumpy the past few days, I took her swimming yesterday and she hated every minute of it - she's still such a timid, sensitive wee soul, I'm worried about how she'll cope when I go back to work in 8weeks. I've had a good day today though, Macy is really sleepy so I've been catching up on the housework and I've even put some make-up on and some nice new clothes. Also been eye-ing up my yummy electrician (haha that's terrible, I love my OH very dearly ) and it's a beautiful day so I'm going to take Macy and our wee dog a big walk later.

Tomorrow I'm going to the pub with a friend while Daddy spends the day with Macy. I can't drink though as OH is going out at night but I'm sure I'll enjoy my wee coke!

My PND is a million times better too, I feel like I've missed out on so much with Macy though - I really do love her more than anything in the world now, I'd do anything for her and I've only just started to feel like this recently so I feel like I've ruined the early days because I was so sad and depressed all the time, I have lots of making up to do!

Wooo Farie - go you getting the chance to shave your legs. Mine are rather hairy but I think OH has just gotten used to it cos we've never had time to look after ourselfs the past few months.

I really do feel like we are coming through it now, everyday gets better and better. I would like Macy not to be medicated at all but on her bad days she still needs 20mg and if I try to give her even 1mg less on her normal days she's back in pain within 3 days and we're back to square one. Don't think Macy will have outgrown her reflux anytime soon but we are managing just fine!

Lots of hugs to everyone xxx