We are doing fine. Got a lot of support from family, but a little fed up of outsiders looking at my little boy with pity. When I look at him I see a strong, happy and handsome little man, not a poorly baby.
A week to go until our next appointment, eager to hear what the consultant has to say...
In the meantime, I am making the most of every minute and very glad that he's been really content since we got back from hospital - I think I'd be hypersensitive to any screams or cries. We do have a movement sensor mat for his basket now, so that reassures us he's not stopped breathing.
Here's another photo update...