alicatt
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Hi Ladies..
Headaches are still here.. I do have a diagnosis though. I have something called a chiari malformation type 1 if you want to look it up. So long story short my dream of being a mom is on hold for now (temporary) while I get a specialists opinion and figure out where to go from here. I really only have 2 options deal with the pain and progressive debilitation or have brain surgery. Neither option sounds good to me! UGH! I'm meeting with a neurosurgeon that specializes in chiari malformations and I'm hoping to get further tests and more information about it and my options. It's so bizarre because I've had funky symptoms that I never knew were due to this chiari malformation, like sleep apnea, insomnia, fatigue, hoarse throat, balance issues, of course the headache, concentration issues, memory problems, neck pain, nausea, there are a lot of symptoms I don't have and some of these I've only just started having in the past month or so. I guess the more recent ones could be due to the debilitating migraine.
Sams.. I'd give this Dr's plan a try. Blood sugars and insulin do play a role in hormones. So getting that under control is a good plan. The Lupron flare is also known to help speed up the cycle so we won't stim as long. That will also improve your egg quality, so my FS says.
BabyW.. glad the pain is gone! I don't know much about the things you are talking about but yes vaginal is best! I read somewhere that it transfers beneficial bacteria to the baby. Amazing! Wishing you a speedy and safe delivery and a healthy little boy!
I'm so sorry to hear this, but maybe it's a welcome relief to you to know what's causing all of these ailments. I've never heard of this but it sounds like a crappy way to live life. You're such a vibrant person I can only imagine what you'd be like if this wasn't plaguing you right now.
What else can they do to treat this?
Nothing beyond treating each individual symptom or having surgery. The issue is pretty rare.. 300,000 people in the US. There is something in the base of the scull called the cerebral tonsils. They are part of your brain. They sit above the area where the spinal cord meets your brain. Normally they stay in the scull, but in chiari (named for the guy that discovered it) the cerebral tonsils fall into the shaft that holds the spinal column and holds your spinal fluid. If they descend further than 5mm you supposedly have the disease but I've also read that it really depends on if you are symptomatic. Here is the worst part. Since the cerebral tonsils aren't supposed to be there and they are putting pressure on the spinal fluid and spinal cord it can lead to nerve damage. It really depends on the amount of pressure on the spine.
So right now I'm on topamax, a migraine preventative, but it takes 2-3 weeks to start working. The other symptoms I've just been dealing. Thing is that my quality of life has gone from decent to nonexistent in a matter of months. So in my mind I'm already thinking surgery. Maybe if the topamax starts working and I start sleeping and getting back to normal but right now I'm thinking let's correct this and get me back to being me! Providing that the surgery is considered safe and there us a reasonably high percent chance of fixing the issue and alleviating the majority of the symptoms, and preventing additional damage. I'll know more next Friday after meeting with the neurosurgeon. I
may end up in NY for the surgery. One of the top centers for this surgery is in Great Neck, NY! But for now I'll get some tests and information close to home!