Recurrent Miscarriage Thread

[LeeC]

Great new Holly. Hope you get your BFP soon.

Thanks Davies, I thought I was 11 dpo, but after my m/c last month I'm not sure, if I take it from when I got neg test I will be 11 dpo, if I take it from when I started bleeding I am only 8 dpo.

I think I ov'd on the Friday, but it may have been later, perhaps Sunday, my opk's were crazy, I had LH surge for nearly 2 weeks!!!

Either way I stopped the prednisolone today and going to stop the progesterone today too.
I convinced myself I was pg again this month, so many crazy lady symptoms.

I've got cramps now so pretty sure AF is on her way

Claire, good luck for tomorrow

 

[Hollybush75]

daviess3 you should do what I did when my car no longer liked being in fifth gear. I bought a new one LOL

 

[coco84]

Hey ladies! hope you are all well. I have a wee bit of an update, i'm going to see a private Dr booked an appointment today, he will check for physical problems with uterus (which i am convinced is my issue) he is an expert in this area. He can diagnose the smallest of abnormalities via 3D ultrasound.

I'm so excited to be finally seeing someone who knows what he is on about, i have been emailing him and has given some great responses, even if nothing wrong at least it is the final thing i can put to rest before TTC, have to travel from scotland to london though which is a treck. My appointment is 28th June and as this is earliest i can get down there. Loving the no NHS waiting lists already

Davies how are you? sorry about your car, always seems to be one thing after another.

xx

 

[ClaireH]

BFN!

Now I really know what the F stands for.

Miserable - this is the longest I have ever taken to get pregnant! Hope everyone else is doing better than me today xxx

 

[coco84]

aww claire, sorry about the BFN.

My fingers are crossed for you next month. x x x

 

[cindersmcphee]

Claire hope you get a BFP soon.

 

[padbrat]

Hey ladies! hope you are all well. I have a wee bit of an update, i'm going to see a private Dr booked an appointment today, he will check for physical problems with uterus (which i am convinced is my issue) he is an expert in this area. He can diagnose the smallest of abnormalities via 3D ultrasound.

I'm so excited to be finally seeing someone who knows what he is on about, i have been emailing him and has given some great responses, even if nothing wrong at least it is the final thing i can put to rest before TTC, have to travel from scotland to london though which is a treck. My appointment is 28th June and as this is earliest i can get down there. Loving the no NHS waiting lists already

Davies how are you? sorry about your car, always seems to be one thing after another.

xx

Coco I have been told I have a sub septum uterus... is that what you have? I am worried about it too... and wonder if this could be contributing to my M/cs. My Specialist however, is not concerned and says she knows many women who have this and have had healthy babies. However, it could be a factor..... I am also worried about NK cells...

I have one last chance if we have PGD and I want to make sure I leave no stone unturned.

 

[Justkeeptryin]

Hi, I know the septum uterus can be problematic if the baby implants on it but otherwise it is quite common I think. Its a case of fingers crossed that it implants in a good place. Im also worried as I've now had two miscarriages , first at 5 weeks in March and the second at 10 weeks in May. I was originally told I had a bicornuate uterus but after my D&C was told I actually have uterus didelphyis which is two completely seperate uteruses each with their own cervix. Its a worry for me aswell but still dosent explain the early miscarriages, I reckon its low progesterone. I reckon uterus abnormalities are more common than they think, people just dont know they have them as they've had no previous problems.

 

[padbrat]

I can't even claim low progesterone with the last 2 losses as was on 800mg Cyclogest with them.... Mine always die between 8-10 weeks..... we see the baby, all implanted well with a HB and then boom... no HB.

 

[LeeC]

Hi Ladies.

Another BFN, so it's def not happening for me either this month.

Just wanted to update. I had an appt with my gp this morning and she has now agreed to refer me to Dr Shehata as our last option.

As you all may know I misccarried yet again last month despite taking 800mg progesterone, 75mg aspirin, 5mg folate and 20 mg prednisolone from BFP.

I have discussed this with my gp, in particular taking the steroid from ov and the main concern with this seems to be that it may take a while to get pg, meaning that you end up on a high dose of steroid for 2 weeks each month :/ but she agrees that dh and I don't seem to have any problem getting pregnant, so could be worth a try.

I just spoke to Louise Simmonds (midwife) at Shehata's clininc and she was very helpful, I told her I have seen Quenby and was advised to take steroid from BFP and that it didn't work in my latest pg, we talked through my history and previous losses and she is still very optimistic that they can get us our baby and has suggested that we wait now til we get our appt through with Shehata.

I must admit, this will be hard, but maybe I will try 1 more month taking everything from ov, as I did this last week, but maybe wasn't ideal timing following on from a miscarriage and perhaps in hindsight I should have waited for at least one period, as my LH surge was all over the place so I cannot be 100% about ov.

So, I think this is my plan and my last option really.

How is everyone else?

 

[coco84]

Hey ladies! hope you are all well. I have a wee bit of an update, i'm going to see a private Dr booked an appointment today, he will check for physical problems with uterus (which i am convinced is my issue) he is an expert in this area. He can diagnose the smallest of abnormalities via 3D ultrasound.

I'm so excited to be finally seeing someone who knows what he is on about, i have been emailing him and has given some great responses, even if nothing wrong at least it is the final thing i can put to rest before TTC, have to travel from scotland to london though which is a treck. My appointment is 28th June and as this is earliest i can get down there. Loving the no NHS waiting lists already

Davies how are you? sorry about your car, always seems to be one thing after another.

xx

Coco I have been told I have a sub septum uterus... is that what you have? I am worried about it too... and wonder if this could be contributing to my M/cs. My Specialist however, is not concerned and says she knows many women who have this and have had healthy babies. However, it could be a factor..... I am also worried about NK cells...

