momwannabe - thank you!
Well, I had a meeting with the genetic counselor at my MFM this morning. I'm feeling a little concerned after the meeting which I know is totally ridiculous but can't help. Even though DH and I did CCS testing we wanted to see what our options were for further testing since CCS testing isn't 100%. In a nutshell I found out that there is no point in doing any genetic testing beyond the NT scan (that's even a stretch) unless I'm going to abort both children or just to be prepared. I know that seems dramatic but bear with me. If we do the genetic screening for down syndrome and it comes back positive for one baby are we really going to terminate? I don't think so ... not if the other baby doesn't have it. It's highly unlikely that they will both have it. So ... if we're not going to terminate the pregnancy if we find something seriously wrong (which we're not, unless both twins were affected and could not survive very long outside of my womb) there is literally no point in doing it. I am scared but trying to remain optimistic. We did do CCS testing which is right (if I'm remembering correctly) 95% of the time. We looked at a statistics chart that said for women age 29 at the birth of their children, they have a 1:473 chance of down syndrome for 1 twin and the odds of both having it are 1/4,something. Since I'm a year younger than 29 at their birth I would have even better odds. She figured it to be something like 1:500 ... a .2% chance. It's all just really scary and I don't like to think that there may be something wrong with my babies. It sort of put me into a funk this morning.
I also did no sleep well last night at all! I was up at 3, 4, 5 and then 6:30 to get ready for our appointment. I wasn't nervous so I'm not sure that's what it was but it's not fun to be up every hour.
Anyways, I hope everyone is doing good!