Molar and Partial Molar Pregnancy Support Group

[geministar]

Hello Ladies,

Not sure if I am doing this right, my friend introduced me to the site and everyone you go on is different so i hope I post it correctly.

I have read many of your posts, from the start where there has been much heart break through to the more positive posts where some of you have got you BNP's - it's so nice to hear good from all the heart ache that has happened. Unfortunately I have found myself in this situation

My name is Gem and I have a 3 year old little boy, me and my hubby got married at the end of Aug (we did things the other way around!) I found out we were expecting our 2nd baby two days before our wedding day and we were over the moon.

For some reason during the pregnancy around 6-8 I started to feel something wasn't right and that I was too well, that may sound strange but I had had morning sickness with my little boy and with this pregnancy I just felt too good. The midwife at my booking in appointment told me not too worry and that every pregnancy is different!!

Along came my 12 week scan in Oct and instead of being excited I was dreading it if I am honest...I just knew that something wasn't right but I tried to stay positive. My worst fear came true and they told me I had had a mmc. the baby had stopped growing at 7+5. i don't have to explain how I felt as I know from reading the posts the feelings we have all been through are quite similar...my world seemed to have ended! I opted for a manual vaccum aspiration the next day. Part of me didin't want to lose my baby but I couldn't deal with the thought of carrying my dead baby. The mva was very painful, I had local and it was horrid but only last 10 minutes!

3 weeks later I got a letter from the hospital, they had been trying to call me. me and hubby were panick striken about what news they had, and they explained I had had a pmp. My first reaction was that I was relieved that they said I should be able to have more children and it wouldn't affect my next pregnancy...as time as gone on it has really sunk in what it all means. I'm not dealing with the thought of waiting 6 months to be able to ttc again well! Hubby just wants me to be ok and let my body do what it has to but I just want another baby. Knowing what has happened has helped me to deal with why we lost our baby, at least I know it wasn't something I personlly did but it doesn't ease the heart ache of losing it! Seeing other people pregnant isn't affecting me as much as I thought it would...life goes on, I wish them well...I just want my baby and that's all that matters to me. people have said that I am lucky to have my little boy and I have known that since the day he was born, they don't have to tell me...it doesn't ease the hurt or the need though!!

it will be 4 weeks yesterday since I had my mva, and funny enough my af came 4 weeks to the day of my scan. At first I thought that seemed cruel as though it was a reminder but now I like to think that my little baby I never met is trying to let me know that my body is getting back to nrmal and that everything will be ok.

I'm waiting to hear from Sheffield so I feel a little lost until I know what my levels are and where I stand!

So sorry for the rant but I'm so glad I have found this site and there are people who truely know how it feels to be in this situation.

I wish everyone of you much luck and love in the future

Gem xcx

 

[Sarahwoo]

Hi there Gem! Huge , I am so, so sorry that you had to find us. Hopefully we will be able to help you through what really is a very difficult time I found it incredibly difficult to get my head around not ttc for six months, the thought of TTC and getting pregnant again was one of the things that got me through the initial mmc. I felt very much like you - I didn't really have a problem seeing pregnant people or people with babies. I wanted my baby. The way I got through my six months was to throw myself into preparing for TTC again, which I think I said in one of my earlier posts. It really did help. Hopefully you should hear from Sheffield soon, if your period has come back thats a really great sign Hopefully we will be able to help you through the next few months and you will be posting your BFP on here next year

Dan-O - I see from your sig that your scan went well, I am so, so pleased for you!

How is everyone else? I hope you are all well

Sheffield are still sending me tests I have also had a letter saying that the tests are all fine so they are happy to leave it there, so I just won't send back any more tests and I presume they will stop sending them! In the discharge letter it says that for any future pregnancies or mc's I have to contact them for tests, so it sounds like its for life Better safe than sorry I guess.

I really hope you guys are all well, lots of love to you all xx

 

[geministar]

Thank you Sarahwoo

One thing I did wonder is if anyone had ttc as soon as they were told that their levels were back to normal or does the hospital insist you wait the full 6 months...only that I read on a different post someone started ttc before the 6 months??

