Reflux Help & Support Thread

Oh and another tip is you must give ranitidine 30 mins in baby's system before feeding to give it a chance to work. Hardly any GPs tell you this but it made a MASSIVE difference to us. It's hard work in the morning if they wake very hungry, but I find you can usually entertain a baby for 30 mins before all hell breaks loose.
 
Omeprazole is an absolute bitch to administer. You have to like crush the tablet then dissolve it in water/juice and syringe it in but it leaves loads of leftover pellets which are actually the medication. And it tastes so horrific my son would often just vomit it back up or spit it out. Just the experience I had.

We got given a bottle of liquid! Crushing tablets!? I think your GP is a bit of an idiot :S no tablets are meant to be crushed! Yeah lo didn't really like it the first 2 or 3 times but it was fine after he got used to it :shrug:

also, same with the omeprazole, 30 minutes before feeds as it reacts with milk as it's a base/alkali.......your GP should prescribe it in liquid form, if he tries to give you tablets (ridiculous!) definitely tell him no way, you want liquid.....I find it's easiest to give to LO from the fridge, as cold liquid will stimulate the swallowing reflex quicker than room temp, so theoretically they swallow before tasting!
 
I have heard that the liquid form of omeprazole is not as effective as the tables or capsules. We have tried both tablets and capsules. Tablets we used to dissolve and capsules we used to break open and take the content and give it to her with some solids. There is no harm in that. Its all about finding a way that works for your LO and you! :hugs:
 
Im guessing theres no "definite" answer then because I have always been led to believe that crushing tablets will greatly reduce their efficiency.....a lot of staff in my old ward used to do it anyway because out patients had difficulty with tablets (brain injuries), until a new doc on rotation went a bit mad about this and put them all on liquid :wacko: and i remember something about omeprazole reacting with moisture rendering it less effective too....who knows! It's trial and error really, and I really hope something works and soon :hugs:
 
Im guessing theres no "definite" answer then because I have always been led to believe that crushing tablets will greatly reduce their efficiency.....a lot of staff in my old ward used to do it anyway because out patients had difficulty with tablets (brain injuries), until a new doc on rotation went a bit mad about this and put them all on liquid :wacko: and i remember something about omeprazole reacting with moisture rendering it less effective too....who knows! It's trial and error really, and I really hope something works and soon :hugs:

I never knew that :shrug: I guess its the lesser of 2 evils. You need to find smt that your LO will take and hopefully it will do the trick. Its not easy!
 
We ave just had an evening of really bad crying after night feed. The problem is, she never had this sort of cramping she has now and I am worried that it could be ranitidine? Apart from reflux symptoms, she developed these cramps, poor thing. Has anybody experienced this?
 
Could it be that she is allergic to things you are eating? I know you said you are dairy and soya free but maybe smt else? Katerina suffers from multiple allergies and her reflux was basically a side effect of that. Tummy cramps was her main symptom, she would moan and groan when sleeping and kept waking up every 30 min and scream, there was nothing to soother her. Maybe worth talking to a doc about? :shrug:
 
The liquid form is very expensive so they don't prescribe it unless your LO is failing to thrive....round here anyway. Luca was gaining weight well so they didn't consider his reflux bad enough.
 
I love this thread ~ The support for other Mums & LO's is amazing :hugs:
 
We ave just had an evening of really bad crying after night feed. The problem is, she never had this sort of cramping she has now and I am worried that it could be ranitidine? Apart from reflux symptoms, she developed these cramps, poor thing. Has anybody experienced this?

Trust yourself - ur LO has reflux - and don't let anyone tell you different! My DD is now a happy smiley 1yr old (mostly), on high dose omep, still bf, dairy and soya free, and enjoying food. We went through the hell of severe silent reflux and had to fight to get her on the right meds. She's my 3rd baby (other 2 are hardly ever at the doc's), but sstill no-one would listen!! I went to A&E at a childrens hospital (told them I was visiting friends nearby!) before she was diagnosed and started getting treatment at 9wks old. I regret to this day that i didn't go to A&E much sooner

Lots of good advice already, and sorry if i'm a bit repetative.

