PCOS Club!

[MariaF]

Honey - welcome to the thread! I had a scan for PCOS but it was internal. They basically confirmed my ovaries are covered in cysts. Best of luck for tomorrow afternoon!

I had my first breakdown tonight already they started earlier this cycle - may be because of the higher Clomid dose. My Mum has basically told all her friends about our problems and keep reminding me of ttc every time we speak! She keeps giving advice and tells me to just forget about it and it will happen! Every blooming day its the same! She reduces me to tears and then says I'm being overly sensitive!!! I mean, wouldn't you expect your own mother to understand how you are feeling? So yet after another talk about relaxing I just wept

How on earth can I relax? We are not a healthy couple ttc who can just stop thinking about cycle days etc and then it will happen. I don't ovulate at all!! So I can relax all I want but ill still be here in 5 years! I've told her this 100 times but she does not seem to get it! She laughs at me when I say I don't have cycles - she's convinced it's impossible and I'm exagerating!! I'm really angry with her right now and am considering having a break from speaking to her....

Sorry for the long rant girls but I just had to vent!

 

[sma1588]

maria- im sorry to hear your mom isnt understanding the situation. i think people asume that every women can just get prego as soon as they want to and all it takes is having se. well most dont understand that when we have pcos its sooooo hard and theres alot to understand about it. my mom knows my problem and every time i c her its brought up about whats going to happen and when im going to give her grandkids. i just tell her yes im going to get the historectomy but having kids will happen when they happen because i might not be able to have kids...that way shes not always asking me how its going.........

 

[keepsmiling]

Sma wots this aboutu bein gutted like a fish in 3 years Hun xx

 

[Courtney1020]

Keepsmiling- I believe she is getting a hysterectomy.

Maria- I completely understand what you are saying hun. If you remember, I ranted about the same exact thing with my MIL. Just reading that you have to go through the same thing with your own mother really pisses me off. I absolutely hate it that people do not understand. Like Sma said, they seem to think that all we have to do is relax, have sex and then "wam bam, thank you mam" we are pregnant. It is so aggravating! I am very sorry that you have to go through this Do not feel sorry for ranting to us. It is one of the reasons that we are here

Honey- I have had scans both ways...internal and external. I am a big heavy girl too and I did not have any issues. My bmi is somewhere around 40. I am surprised that so many specialists will not allow you ladies to get any help until your bmi is lower. I am already working my way through a round of injections and I wasn't told that I needed to lose weight

 

[sma1588]

thats when im having the hystorectomy done....im loosing all my female parts so i feel like im going to be gutted like a fish

 

[Ebony_Blaze]

Hi girls

Hope you don't mind if I join in ?

Well my mother is the complete opposite, she NEVER speaks about my ttc issues !
May seem silly but it has really upset me. I was trying to tell her about my last pelvic scan and the fact I had pco and she just wasn't the slighest bit interested, I mean don't get me wrong my mum and I are so close, I love her dearly and we chat like best friends so that's why I'm so confused.
My sisters the same, just feels like no one understands apart from dh oh and of course you girls on here. I have decided to stop talking to my mum about it as she really doesn't understand what I'm going through - again the only thing she has said on the matter is just relax it will happen ! How does she know this ?!!

This is turning in to a rant I'm sorry !

Well if I'm going to rant, I'm sitting here at work and all the girls are talking babies, either had them, having them, first words etc and I know it sounds mean but I just want to say ' shut up ! I don't want to hear about this !'
I don't want to be like that but after hours and hours of baby talk, can't they talk about something else ? My best friend got pregnant in July ( honeymoon baby ) and she knows my situation and she just sits there and talks constantly about it.....

It's just soooo hard and difficult to just forget about it for a day

X

 

[Courtney1020]

Ebony- I'm very sorry to hear that you have to deal with this. No one should have to go through this heartache.

I was just curious what your story was? What testing have you had done? Are you on any medications? Where are you in your cycle?

 

[JDub27]

Hello girls, I would like to join this too. Have been diagnosed with PCOS for 2 years now, we haven't yet started ttc, but hope to around March. The only thoughts that run through my head is what a long journey it could be ttc, but love reading your success stories.

 

[MariaF]

JDub - welcome to the thread Do you have regular periods with your PCO? And do you think you ovulate? Having PCOS does not necessarily mean problems with ttc! I have several girlfriends who fell pretty quickly (within 6 months) with PCOS.

Ebony - I think your Mum NOT talking about it also shows lack of understanding. Like she doesn't acknowledge that there is a problem! Although more and more couples struggle to conceive nowdays it's still completely foreign to those who didn't have any problems. Most women do have cycles - I'll never forget talking to a friend who has 2 boys and her nodding knowingly saying she's been in exactly the same boat with VERY looong cycles! And then she said they were all of 45 days long! So when I told her mine can be 3-4-6 months long she just wouldn't believe me - she said it's IMPOSSIBLE not to have periods for so long

Well, I wish she was right!

Thanks for all your support ladies. I still feel very sad that people closest to me don't understand and I can't talk to them so being able to vent on here is amazing.