Gem xcx

 

[Sarahwoo]

Hiya!
Well they strongly advise you don't ttc during your followup but they can't stop you. I asked my consultant what would happen if I fell pregnant during followup and she said they would just do extra scans etc and then do followup after the baby was born. To be very honest during my followup, after I got my results back to normal, we didn't use anything except timing to not get pregnant, I was tracking my cycle and we would just avoid the days around ovulation.
When I did get my bfp I was glad my followup had ended, as I didn't have that additional worry, if you know what I mean?
X

 

[geministar]

Yeah I understand what you mean...and I understand why they would want us to wait. Just wondered what would happen if levels were back to normal, would not want to risk losing another baby just because I couldn't wait - that would be too awful and selfish!!

xcx

 

[dan-o]

Hi Geministar

So sorry to hear of your loss I also had the feeling something wasn't right with my pmp pregnancy. I think you do just 'know' sometimes.

Sending massive xxxx

 

[dan-o]

Dan-O - I see from your sig that your scan went well, I am so, so pleased for you!

Hi hun, yes it went fine, sorry I forgot to update here!

Baby measured 1 or 2 days behind, but the HB was clear & strong. They think it's a normal one this time.
(with the PMP baby was really behind on dates & with a weak heart)

Going for a second scan a week on monday, to double check everything is progressing as it should. xxx

 

[Jamaris Mummy]

Hi everyone, I'm back with an update. To gem, a bittersweet welcome,so sorry to hear of your heartbreak! I'm not sure if u read my story but I had a pmp & 12 wks ago delivered my baby boy at 16 wks(but that's only according to dating scan, I think I was 18 wks, he just wasn't growing) I too have to wait the six months, I can try again in march, I know how anxious u feel to ttc again, I felt that very early on also and it's only been the last fortnight I've started to feel at peace with waiting, I want to give my 2nd lil 1 the best possible chance of a healthy pregnancy, so as Sarah suggestsed I'm diving into getting fit and healthy for ttc in a few months, believe me the girls on here told me time would fly nd it honestly is! I'm anxious but excited to ttc again soon. Sarah, I got some great news today from m specialist!! No more bloods tests needed, or dr appointments, I don't need to see anyone or do anything until I fall pregnant again (hopefully in march) what a reliefI feel some peace in my mind today for the first time, and how ironic, Jamari's poppies (his birth flower) bloomed for the first time today, I planted seeds when I got out of hospital, they bloomed today. Love to all the ladies and best wishes

 

[geministar]

Thank you dan-o and Jamaris mummy

Jamaris mummy that was a lovely idea to plant some seeds, I was thinking of buying a little something, maybe a little angel or something!! So nice that they have bloomed!

Received my first 'pee pot' yesterday in the post so did the sample this morning and sent it back to Sheffield - hopefully this time next week I'll know more about where I stand!

Hope everyone else is well

Gem xcx

 

[Sarahwoo]

Kate that is so, so lovely about Jamari's poppies! Its like he's sending you a little message, I had a little tear reading that Great news re the followup, roll on March! You are doing so, so well

Gem fingers crossed for your results, I used to e-mail Jan in Sheffield for mine just so I didn't have to wait. Just the first few times, until my results were normal.

I hope you are all doing well

Xx

 

[Clo]

Hello all,

Just found this thread and wanted to join you. Some of you already know my story so ill keep it brief. I fell pregnant with my first in September last year and was so happy. All went well in first tri and baby looked perfect at 12 week scan. Had blood test for downs/spina biffida at 16 weeks and they came back 'atypical'. The consultant didn't know what that meant so he did a scan and baby again looked perfect so he told me not to worry. Got to 20 scan and that was fine too. I got to 23 weeks and stl hadn't felt baby move tho so was a bit worried. My midwife tried to find babies heartbeat but couldn't find it. I was sent for a scan where it was confirmed that baby had died at some point after 20 weeks.

I was induced 2 days later and gave birth to my beautiful baby boy Fraser. He looked so perfect.

Post mortem showed that it was a partial molar pregnancy

I had follow up for 6 months and thankfully my levels went down fairly quickly and stayed that way.

We decided to TTC in our last month of follow up and I got my bfp straight away.

I am now 16 weeks and had my blood test for downs/spina biffida today. I wont get the results back until at least a week on Wednesday and I'm terrified!

