Dealing with azoospermia?

[cosita]

Hi everyone
I haven't been in on in ages and just came on to see if there have been any new developments with you all. I'm glad to see everyone is in pretty good form and am so sorry to see new people here (but glad you found us).
For us there is no news at all. We went for our IVF/ICSI appt and were told that we shouldn't go forward without a plan B. They have no way of knowing if the immotile sperm they found in TESE will work or not and basically said that if I am going to take all the meds and spend that money well we shouldn't let it go to waste.
In my last post I mentioned that I had a rockin abscess on my buttcheek. Well that took a while to clear up and seems I have a fistula. Because I couldn't bare the pain of another one, I am going to have it operated on but have to have a few tests first. So basically we have put on TTC on the long finger. We have waited this long and I don't want to risk any complications with pregnancy for a frickin fistula.
By the way, I love the elephant thing thats going on. As I have in signature I have always felt that I have been dealing with the 'elephant in the room' with the azoo thing, and the metaphor continues!! It's all so true. And elephants are so beautiful!!!
Girls, I'll be roaming in and out from time to time and I really wish you all the best. I'm here is anyone has any questions about my journey.
Have a great Sunday!!

 

[Deb111]

Lovely to hear from you cosita. I was thinking the other day, has anyone heard anything from Sar lately?

CM - our mTESE cost £3500 and then a £590 storage fee for what they have left over.

I know everyone's different and it could be down to the difference between the NHS and private, but Terry would have mTESE over the other procedures anyday! Having an open biopsy seems to mean a lot less poking around and definitely meant the difference between a lot of pain and discomfrot and none at all! I know, frustratingly it's also down to money too

I really do think whichever route you decide to go down and for whatever reasons, there is NO HARM in trying something like anastrazole. If it can just increase minute numbers to a few more, it gives them a much better chance of finding them.

Did you ever have a phone consultation with Dr Turek? It might be interesting to get his opinion directly. I know it helped us to push forward on the right track even though we didn't use him and all we had to pay was the cost of the phonecall

 

[SunUp]

Sun- ??? Did you start or something?

Nah. Just poas bfn yesterday. Dpiui 12/13.

 

[Deb111]

Big higs SunUp There's still time though - I didn't get my til equivalent of 14dpo xx

 

[MJ73]

Hello lovely ladies

So nice to hear from you Cosita, hope the fistula heals up nicely after the surgery.

CM, we live in Aus & they only do a local anesthetic, so we didn't ahve to pay for a general anesthetic. Simon's part of our procedure cost us about $1500 out of pocket. That's after private health cover & govt medicare rebates. Upfront I think it was 3-4k AU$... Last time Simon had 16 needle aspirations then ended up having a biopsy also. OUCH! He was in ALOT of pain & still gets pain over a year later.

Hope everyone is ok. Sun, hang in there. Like Deb said, there's still time yet. We're all here for you either way.

AFM, we see our FS on weds to talk to him about the cancer thing & all the issues around that. Also, at our clinic we have to BYO donor & it looks like we may have a donor, please everyone keep fingers crossed that this works out as it would take so much pressure off us.

Sending you all many
MJ xx

 

[Deb111]

Thinking of you MJ and hoping that things with the donor get sorted and that you get some answers about Simon xx

 

[MJ73]

Thanks Deb, I'm just looking forward to moving onto the next stage now IYKWIM... Donor or not; any baby we have will be loved to bits, so bring on some action. I just want things happening, rather than nothing happening. I think we have kind of decided that if our last frozen emby doesn't take then we will just move on to donor rather than waiting any longer. This 'ol gal ain't gettin any younger!!!

 

[Deb111]

Don't give up hope on your frozen emby sweetie - azoo embies seem to like to be frozen!

 

[luckdragon]

Yes I did indeed get my bfp the day before yesterday first go at ivf as well ad I only had one embryo put back as I wanted to reduce the risk of twins! Dh and I are goof for a scan in 2 weeks to check that everything is ok xx

 

[Deb111]

Congratulations LuckDragon - H&H 9 months to you!

 

[luckdragon]

Thank you deb I can't believe just over a year ago we were told dh had no sperm and we wouldn't have a baby! It just goes to show there is hope! I let him pick the donor from the European sperm bank! Has cost us 2500 in all as I did an egg share. Fingers crossed it's a earthy sticky one

 

[rdleela]

Congrats, Luckdragon!!

 

[deafgal01]

Congrats Luck! Hope this is spreading and catching on to the rest of us!