Courtney - I think you and me were right - my temps did go down today by more than 0.1 of a degree so hopefully it'll keep going down even further

 

[HopefulOne1]

Hey girls!!

Hope your all ok!!

Had my hsg on the 13th october- wow was not expecting it to be as painful as it was, but apparently the nurses were stumped as to why i didnt feel the dye pump in it just hurt when they pushed the catheter through (sorry tmi)!! But they told me everything went as it should, no blockages or anything which is great BUT still doesnt tell me why I dont have periods or ovulate!!

next FS appt 18th november- provided that OH's results come back ok they are going to start me on clomid??
what are peoples experiences on that??
anything I should be asking the FS about my progesterone while on it??
its constantly low according to my fs so worried if i was to catch on clomid that my bean wouldnt stick!!
Oh the joys of pcos!!

Babydust to all xxxxx

 

[Ebony_Blaze]

Ebony- I'm very sorry to hear that you have to deal with this. No one should have to go through this heartache.

I was just curious what your story was? What testing have you had done? Are you on any medications? Where are you in your cycle?

Hi Hun

Thank you, well I'm seeing her today so will have to see how I get on !

I've been ttc since jul/aug 09
saw gp after 12 months, had sa - fine
swabs and bloods - fine
pelvic scan in sep - showed pco but not the syndrome
gp sent for 2nd sa - awaiting results
first fs app tomorrow !
Hopefully they will explain my scan results as no one has apart from gp callin 10 days with results saying all fine, then 7 days after that calling back saying oh actually you have pco ?!
Thank god I have here which is where I have got all my info from as my doc has been useless, but we though we'd wait to see fs and see how we get on.

Currently on cd18 - cycles are 29 and I get all ovulation signs
buy no bpf as yet

how about you ?

C

 

[sma1588]

its not impossible to not have a period for months...i didnt have one for 8 months after bcp and the nurses were just saying it must b nice to not have 1...y would i want one blah blah blah...then i was talking to OH'S mom who didnt have a period for over 10 years before it just randomly showed up and now has 2 a month sometimes that last 12 days each...not always but most of the time..

 

[HoneyWright]

Thanks for the welcome ladies

Just got back from my scan and it wasnt too bad, the dr was great and put me at ease.

The scan showed that my right ovary is bigger than my left. He said everyone has cysts on their ovaries and the normal range is 10 - 12 and higher than 12 can be an indication of PCOS. My left has less than 10 and my right has slightly more so from a scan point of view he would say I was borderline.

Mmmmm not sure how I feel about that, was so sure after all this time if normal range is 12 than I would have 30.

Will need to wait for my blood results and then I will see the consultant again.

Can anyone remember how many cysts their scans showed?

 

[HoneyWright]

Ebony, so sorry you have to listen to everyone at work. I nicknamed my department the maternity ward today! 2 pregnant ladies and 2 grandmothers to be and all the talk is about babies!! I can put up with it and smile and be excited for a bit but 2 hrs in and I was glad to be off to my scan!

 

[sma1588]

does anybody know what to put on your chart for temping if you miss a day...at this point(cd4) it doesnt really matter much i just dont know if i put the same number in as the day before or not

 

[Ebony_Blaze]

Ebony, so sorry you have to listen to everyone at work. I nicknamed my department the maternity ward today! 2 pregnant ladies and 2 grandmothers to be and all the talk is about babies!! I can put up with it and smile and be excited for a bit but 2 hrs in and I was glad to be off to my scan!

Hi honey wright

I know it's a pain ! I almost feel a bit mean thinking that but there's only so much you can take.
Feeling positive as I have my fs app tom !!

Xx

 

[HoneyWright]

ohh goodluck

 

[Courtney1020]

Sma- just leave it blank...when you put in tomorrows temp, you will see a dotted line connecting yesterday's and tomorrow's temps.

Ebony- it sounds pretty good that you have 29 day cycles. I am just wondering myself what could be wrong. Do you temp? If so, do you get a temp rise to show ovulation? I also wonder if maybe there is something along the lines of you having sperm antibodies. Since your husband has normal and you have regular cycles, then maybe you produce antibodies that kill off the sperm

Good luck with your FS appointment. I really hope you can get some answers

Honey- When I was first diagnosed, I was never told how many cysts I have...to be honest, I was told that I really didn't have any. I was diagnosed with PCOS from my blood tests.

On my CD3 scan this cycle, I was told I had 6 or 7 on each ovary that were less than 6mm, but that was it. So somehow, I have PCOS without the polycystic ovaries

 

[sma1588]

oooo ok

 

[MariaF]

Honey - I think there are rought guidelines around the number of follicles to qualify for PCOS...I think it is around 10 or 12. But usually there are so many that Drs don't even bother counting

Courtney - any sumptoms yet?

sma - what Courtney said. I know some girls only start tempting from CD 8 or so and they do have this dotted line from CD1 to CD8.

Ebony - best of luck for the appointment.

My temp went fruther down today so Im an hoping my FSH is hard at work making those follies grow Only 4 days till the first tracking scan

Have a nice day everyone