X

 

[Sarahwoo]

Hi Clo! Oh my goodness, huge to you! I am so, so sorry that you lost Fraser. I never knew a pmp could progress normally for so long, what an awful, awful thing for you to go through I read the stories from you ladies and I honestly feel like I 'got off lightly'. As hard as it was to go through what I went through, I cannot begin to think what a late loss like yours must be like
Fantastic news that your bfp came so quickly though and fingers crossed that you have a wonderful trouble free pregnancy. It must be very hard waiting for the test results, its a shame they can't rush them through! I have everything crossed for you sweetie

We have a few amazing little rainbow babies on their way now! Hopefully it will give some hope to those currently in followup. Pregnancy after mp / pmp is a worrying time, I hope you can all find a point when the worry begins to fade and you can begin to enjoy your pregnancies. For me it was after about 12 weeks, though I know for others it would probably be later. I just thought well I can either worry about something that might happen, or enjoy my pregnancy and not let my worry get the better of me. I think you have to get to that 'point' to let the worry go though. For me it was reaching a milestone which I never got to with my first pregnancy, so from there on everything was 'new'. I really hope you ladies can get there at some point too

Has everyone got lots of snow? We have, typically last week I decided to buy a 4x4, the next day the snow came and we haven't been able to even get to see any! Plus I think everyone has had the same idea so all the ones that are close that we might be able to get to are sold by the time we call up. So annoying! I need to get to a supermarket today somehoe, though I might just send my hubby and stay at home in the warm with Oliver.

Huge to you all, stay safe in the snow! xx

 

[Jamaris Mummy]

Clo thanku so much for sharing, I know u n I have spoken already but it was fantastic to hear of ur new pregnancy. A big congratulations to u I have my fingers and toes crossed please let us know how ur scans go. I found it interesting u said u ttc in your last month of followup... Ladies I need ur help! I just was told I no longer need any more blood tests or specialists appointments my levels r back to normal!! Yay but I think I still have to wait til march 2011 to ttc, coz that will be the 6 month mark.. Do they just tell u to wait six months for ur body to recover or is that just to cover their bums as doctors? If u know what I mean? I'm a bit confused! I plan to wait til march but now I'm wondering do I really have to wait that long? I know it's only three months away and all... Sarah so lovely to read ur post

 

[Clo]

Thanks Sarahwoo, i'm so sorry to hear of your loss too *hugs* I'm glad to hear that there are a number of rainbow babies on the way - it gives me so much hope

I'm just trying not to think of the results at the moment....my hubby is having an operation on Monday (only minor...on his sinuses) but I am concentrating my worrying on that at the moment!

We have a little snow here, enough to be cold and annoying, but not quite enough to justify staying of work...boooo!

Clo thanku so much for sharing, I know u n I have spoken already but it was fantastic to hear of ur new pregnancy. A big congratulations to u I have my fingers and toes crossed please let us know how ur scans go. I found it interesting u said u ttc in your last month of followup... Ladies I need ur help! I just was told I no longer need any more blood tests or specialists appointments my levels r back to normal!! Yay but I think I still have to wait til march 2011 to ttc, coz that will be the 6 month mark.. Do they just tell u to wait six months for ur body to recover or is that just to cover their bums as doctors? If u know what I mean? I'm a bit confused! I plan to wait til march but now I'm wondering do I really have to wait that long? I know it's only three months away and all... Sarah so lovely to read ur post

Aww thanks hun.

As far as I know, the main reason that they tell you not to TTC during follow up is because it would be difficult to tell if you were pregnant or if it was molar tissue growing back. So if you aren't giving any more samples then I would say that it would be ok to TTC again now.

By the time they realised I had had a partial molar pregnancy it was 8 weeks after my loss and my results had already gone back down to normal by then so I was lucky...but Sheffield hospital still asked me to keep sending in samples up until the 6 month point...I guess every hospital is different.

 

[Jamaris Mummy]

Thanku clo that was very helpful! Yes I think about ttc all the time, my partner thinks we should stick to what the drs are saying and wait until march, so I guess we will all the best with ur results I pray for u they r just fine, I m going to be where u r in a few short months and know how anxious I will be feeling, such an emotional time, but just thinknthis time around u have a sweet little angel up above looking out for you and helping god to make ur dreams come true stay strong sweety in thinking of u!