I have one last chance if we have PGD and I want to make sure I leave no stone unturned.

Padbrat - i emailed him and he said it sounds like i am a septum or possibly scarring on my uterus from D&C's but he will be able to tell form the 3D ultrasound, its very exciting but scary, i finally feel like someone is listening to me and investigation what i feel deep down is my problem, and have had all the other tests so feel this is the last thing i need to do. he is concerned that my perids have not returned, whereas my NHS consultant told me i'm stressed and not to come back for 3 months totally had it with NHS.

The Dr i'm going to see is Dr adrian lower, he works at private hospital in london and his office is around harley st somewhere. His consultation fee is £205 and scan is £250. If you need surgery with him i think its rather expensive though as you have to pay the private hospital fees. you can get an appointment almost straight away. i sent him and email with a brief medical history to get his opinion on my case, he sent a nice email back within the hour.

Hope you are ok padbrat

 

[petitpas]

Lee, if you're looking for something new to try you could ask for low dose heparin to be added to your selection of goodies ahem medicines.
Even if you haven't tested positive for a clotting disorder it doesn't mean you don't have one. There is a lot of research into the topic and the discovery of clotting genes is very recent. They think there are more genes and blood markers yet to be discovered.
And also there is the current discussion about having APS but not testing positive on the currently available test (don't ask me how they would find that out ). That would also be treated with heparin. Just a thought and maybe something you could discuss with your specialist...

Otherwise, big to everyone with bfns
I know I don't come by often anymore but I am keeping my fingers crossed for everyone on here!

 

[LeeC]

Thanks Pip.

I did read an article that suggested that some clotting disorders only become present once you are pregnant so I would go along with this, what the hell, I haven't got anything to lose anymore.

We are just deliberating taking a break for a while, I'm feeling pretty exhausted with it all tbh right now, but probs just one of those days.

How are you doing? I'm looking forward to reading all about your success story x

 

[Hollybush75]

Oooh reading this reminded me of something my consultant said to me when he saw me a few days after I found out I was pg in May. He was going through the drugs he was prescribing and when it came to the Clexane he said that fifteen years ago the medical profession barely knew about clotting disorders and pregnancy. He said that who knows what another fifteen years down the line will discover! I'm still so very pleased I have him as my consultant

 

[LeeC]

Hi Holly.

He sounds wonderful. It is nice to know that not all medics/professionals are such cynics. I seen an awful gp last week, who told me it was all a load of rubbish and that none of it obviously worked, that was just before the, why don't you give up and adopt comment. I was so mad with him.

Luckily, my usual gp is back this week and she is just so lovely, she gave me my referral to Quenby and when I told her about my latest loss she did not hesitate to refer me to Shehata either.
She said, she is learning all about this from me and is very interested and keen to help in anyway possible, she said she would not dismiss anything.
I made her aware that I was perhaps going to carry on taking everything from ov and although she admitted she could not advise, she did seem to indicate that it's worth a try for me. She even called me after the appt to let me know she had sent the referral letter.

It's so refreshing. There are so many pig headed professionals out there. I've spent years dealing with them. I think we are both lucky to have the support. It really does help.

Well, AF showed up this morning for me, so just need to decide if we are going to have a break for a while or continue ttc on the steroids and meds from ov.
DH and I have a lot of talking to do this weekend.
Maybe a break and a bit of fun would do me the world of good, I just don't know anymore, although I do know one thing, I will be def be having a few glasses of wine tonight.

Hope everyone else is doing ok x

 

[petitpas]

Hollybush, that's exactly it! Factor v leiden mutation, which is what I have, was only discovered in the 90s. My doctors still think there is something else going on because even with one FVL gene I should not have had all the clotting problems I suffered.

Lee, thank you for your thoughts! I'm so hoping this is going to be my take home baby but at 7 weeks it's still too early to breathe a sigh of relief. I keep visualizing the view from my last scan with a little heartbeat bopping away in order to calm myself down when I feel a panic coming up. I'm just about holding it together... it did help to have some extra time before this pregnancy to destress my lifestyle a little bit.
As for you taking a break, only you and your husband can make that decision and it isn't an easy one how much time were you thinking?

 

[ClaireH]

Lee, why don't you try not trying, not preventing (or whatever the phrase is)? Throw the OPKs out, relax, enjoy yourselves and see what happens... I totally understand the stresses of it all, the waiting and testing and pill popping. It can be too much for anyone, nevermind with the sensitive disposition of a recurrent Mc-er. Only you know what to do. Just don't listen to the idiot docs that say give up.

Peptipas, so exciting to read you post - 7 weeks! My docs have always said that 8wks is the real milestone so just one week to go. Woo! xxxxxxx

 

[petitpas]

Thanks, Claire! I hope I can relax a little if all goes well at my 8.5 week scan!
I've had a heartbeat at 8 weeks before but am convinced it was too slow especially as the baby stopped growing the next day...
Hoping hoping hoping this bubs is my graduation bubs. Not that I don't love ya all in this thread

 

[coco84]

10 long weeks and the witch finally arrived!!!!! never been so excited to see her finally back to TTC. x xx x

 

[petitpas]

Woohoo!!! Fingers crossed, coco fxfxfxfxfx