Firstly, well done for keeping up the bf. Have a look here (only take 5mins to read), cos it helped me loads: https://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/Breastfeed.htm?OpenDocument

Also, the ranitidine may well be helping, but reflux tends to peak around 4/5mths, so could be the symptoms are getting progressively worse. Ranitidine is really weight sensitive, and your LO can build up a tolerance quite quickly, but don't stop it until you've been using omepr for at least a week, beacause it might be helping way more than you think and syptoms could get worse! (more info on this: https://www.refluxrebels.com/Acid_reflux/Acid_reflux_medication.html)

However, you should defo still be looking to get prescribed OMEPRAZOLE, as your lO is still suffering and omep is much more effective than ranitidine at reducing acid. Totally agree with Booda, IF YOU CAN'T GET THEM GO TO A&E, and keep going back until you do get them. Preferably go to a childrens hospital, but at least a hospital with a paediatric unit. Stay calm but firm and keep repeating that you need them to help your baby. The longer it takes for your LO to get the right meds, the more damage the acid does to tummy and oesophagus, and the longer it takes to heal up and your baby to get better.

I've also read a lot about the liquid being less effective than the tablets (Usually 'losec mups'), and that the liquid deteriorates really quickly, (need new bottle every 14days). The losec mups are a pain at first, but most get used to them quite quickly. 'mups' stands for 'multiple pellet system', so when you dissolve the tablets, (adding a little fresh boiled water to make the water 'warm' helps them dissolve more quickly), you are left with tiny little pellets that contain and protect the omep. Also, omep is a 'super-safe' drug that can only be activated by the acid producing cells it affects ie: it doesn't get absorbed/ do damage elsewhere, which maybe will put your husbands mind at rest a bit.

When my DD was young, I used to dissolve the tablets in an eggcup (no corners for meds to get stuck in), carefully pour off the water, then add more water and rub gently to dissolve more and more of the tablet. I would keep repeating this until it was just the small amount of pellets that were left. Then i'd scoop them onto the end of my finger (every tiny bit counts) and rub them onto the inside of her cheek. I'd quickly follow this with a drink of water or very well diluted apple juice. That way she didn't have to take spoonfuls of yuck!!! After 5 months I started using a very small amount of applesauce (shop bought, just the saucy bits, no chunks of apple!) to mix it. Now she's older I jst dissolve off the majority of the tablet in one shot, mix with apple sauce and she happily scoffs it! However, the liquid seems to work great for some, so I'm not rubbishing it either!

I also found that the only way she could sleep was on her tummy, and I let her do this during the day while I could watch her. However, by 3mths that was the ONLY way she could get any sleep, so she slept on her tummy all the time. I know tummy sleeping is associated with SIDS, and I was really really paranoid, but if you check the research there are almost always other risk factors in addition to tummy sleeping taht contribute.

Other things that helped her were holding her face down along my arm (picture here: https://www.webmd.com/parenting/baby/crying-colic-9/slideshow-treating-colic picture 2/11), and marching (stamping) - dunno why but the stamping REALLY helped settle her??! I used to do this in front of TV to distract her, then lie her straight down on her tummy if she settled off to sleep! Another thing that can help is using a dummy - this helps create more saliva that helps neutralise the acid thats rising up her throat.

Finally, there is a great book called 'Colic Soved' by Dr Bryan Vertabedian (a gastric paediatrician who's baby had reflux), which saved my sanity and helped us loads. It's about £6.99 on Amazon, and I'd happily pay £600! Have a look at the reviews (on Amazon) from other parents.

Sorry so long, but hope some of this helps!!

:hugs:to you all xxx
 
Ladies, I need your advice.

