Hello ladies,
Sorry to hear that a lot of you had a rough weekend. Well, I guess it's pretty much expected with reflux babies huh?
Sezz, good to know you got some answers, even if not the ones you wanted. At least now, you're probably feeling better about putting your LO on the med again.
Definitely sounded like you were dealing with reflux again. I can't help you about the med but you can call the pharmacy to know if you should give it close to feeding time or much before so it takes effect... Maybe it doesn't matter really. For the milk, perhaps the gaviscon works better at preventing reflux so maybe he isn't comfort feeding as much? I'm not really sure.
Vegaz and Jessy, I know it's terrible but I think the best way to get a diagnosis is to catch it on video unless you're able to have you LOs seen as it is happening. My LO is always great at the doctor's and so they are clueless as to how bad it still is. I'll be bringing my videos tomorrow. I cry everytime I see this one in particular but I keep telling myself that this video being so bad only shows how seriously they need to take it. This might be the only way for me to get him the help he needs so I just concentrate on that. For some babies, it is enough to thicken the milk (rice cereal or carob flour) as it makes it much harder to bring up (but only do it under medical advice!) so that might be something to ask your doctors about if they aren't ready to jump down the medicine route, at least in the meantime while you find another for a 2nd opinion or gather evidence if you really suspect reflux.
I think a very common feeling amongst us mamas is one of being overwhelmed and being powerless to do much about it. It's draining, physically but also emotionally, to deal with our lil ones being so unwell. It's enraging to have to deal with people who don't understand and don't do anything to help. I know I have people in my entourage who giggle at me being a first-time mum and struggling. People just don't get that this isn't your normal introduction to parenthood. For those who already have children, I can only imagine how much more difficult it is trying to juggle everything. It's the main reason why I started this thread in the first place, to not feel alone through it all. I wouldn't assume it's PND or anything at this point other than a sheer normal reaction to the situation. It's not hormones, it's the reality of what we are all dealing with. Whatever you need to help you cope, you get it. No shame in it, but don't feel ashamed of feeling down about all this, and don't allow people to label you and disregard the severity of the situation. I just don't see how ANY mum would be perfectly fine through all of this. I know that acid reflux isn't a huge deal in the grand scheme of things as we could be dealing with much worse. I like to tell myself things could ALWAYS be worse and to be grateful that we're not in a worse situation, even if difficult. That doesn't make reflux 'nothing', it just makes it a I'd-rather-deal-with-this-than type of situation...
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Good news here... After getting totally discouraged by our nice nurse apologizing and saying there wasn't anything more she could do to push the hospital, we finally were given an appointment with a pediatrician! I was really irritated because they were supposed to call us on Friday about the Lactulose and it was getting late and they hadn't called. I called the hospital to make sure they would call that day and before the pharmacy closed as he needed to have the Lactulose changed.
The physio therapist was the one to call (huh?) and she could tell I wasn't happy with the way things were going. I told her he was still having problems so she asked a lot of questions. She finally asked what I wanted to do, if I wanted to change the Lactulose or what. I answered that what I wanted to do was to stop having to make all the medical decisions myself as I'm just a mum and have never dealt with this before. I told her I didn't have the medical background to know if the Lactulose is setting off the reflux, or if the reflux is worse, etc. I was simply exasperated at that point. She agreed and said it was disappointing to know he wasn't well as we're doing everything we've been told. Duh! We DO want him better and we are doing everything they've suggested! At that point, she suggested it might be best if we'd see the pediatrician and decided to call to make us an appointment. I had to hold back from crying out from relief while I was still on the phone. You bet I squealed when I hung up though! We go tomorrow
I'm REALLY hoping the pediatrician will be more proactive. I might have a massive breakdown if we get shrugged off tomorrow!
The weekend was alright... We were out a lot so the stroller and car seat time are always quiet. That sure helps a lot. I still don't understand why it helps THAT much though.
I took him off Lactulose on Saturday but by Sunday evening I had to put him back on as he went right back to being quite constipated. He had nasty bunny poop this morning, the poop kept rolling away while I tried to roll his diaper one-handed
He IS spitting up a tiny bit after every feed though, something he was no longer doing so I still think his reflux might be more present than I really realize. He's not always as upset about it though.
On the other hand, I am wondering about Sandifer's... I'm having a difficult time seeing what Sand's really looks like though. The youtube videos show a lot of flailing about, nothing which I immediately think is unusual. Nathan looks exactly the same.
Does any have any experience with Sandifer's?
Big hugs to everyone!