 

[MoBaby]

hey ladies! i was just checking in/folowing up on everyone. so much to read! deb i just read your post on the tamoxifen..my dh has slightly high fsh, slightly low testosterone, maybe we should look into this?

we have been fortunate that dh has made just enough sperm for our 2 icsi cycles. unfortunately we are onto 3 after my beanie didnt stick around. scheduled around july 16. im in bcp now. he will go soon for a backup. they have a sample with 20 or so frozen still but they werent hopeful those would thaw. so we will do more. i think we may try to leave 2 or 3 samples if the count is very low (too low for icsi). im just nervous we will get there and no sperm will come out. i have had him on fertailaid and count boost and fish oil for several months; who knows if that will workbut to me i dont want to risk not trying. he is trying to diet also and lost 10 lbs (he needs to lose 60 more). he hasnt been as good lately with his end of year being now and parties, cook outs, etc.

im going on wednesday for my HSS..it was fine last year but im nervous because i have a fibroid which had grown almost double since yhe two cycles and d/c..it looked to be degenerating at ultrasound so as long as its not effecting the cavity i think it will be okay. i am going to make sure 100% with the re he doesnt want to remove it now. in my opinion if there is even the smallest thought it needs to come out lets do it because this is #3, all cost out of pocket and i want to be aggressive as possible. im also going to ask for 3 to be put back. re most likely wont agree but i have to ask. knowing my luck all 3 would stick. but i need to ask. im upset at myself for not asking last time because we had a 3rd blast that wasnt good for freezingnso i feel like it was just wasted wish i would have had that option. my last question will be to move up the cycle. i would like to go the first week of july as my 30 th birthday is mid july and i want to be done. its selfish and silly i know. i was told the schedule is full before then but i feel like re could fit me in this being my third. not that it makes me a special patient or anything. i also need to make sure no crazy change in my labs. my AFC was 26 so I was happy about that. okay my post is way long; sorry!

 

[deafgal01]

Good luck MoBaby! Hope it works out for you!

 

[tigerlily1975]

Hi everyone

It sounds like many of us are having a rotten time of it these last few weeks, I'm sending big to all

Tigerlily - I'm in Wandsworth, but they don't have an IVF unit anymore. OH got sent to Hammersmith as they have the nearest freezing services (for the 1 sperm we have ) but they expect us to go to St Heliers/The Bridge for the tx I think. I get the impression it's particularly bad here - Croydon PCT is next door, and that's 6 months. Surrey have only just re-instated funding, so it's all changing. Hope your meeting goes smoothly - how much sperm do you have waiting?

We actually don't know how many they retrieved from the TESE (... ), I'm hoping we'll find out tomorrow. We had our post-op appointment with the consultant a week after DH's op and he didn't seem to have anything for us (or know anything about us!), aside from a piece of paper to make our IVF/ICSI appointment!

Dear Sun and SND, I hope your next cycle leads to lovely BFPs

I'm so sorry to hear about your cycles MoBaby Will your DH have to have surgery? Good luck for cycle 3, I hope you get the best 30th Birthday present imaginable.

Congratulation LuckDragon! That's wonderful news!

MJ: GOOD LUCK!! I'll be keeping everything (even fingers and toes) crossed that you get some good news! Boy, do you deserve it, hun!

Stinas: I hope you get some good news on the U/S, good luck!

CM: Have you had anymore thoughts about what you're going to do next? This is all so tough and I just wish the 'money factor' didn't have to make it even harder. Big

Raelynn: Yay for getting started!

Big and to Deb, SilverBell, DeafGal and anyone else I've missed (sorry!), I hope we all have happier days ahead.

I've just been completing all the consent forms ahead of our appoinment tomorrow.. I feel like I'm signing my life away! Still not liking the words 'injections' and 'suppositories' *gulp*

Much love,

C xx

 

[deafgal01]

Tiger- good luck to you tomorrow. Hope you get some kind of good news tomorrow.

 

[Deb111]

MoBaby - good luck hun - it's def worth a try to ask about the tamoxifen / anastrazole

Tiger - good luck tomorrow hun - I hope you get some more answers

 

[WANBMUM]

Luckdragon! WOOOHOOOOOO congrats - that is amazing news! Well done You guys must be estatic!

 

[Stinas]

cosita - Sooo nice to hear from you!!! Sorry you are at a standstill! This azoo is literally a pain in the ass!

SunUp - Sorry about the BFN!

MJ - I will be thinking of you guys!!! Good luck!

luckdragon - Thats just amazing news!! CONGRATS!

MoBaby - Good luck!!

Tiger - Thank you and good luck to you too tom!!!

As for me....we do the u/s tom!!! I am very anxious! DH is not happy about the enema he has to do before the apt, but i know he wants to know whats going on, so he is trying to forget whats going to happen lol Poor guy!