Ally is now on omeprazole (Mups) and I am still on a no dairy whatsoever diet. My Hv had a similar thing with her kids, and advised me to try hidden dairy, spoon of natural yoghurt in a couple of weeks to see how she manages with it, as she thinks it would be a good test for her to try dairy through my bm, as opposed to try 'neat' so to speak. My consultant wants me to not have any dairy at all while I am bfing, and just not give any to Ally.

I am surprised, as, tbh, her symptoms were spitting up, pain, bit of baby acne and bit of dry skin. The latter minimal...the former, quite a bit. I read that true allergies demonstrate more symptoms...and I am not happy to just not try her out!

What would you do? If I trial dairy, even a little, will it take two weeks to clear back out of my system? Should I even bother? I am at a loss as to what best to do for my littlest daughter, and I've read so much about babies outgrowing this...I don't want to just make assumptions. The consultant is quite well known for being uber cautious. He has suggested the same to friends of mine, whose kids now happily consume dairy.

Am confused!
 
Should add I've had hidden dairy by accident a couple of times, and things seemed ok...
 
(after we had been fobbed off with gaviscon and wrongly prescribed domperidon on it's own)

why is it wrong to prescribe domperidone on its own? my GP prescribed it on its own for eliza, it didnt help, it just slowed down the speed of which the sick came out and gave her awful nappy rash! Although our GPs are useless i wouldn't of thought they would of prescribed something on its own if they shouldn't. :wacko:

Im glad were going to the specialist! hopefully they can get things right! its just annoying we have to wait till feb to see them! x
 
(after we had been fobbed off with gaviscon and wrongly prescribed domperidon on it's own)

why is it wrong to prescribe domperidone on its own? my GP prescribed it on its own for eliza, it didnt help, it just slowed down the speed of which the sick came out and gave her awful nappy rash! Although our GPs are useless i wouldn't of thought they would of prescribed something on its own if they shouldn't. :wacko:

Im glad were going to the specialist! hopefully they can get things right! its just annoying we have to wait till feb to see them! x

Apparently the domperidone "makes the reflux look better". As in, less puke....because it works by speeding up the rate in which the stomach empties (supposed to tighten esophageal sphincter but some docs reckon this is useless in babies because the sphincter just isnt mature enough, rather than "not working"). This doesn't help with the fact that the baby has an underdeveloped esophageal sphincter, so the acid still flows back up into the esophagus, but because theres less in the stomach (empties quicker) then therse less puke......but still the same level of discomfort because the acid's not being treated :(
It essentially turns reflux into silent reflux :/

Of course there are a few babies domperidone will work on it's own for, but it's hard to tell the exact cause of the reflux - whether it's overproduction of acid AND underdeveloped esophageal spincter.....or whether one is worse than the other, depends on what medication will work?? theres various theories about an exact cause - food intolerances come into this too, most of medicine really is just experimentation :S
 
(after we had been fobbed off with gaviscon and wrongly prescribed domperidon on it's own)

why is it wrong to prescribe domperidone on its own? my GP prescribed it on its own for eliza, it didnt help, it just slowed down the speed of which the sick came out and gave her awful nappy rash! Although our GPs are useless i wouldn't of thought they would of prescribed something on its own if they shouldn't. :wacko:

Im glad were going to the specialist! hopefully they can get things right! its just annoying we have to wait till feb to see them! x

Apparently the domperidone "makes the reflux look better". As in, less puke....because it works by speeding up the rate in which the stomach empties (supposed to tighten esophageal sphincter but some docs reckon this is useless in babies because the sphincter just isnt mature enough, rather than "not working"). This doesn't help with the fact that the baby has an underdeveloped esophageal sphincter, so the acid still flows back up into the esophagus, but because theres less in the stomach (empties quicker) then therse less puke......but still the same level of discomfort because the acid's not being treated :(
It essentially turns reflux into silent reflux :/

Of course there are a few babies domperidone will work on it's own for, but it's hard to tell the exact cause of the reflux - whether it's overproduction of acid AND underdeveloped esophageal spincter.....or whether one is worse than the other, depends on what medication will work?? theres various theories about an exact cause - food intolerances come into this too, most of medicine really is just experimentation :S

thats interesting! so i wasnt just going crazy when i thought she was having silent reflux of an evening when on the domperidone! i was sure of it but HV told me it wouldnt of just changed. she kept on being sick and i could hear it gargling in her throat and then she would usually choke and gag causing more sick!

