Hey Old Bear- first off let me start out with a book I would recommend you check out. It's called "Living with with Endometriosis". It covers every different kind of Endo, the symptoms many women have, fertility issues, and so much more.
As far as my symptoms... From the time I got my period at 12 years old, it was always extremely painful. I would cry and beg my mom to let me stay home from school the week of my period. She would tell me I was overreacting, that everyone had cramps and that I needed to push through the day. Most days on my period I would try to spend laying in the nurse's office, and into high school, when I could drive, I started skipping classes just because I was in so much pain and bleeding so heavily that it would leak through my pants and I'd sneak out the gym doors to the parking lot and drive home. I can't tell you how many days I would cry in the school bathrooms, both from pain and embarrassment of my constant "wardrobe malfunctions" with my flow. My mom refused to admit there could be a problem and insisted I just get over it, take some ibuprofen, and deal. My education was suffering, my relationship with my mom suffered because of our constant arguing and her making me go to school when I felt I could barely get out of bed.
Fast forward, graduated high school, got a job and my own health insurance. It took me over a year and a half to find a OBGYN who took me seriously. Most of them just suggested I go on birth control, that would solve ALL the problems. I went on several different kinds and nothing helped. Finally, at 19, a doctor recommended I get the laparoscopy. I was terrified, but at the same time so relieved that at least something was going to be done. After the lap., my periods remained awful as far as cramps, but my flow reduced. Beforehand, I would bleed heavily for 7-9 days at a time. Finally, after about the 3rd month, it was like a miracle! My once debilitating cramps were practically gone! I was able to have a normal life and didn't have to plan everything around when I might be in pain or bleeding to heavily. The flow reduced, and my periods were cut down to 4-5 days. I was ecstatic!
Over the next few years, my periods remained completely fine. Once in a while I had a bad few hours, but for the most part I felt perfect! Then, I had a miscarriage at 19 weeks. It didn't happen right away, but shortly after my period returned, the cramps just got steadily worse. I'm really not sure if it had anything to do with the miscarriage, or if more endo was just growing. It wasn't an immediate thing, it got very slowly worse over the next few years. It was like every period got worse and worse. The first few months it was bad I thought, "Oh just having a bad month..." but it never got better. So that's where I'm at now. With every single period it's worse.
There are several different types of endometriosis, actually the areas it affects varies greatly for each woman, so my pain/symptoms may not be the same as what you're feeling, but this is basically what I have going on now:
- Bad cramps about 4 days before AF, worsening as it gets closer
- Day 1 of AF is not awful, usually the flow is fairly light, cramps are bad, and I feel nauseous
- Day 2 I can barely move. It's a chore to get out of bed. My flow becomes incredibly heavy and remains that way for the next 5 or so days.
- I get shooting pains from my abdomen, to my lower back and bum, and shooting down my legs.
- Usually by day 2 I'm throwing up at least once or twice a day from the pain and nausea.
- I will have painful gas/diarrhea through most of the period
- I get depressed and incredibly down because I have to cut almost all activity out of my life for 7 days a month.
- Intense cramps continue for 2-3 days after my period
- Random sharp pains throughout the month, some that make me double over, have to sit/lay down
I don't know why, but somehow I've just learned to accept this stupid disease. I actually plan to be completely useless on the 2nd, 3rd, 4th, 5th and sometimes 6th day of my period. I only have a part time job because I can't be accountable to work more hours, because at some point, my work will interfere with my cycle. Wow, as I type this all out, I realize it is definitely time for another laparoscopy. I'm tired of letting this stupid thing rule my life again!
As far as fertility, I've heard a lot of great results after a laparoscopy. And it was after my first laparoscopy that I got pregnant, the doctors said my miscarriage was totally unrelated to my Endometriosis. So, I think there is definitely hope for us Endo gals, we just might take longer than your average lady.
Again I totally recommend checking out that book, and talking to your doctor. Another thing that's very important and FINALLY made my doctors take me seriously was a journal about my periods. Each day (or sometimes each few hours) I would describe what was going on with my flow, where the pain was at, any other symptoms, and how it was making me feel emotionally. I also kept track of days I had to miss from work, activities with my family I had to miss out on, etc. That way they understood the severity of what was going on and didn't write me off as a "whiny girl with cramps".
Anyway darling, I wish you so much luck, and really hope whatever is going on with you is something more simple and can be resolved quickly! xxxoox