Dealing with azoospermia?

[bluelily]

hi, we say our consultant again on Fri and he has diagnosed hubby with chromosome disorder klinefelters syndrome. so basically infertile! devastated, not sure what to do now!

 

[Mikihob]

hi, we say our consultant again on Fri and he has diagnosed hubby with chromosome disorder klinefelters syndrome. so basically infertile! devastated, not sure what to do now!

bluelily I am sorry to hear that you received bad news. I was doing research on Klinefelters Syndrome yesterday. It popped up in one of my searches. How are you doing? How did DH take the news?

You two still have options. But it might be good to wait a couple of weeks before discussing them. If not for you, for DH. My hubby has secondary infertility and has zero sperm in his SA's. He is very touchy about it and quite sad. He feels terrible for being the reason I am not pregnant (no matter what I say to him). We have already decided on donor sperm if he doesn't have any sperm. But it's still a rough time. He really doesn't want to do donor sperm, but feels beaten down he produces zero. If the news comes back it's still zero and we schedule a biopsy and find zero, I will wait a couple weeks to a month before starting the donor sperm talk. I am not even sure what state of mind he will be in after that.

This is so hard. Sometimes it seems like no matter how far you get in this journey, there is always something to knock you back.

I hope you and DH are doing ok after this. If you need to chat message me.

 

[deafgal01]

Hey ladies,

Seem a common theme in here is our husbands feel less of a man simply over not being able to get us knocked up. My question is- any ideas what we can all do to boost their self esteem or celebrate their manhood?

Mine recently mentioned that he felt I was leaving him out of the whole process with my information search and going too fast. I gently reminded him if I was in such a hurry, I would have had my blood screen test done last sept and the list of donors picked out (which I did not do, that is going to be his job since it overwhelms me too much to even look). I also said, not having swimmers do not make you any less of a man, cuz he takes good care of me. I also promised when we undergo iui, I will wait to test together. I told him he will be the father because who is with me from conception to pregnancy to birth/labor of this baby? He will, not the donor or any of my friends.

That said, I celebrated his manhood with some sex later that night after the Convo but I still feel like there is something more I could do?

 

[MrsG30]

Everything you said/done I have tried. I watched my hubby with our god-daughter today and he was a dream- it makes no difference who the childs father is biologcally I know he will be a perfect dad to her, Ive just told him and I even seen him smile

Hey ladies,

Seem a common theme in here is our husbands feel less of a man simply over not being able to get us knocked up. My question is- any ideas what we can all do to boost their self esteem or celebrate their manhood?

Mine recently mentioned that he felt I was leaving him out of the whole process with my information search and going too fast. I gently reminded him if I was in such a hurry, I would have had my blood screen test done last sept and the list of donors picked out (which I did not do, that is going to be his job since it overwhelms me too much to even look). I also said, not having swimmers do not make you any less of a man, cuz he takes good care of me. I also promised when we undergo iui, I will wait to test together. I told him he will be the father because who is with me from conception to pregnancy to birth/labor of this baby? He will, not the donor or any of my friends.

That said, I celebrated his manhood with some sex later that night after the Convo but I still feel like there is something more I could do?

 

[Tammerzann]

Hello all,

I am new to posting in this thread but not new to reading it. I first started reading it about a month ago when we got the results of my DH's SA. I did just a little bit of research to find out about what the results could mean for us and somehow got directed to this thread and started reading the posts and saved it in my favorites to refer to and keep reading later. While I haven't read every single post I have read a lot and kind of got a feeling of what some of you are going through. It is definitely nice to be able to read other's experiences and now share my own.

A little history about us, my DH and I have been married for eight months but TTC for a little over a year. He always had doubts about his abilities to conceive because he was in a very long term relationship before us (15 years!) and had never done anything to prevent. He was pretty adamant that he thought it was something to do with him but I always tried to play devil's advocate and tell him that maybe she was unable. But I guess his gut feeling was right. He went in for his SA on March the 8th and we got a phone call on the 10th (a Sunday!) with the results of zero sperm. The person who he spoke with suggested he make an appointment with a urologist and gave him a name of someone in the next building over that specialized in male infertility. We waited a little while before calling to make an appointment and there was a slight wait to get in but the appt was today!

(I started typing details on how the urologist appt went but deleted it realizing you didn't need so many details in my first post.)

But basically, we found out more than we expected to find out today. We just assumed he would talk with us about general things and then refer us for some type of testing but during the physical exam he discovered that my DH has CAVD. He seemed very optimistic which helped both of us stay optimistic. We go back for the results of the blood work on the 4th of June. I'm very scared about how much this is all going to cost but we are both ready to explore all of our options.

I'm looking forward to keeping in touch with all of you and reading your updates. I know none of us want to be here but I appreciate all of your posts already!

PS I tend to ramble and my posts will most likely be novels! I will try and keep them concise and to the point!

 

[deafgal01]

Tam- do you have a journal on here to pour all these into? I have a journal I write in on a more regular basis on here, I do check in on here occasionally.

 

[bluelily]

Mikihob thanks for your reply. he's feeling pretty down and says he's useless which i obviously tell him he's not! the consultant said we could go to biopsy but only 5% chance of finding anything-though from reading on internet others have been given higher than this so not sure what determines the chances of success? does anyone know? also hubby doesn't really show any other symptoms- can grow beard easily and has hairs on chest lol- even consultant said hes not lacking testosterone!