Were going to the specialist in the hospital at last, app for beginning of feb which isnt fab being so far away but at least something is getting done, theyre going to put a camera down her throat to see if it is the sphincter, the acid or both and see if any damage has been done with all the acid coming up as she had a bit of blood in her sick a few times that hasnt come from me BFing. yea we have the food intolerance too, no dairy for mummy, but its not as bad as it was, i can have a cup of tea with a tiny bit of milk with a meal or a table spoon of grated cheese on my shepherds pie they both dont effect her which is nice for me. She also seems to get really sick and gassy if i have a greasy meal, which is odd but good for me as greasy foods set off my IBS but before BFing i just dealt with it as it was just me feeling the pain. She also gets gassy after sprouts which i found out at xmas, which is a shame as i love sprouts! lol!

Thanks for the info on that, il have to have a little whinge about that next time i see that Dr and the HV who told me it wouldnt of just switched.

Luckily we didnt stay on it for long, it gave her awful nappy rash, HV said it was just a side effect of the medicine, i thought it was probably more to do with the fact that the acid was getting rushed through her system and out to her bottom. xx
 
We ave just had an evening of really bad crying after night feed. The problem is, she never had this sort of cramping she has now and I am worried that it could be ranitidine? Apart from reflux symptoms, she developed these cramps, poor thing. Has anybody experienced this?

Trust yourself - ur LO has reflux - and don't let anyone tell you different! My DD is now a happy smiley 1yr old (mostly), on high dose omep, still bf, dairy and soya free, and enjoying food. We went through the hell of severe silent reflux and had to fight to get her on the right meds. She's my 3rd baby (other 2 are hardly ever at the doc's), but sstill no-one would listen!! I went to A&E at a childrens hospital (told them I was visiting friends nearby!) before she was diagnosed and started getting treatment at 9wks old. I regret to this day that i didn't go to A&E much sooner

Lots of good advice already, and sorry if i'm a bit repetative.

Firstly, well done for keeping up the bf. Have a look here (only take 5mins to read), cos it helped me loads: https://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/Breastfeed.htm?OpenDocument

Also, the ranitidine may well be helping, but reflux tends to peak around 4/5mths, so could be the symptoms are getting progressively worse. Ranitidine is really weight sensitive, and your LO can build up a tolerance quite quickly, but don't stop it until you've been using omepr for at least a week, beacause it might be helping way more than you think and syptoms could get worse! (more info on this: https://www.refluxrebels.com/Acid_reflux/Acid_reflux_medication.html)

However, you should defo still be looking to get prescribed OMEPRAZOLE, as your lO is still suffering and omep is much more effective than ranitidine at reducing acid. Totally agree with Booda, IF YOU CAN'T GET THEM GO TO A&E, and keep going back until you do get them. Preferably go to a childrens hospital, but at least a hospital with a paediatric unit. Stay calm but firm and keep repeating that you need them to help your baby. The longer it takes for your LO to get the right meds, the more damage the acid does to tummy and oesophagus, and the longer it takes to heal up and your baby to get better.

I've also read a lot about the liquid being less effective than the tablets (Usually 'losec mups'), and that the liquid deteriorates really quickly, (need new bottle every 14days). The losec mups are a pain at first, but most get used to them quite quickly. 'mups' stands for 'multiple pellet system', so when you dissolve the tablets, (adding a little fresh boiled water to make the water 'warm' helps them dissolve more quickly), you are left with tiny little pellets that contain and protect the omep. Also, omep is a 'super-safe' drug that can only be activated by the acid producing cells it affects ie: it doesn't get absorbed/ do damage elsewhere, which maybe will put your husbands mind at rest a bit.