 

[geministar]

Hello Clo so sorry to hear of everything you have been through I can't begin to imagine how you have felt, but I know from carrying till 12 weeks that it is completely heart breaking to lose a baby and the added worry of it being a MP just adds to the stress.

It is truley wonderful that you have your BFP and the odds are stacked in your favour for you to have a healthly pregnancy and lovely baby at the end of it! One thing I have learnt is that even when you feel so low you have to try and search for that PMA to help get you through! Please let us know how you get on!!

Jamaris Mummy, I'm in the same boat as you...you will have seen from earlier posts that I lost my baby at 12 weeks (8.5 actually) I got my first urine sample result back yesterday which was 0.2, they said at Sheffield that was really good so obviously my 1st question was does that mean I have to wait (I'm an impatient person at the best of times and this is killing me!!) their advice was they will still want to carry on with the urine tests to make sure it stays dwon and my bloods will be being done at 12 weeks. If i was to get pregnant during follow up they wouldn't 'slap my wrist' they would have to monitor me closely. I have thought about this all yesterday and last night but think it may be best just to get another few months out of the way. I know that if I ttc now I would constantly worry that something would go wrong and I would never forgive myself and adding stress wouldn't help the pregnancy and a few months wait is nothing compared to having a healthy baby!!

We have had a little snow in the north west (I'm in Bolton) again not enough to keep me away from work!!!

 

[Clo]

Hello Clo so sorry to hear of everything you have been through I can't begin to imagine how you have felt, but I know from carrying till 12 weeks that it is completely heart breaking to lose a baby and the added worry of it being a MP just adds to the stress.

It is truley wonderful that you have your BFP and the odds are stacked in your favour for you to have a healthly pregnancy and lovely baby at the end of it! One thing I have learnt is that even when you feel so low you have to try and search for that PMA to help get you through! Please let us know how you get on!!

Jamaris Mummy, I'm in the same boat as you...you will have seen from earlier posts that I lost my baby at 12 weeks (8.5 actually) I got my first urine sample result back yesterday which was 0.2, they said at Sheffield that was really good so obviously my 1st question was does that mean I have to wait (I'm an impatient person at the best of times and this is killing me!!) their advice was they will still want to carry on with the urine tests to make sure it stays dwon and my bloods will be being done at 12 weeks. If i was to get pregnant during follow up they wouldn't 'slap my wrist' they would have to monitor me closely. I have thought about this all yesterday and last night but think it may be best just to get another few months out of the way. I know that if I ttc now I would constantly worry that something would go wrong and I would never forgive myself and adding stress wouldn't help the pregnancy and a few months wait is nothing compared to having a healthy baby!!

We have had a little snow in the north west (I'm in Bolton) again not enough to keep me away from work!!!

So sorry to hear of your loss hun x

0.2 is really good! I was with Sheffield too and they kept my on weekly urine tests for the whole 6 months, even tho my first result I sent them was 0 (because it was 8-9 weeks after my loss that they realised it had been a pmp)

I got my bfp 1 week before I was due to end my follow up (oops!) but Sheffield were fine about it. X

 

[Jamaris Mummy]

Hi gem! I know how u feel I am so impatient but have been thinking alot and came to the same conclusion as u and I think it's a good one to give our next bunnies the best possible chance! So when can u ttc again Hun?? I can in march we r on the same road together

 

[Jamaris Mummy]

Bubbies**

 

[geministar]

Thanks Clo I'm hoping that my next ones will soon be 0! It must be a good sign that they have dropped within 5 weeks of having the MVA to remove baby!

Jamaris Mummy - they haven't formally written to me yet to say when we can ttc, but i have taken it from the info booket that they sent me that as my levels have returned to normal with 56 days of losing the baby that we will be on follow up for 6 months from the day that I had the MVA which would end around 21st April 2011 (I'm guessing) Tho Christmas is only a few weeks away so then it will be 4 months off and even sooner for you

I have everything crossed for us all and that the direction we all go in is forward...lots of PMA and a helping of good luck

x