 

[deafgal01]

Blue- maybe what we all should do is pamper husband day to help them feel manly however they do that. I am thinking of ordering mine to sit and enjoy a red-green show marathon or some kind of man movie/show while I work up a sweat in the kitchen or any chore that needs doing this weekend, in my household my dh typically does all kitchen duties (cookin and cleaning).

 

[Mikihob]

I have been talking with my husband a lot and letting him know that whether or not we are able to get pregnant, I am still happy that I have him for a husband. I then tell him how amazing I think he is. I also tell him research that I have found showing the success stories and I have been dropping donor ideas (doctor started and won't stop..lol) and now he is mentioning them as the back-up. He does feel like less of a man, especially since he has kids from a previous marriage eight years ago. He is confused and bummed. Together we are working it out. I tell him everyday what I find out and what I learn, what videos I watch, etc. He seems to feel like he is in the loop more this way. If he doesn't want to hear it, he lets me know.

Bluelily - I would get a biopsy done and not count your chickens before they hatch. I wouldn't let an opinion rule anything out. Unless a biopsy says he has no sperm, assume he has some without a way to get out. It's easier said than done. I have a deep fear that my husband's biopsy will come back with nothing, but I try to tell myself otherwise. It helps a little.

Tammerzann - What is CAVD?? I haven't seen or heard about that before. If you want to chat or stay in touch, message me. I would be happy to read all your novels. I am a rambler too.

 

[tulip11]

Hi we are back from ultra sound so according to the person who did ultrasound he said my hubby blood flow is normal, there is no blockage, testicles size is normal everything is normal so according to him its non obstructive azoospermia I think its the most worst scenerio case.

 

[MrsG30]

Hi ladies
We are at the uroligst tomorrow and worried sick xxx

 

[AuCa]

Good luck for tomorrow MrsG30

Tulip - they might still find sperm in a TESE. Most men with azoospermia have non-obstructive azoo, there is only a few with blockages or other issues (pituitary etc). What's your next step?

 

[MrsG30]

Tulip
we were told this diagnose just based on bloodwork- my hubbys fsh was really high and that was enough for them to say it wasnt a blockage problem- im not sure what im expecting tomorro at the urologist-guess he will tell us what he can/will do to find any sperm and what the chances are.
Like Auca said most azoo men are non obstructive and there are plenty still become biological daddies so dont give up yet. whats next for you? xx

Hi we are back from ultra sound so according to the person who did ultrasound he said my hubby blood flow is normal, there is no blockage, testicles size is normal everything is normal so according to him its non obstructive azoospermia I think its the most worst scenerio case.

 

[tulip11]

Thanks AuCa and MrsG30...well at our first appointment they did some blood tests and urine as well but we didnt get results. They told us that we ill receive appointment letters for both ultrasound and SA but we got ultrasound only not SA. the blood tests which GP did shown all hormones levels nprmal. Now we dont know what we ill get next ? We ill wait for results and SA appointment now idk how much time does ultrasound result takes place when urologist ill get that ?

 

[tulip11]

Good luck MrsG30

 

[awifey]

Dh went in for his second test today, more thn 3 months after the first one. He still hasn't seen a doctor. fx'd this test goes better than the last one!

He has quit smoking, reduced alcohol, and started taking supplements.

 

[tulip11]

any positive reviews about sperm hope ?

 

[MrsG30]

Hi girls
update from me:
Uroligst did a physical exam and from the bloods and previous texts he is pretty sure mumps caused a production problem and he gave us a 40/50 %chance of finding sperm in the MTESE! He said there is no point looking for sperm in any other procedure, BUT he also said combing that % with the ICSi sucess rating the chances of us being biologial parents together are very small although he wouldnt rule it out.
He took more blood to make sure DH's gene's are ok and told us to think about what we want, he made us an appointment for 8 weeks and in that time to decide if we are to to take the chance, if we do, the MTESE will be in 9 month from July and it will be scheled with a fresh ICSI cycle with Brother in law as back up. If we dont take the chance he will discharge us from urolgy and pass us back to the FS, they then will start the process with donor, 6 rounds of IUI and onto IV/ICSI if need be.
DH at the Minute is saying he wants us to go straight to donor but we have lots of talking to do and 2 month to make a decision. I must admit the MTESE sounds horrendous and he said Dh would need 4 weeks off work and the side affects can be long term!!!
He said my PCOS is not an issue as they will overide my ovulation with meds so at least thats something.
I not sure how I feel, I dont feel any worse than I did to be honest, I/we just need need to make the right decision

 

[AuCa]

I am confused about what he told you about the mTESE. Every doc we have talked to told us that it is really a very minor procedure, and that the recovery is fairly quick - maybe one week off, but certainly not four!
And 40-50% is a pretty good number

And IVF-ICSI success rates are really not that bad either. I don't know why he is being so pessimistic. I find that a bit odd. IUI success rates are actually WAY lower than IVF success rates.

I think it's a good idea for you two to take some time and think about this. It is a very important decision to make. Wishing you all the best!

 

[Mikihob]

MrsG30 I am so sorry that you received such terrible news from the doctor. At least they gave you a chance during the MTESE. I didn't know the MTESE required the hubby to take 4 weeks off work. That is crazy. My husband is feeling the same as yours. He says that he doesn't want the biopsy or the TESE because of the pain and the time off work. He has mentioned that we should use the donor and deal with it. But over the time we have mentioned it and talked about it, he now really wants to try. He wants to know every aspect of each procedure risks, outcomes, etc. Then we will have to talk. I think our DH's are just scared about what might happen plus long term effects.

I hope that you and DH are doing ok. If you want to talk and vent, you can message me ANY time.