When my DD was young, I used to dissolve the tablets in an eggcup (no corners for meds to get stuck in), carefully pour off the water, then add more water and rub gently to dissolve more and more of the tablet. I would keep repeating this until it was just the small amount of pellets that were left. Then i'd scoop them onto the end of my finger (every tiny bit counts) and rub them onto the inside of her cheek. I'd quickly follow this with a drink of water or very well diluted apple juice. That way she didn't have to take spoonfuls of yuck!!! After 5 months I started using a very small amount of applesauce (shop bought, just the saucy bits, no chunks of apple!) to mix it. Now she's older I jst dissolve off the majority of the tablet in one shot, mix with apple sauce and she happily scoffs it! However, the liquid seems to work great for some, so I'm not rubbishing it either!

I also found that the only way she could sleep was on her tummy, and I let her do this during the day while I could watch her. However, by 3mths that was the ONLY way she could get any sleep, so she slept on her tummy all the time. I know tummy sleeping is associated with SIDS, and I was really really paranoid, but if you check the research there are almost always other risk factors in addition to tummy sleeping taht contribute.

Other things that helped her were holding her face down along my arm (picture here: https://www.webmd.com/parenting/baby/crying-colic-9/slideshow-treating-colic picture 2/11), and marching (stamping) - dunno why but the stamping REALLY helped settle her??! I used to do this in front of TV to distract her, then lie her straight down on her tummy if she settled off to sleep! Another thing that can help is using a dummy - this helps create more saliva that helps neutralise the acid thats rising up her throat.

Finally, there is a great book called 'Colic Soved' by Dr Bryan Vertabedian (a gastric paediatrician who's baby had reflux), which saved my sanity and helped us loads. It's about £6.99 on Amazon, and I'd happily pay £600! Have a look at the reviews (on Amazon) from other parents.

Sorry so long, but hope some of this helps!!

:hugs:to you all xxx
I have just ordered the book! Thank for great info :hugs:
So we have been prescribed losec mups, hurrah! It's our second day and she is happier in herself, but not during feeding, it's still a fight. I can hear her stomach gurgling so badly when she feeds, why is that?
I have a question ladies, I was wondering when you administer omeprazole! I was told before any feeds, but she wakes up at silly hour (4 or 5) and is starving so waiting to prepare nedicine would not work...I treat it as a night feed because she oes back to sleep after. Is it ok to give it 2-3 hours after first feed?
 
We ave just had an evening of really bad crying after night feed. The problem is, she never had this sort of cramping she has now and I am worried that it could be ranitidine? Apart from reflux symptoms, she developed these cramps, poor thing. Has anybody experienced this?

Trust yourself - ur LO has reflux - and don't let anyone tell you different! My DD is now a happy smiley 1yr old (mostly), on high dose omep, still bf, dairy and soya free, and enjoying food. We went through the hell of severe silent reflux and had to fight to get her on the right meds. She's my 3rd baby (other 2 are hardly ever at the doc's), but sstill no-one would listen!! I went to A&E at a childrens hospital (told them I was visiting friends nearby!) before she was diagnosed and started getting treatment at 9wks old. I regret to this day that i didn't go to A&E much sooner

Lots of good advice already, and sorry if i'm a bit repetative.

Firstly, well done for keeping up the bf. Have a look here (only take 5mins to read), cos it helped me loads: https://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/Breastfeed.htm?OpenDocument

Also, the ranitidine may well be helping, but reflux tends to peak around 4/5mths, so could be the symptoms are getting progressively worse. Ranitidine is really weight sensitive, and your LO can build up a tolerance quite quickly, but don't stop it until you've been using omepr for at least a week, beacause it might be helping way more than you think and syptoms could get worse! (more info on this: https://www.refluxrebels.com/Acid_reflux/Acid_reflux_medication.html)

However, you should defo still be looking to get prescribed OMEPRAZOLE, as your lO is still suffering and omep is much more effective than ranitidine at reducing acid. Totally agree with Booda, IF YOU CAN'T GET THEM GO TO A&E, and keep going back until you do get them. Preferably go to a childrens hospital, but at least a hospital with a paediatric unit. Stay calm but firm and keep repeating that you need them to help your baby. The longer it takes for your LO to get the right meds, the more damage the acid does to tummy and oesophagus, and the longer it takes to heal up and your baby to get better.

