On Friday I found the beginning of your story and started reading.
Finally finished.
What a truly inspirational story! It had me in tears throughout! You have a beautiful daughter who is blessed with a truly amazing mother. Your strength throughout the past few months has been so moving!
28 Feb is my Birthday!! lol
Hope you have your bundle of joy home in your arms by then!
Well not much else to report since last time. Angelynn should be 4lbs by today
And the nurse said that in 2 weeks they will start a homecoming plan!!!! OMG now im starting to get nervous lol but soooo excited. I can't beleive that time is coming already! The nurses are just astonished at her progress and how much weight she's gained since she's arrived at that hospital. She's also eagerly taking more bottles and is geting fed up with the gavage tube being forced down her throat. So she's slowly turning a corner in the feeding department. We are also going to try using a breast shield to get her eating off the breast better. I think the breast nuzzling and consistent cuddles are partly responsible for her amazing turnover She's a happy girl now.
They are also slowly weaning down her oxygen. In a week she's gone from 90-100% to being in the 60% range without having to be turned up when she's being handled.. So once she's on full bottle feeds they will trial her on room air. I really hope she does well so she can come home without it. It would be nice to look at her beautiful face without that darn tube and stickies on the side of hear head!!
Now the only thing I worry about is her ROP. It has not improved so she's got a 70% chance of needing the laser treatment. Im not sure when they will decide. It's not getting worse but it's also not getting better. So Im not sure if they will give it another week and decide at the next exam or what. I just hope that it doesn't get any worse. I think that I would prefer her to have the surgery just so I have a peace of mind knowing my daughter won't lose her sight. I think i'd be devastated if that happened!!
But thank you everyone for your support and prayers. Your kind words and your support keeps me so strong and motivated. You are all such great people I wish I could personally give each of you a hug
Well just a quick update. Angels almost 4 1/2 lbs. She managed to gain 95grams in one day!!! What a pig! LOL but she's got alot of fluid building up around her eye lids, ender her chin and her labia. Yesterday she seemed to be working a little bit harder to breath because of it so she might need to get a dose of lasix to get rid of that extra fluid. She was also desatting quite a bit last night I think she was uncomfortable So she looks very chubby but it's not her it's extra fluid. Still as cute as can be though
Also her ROP has not gotten worse but it's still sitting at the same point and if it gets any worse they will intervene and do the laser therapy. But right now they arn't too worried as of yet. So that's good it's not getting any worse.
She's also taking 4 bottles a day and depending on her cues the nurses will just keep giving her more bottle feeds. They are doing it every other gavage feed and she seems to be handling it very well.
But not much else has changed! She's 16 1/2 inches long so i'm hoping she'll gain a half inch every 2 weeks. She's slowly catching up
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