I've also read a lot about the liquid being less effective than the tablets (Usually 'losec mups'), and that the liquid deteriorates really quickly, (need new bottle every 14days). The losec mups are a pain at first, but most get used to them quite quickly. 'mups' stands for 'multiple pellet system', so when you dissolve the tablets, (adding a little fresh boiled water to make the water 'warm' helps them dissolve more quickly), you are left with tiny little pellets that contain and protect the omep. Also, omep is a 'super-safe' drug that can only be activated by the acid producing cells it affects ie: it doesn't get absorbed/ do damage elsewhere, which maybe will put your husbands mind at rest a bit.

When my DD was young, I used to dissolve the tablets in an eggcup (no corners for meds to get stuck in), carefully pour off the water, then add more water and rub gently to dissolve more and more of the tablet. I would keep repeating this until it was just the small amount of pellets that were left. Then i'd scoop them onto the end of my finger (every tiny bit counts) and rub them onto the inside of her cheek. I'd quickly follow this with a drink of water or very well diluted apple juice. That way she didn't have to take spoonfuls of yuck!!! After 5 months I started using a very small amount of applesauce (shop bought, just the saucy bits, no chunks of apple!) to mix it. Now she's older I jst dissolve off the majority of the tablet in one shot, mix with apple sauce and she happily scoffs it! However, the liquid seems to work great for some, so I'm not rubbishing it either!

I also found that the only way she could sleep was on her tummy, and I let her do this during the day while I could watch her. However, by 3mths that was the ONLY way she could get any sleep, so she slept on her tummy all the time. I know tummy sleeping is associated with SIDS, and I was really really paranoid, but if you check the research there are almost always other risk factors in addition to tummy sleeping taht contribute.

Other things that helped her were holding her face down along my arm (picture here: https://www.webmd.com/parenting/baby/crying-colic-9/slideshow-treating-colic picture 2/11), and marching (stamping) - dunno why but the stamping REALLY helped settle her??! I used to do this in front of TV to distract her, then lie her straight down on her tummy if she settled off to sleep! Another thing that can help is using a dummy - this helps create more saliva that helps neutralise the acid thats rising up her throat.

Finally, there is a great book called 'Colic Soved' by Dr Bryan Vertabedian (a gastric paediatrician who's baby had reflux), which saved my sanity and helped us loads. It's about £6.99 on Amazon, and I'd happily pay £600! Have a look at the reviews (on Amazon) from other parents.

Sorry so long, but hope some of this helps!!

:hugs:to you all xxx
I have just ordered the book! Thank for great info :hugs:
So we have been prescribed losec mups, hurrah! It's our second day and she is happier in herself, but not during feeding, it's still a fight. I can hear her stomach gurgling so badly when she feeds, why is that?
I have a question ladies, I was wondering when you administer omeprazole! I was told before any feeds, but she wakes up at silly hour (4 or 5) and is starving so waiting to prepare nedicine would not work...I treat it as a night feed because she oes back to sleep after. Is it ok to give it 2-3 hours after first feed?

As long as you give meds at least 2hrs after one feed and 30-45mins b4 next feed then all should be fine - if it's not given on an empty tummy it stays in the tummy too long and gets destroyed by the acid there. Have read a few places that best giving at night, as there's no food to 'soak' up the acid and it can build up more. I used it at night 'cos me and DD both coped better with symptoms during the day - this seemed to matter most when her weight increased and she needed the dosage upped (stomach gurgling and stuff would be the 1st sign)

And you won't regret buying that book - stopped me thinkin i was goin nuts!!:thumbup:
 
domperidone really helped calm dd's silent reflux - made a big diff if she didn't have it...
 

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