Recurrent Miscarriage Thread

[Hollybush75]

Thank you thank you thank you!

Its three gp's and a consulant who said no to progesterone testing! The tax I pay every month I should get a gp to myself! They said that its not proven hence not a standard course of treatment.

Hollybush did all ur tests come back clear? I like to be forearmed when talking to dr's now... they like to maintain bad luck and little explaination. Can you tell im bitter. Sorry ladies!

My consultant has told me that all treatment will be done empiracally and that yes it's not really proven however it CAN help. I have been warned that none of it may work however it's worth a try.

I didn't have RM testing as such. I lost my 2nd pregnancy at 18 weeks so I was tested for antiphospholids after that one which came back clear. I then had lots more blood tests at my GP as it was taking us a long time to conceive PG#3 - they all came back as normal apart from the thyroid function test..........however as it wasn't overt hypothyroidism I was denied treatment. I got my BFP on PG#3 in April this year, went straight under consultant care, HB seen at 7 weeks but at same time he spotted my subclinical hypothyroid diagnosis and ran another TFT - 2nd reassurance scan at 10 weeks showed baby was dead and my thyroid levels had got worse. Had to be referred to an endocrinologist who started my thyroxine treatment in September. We're banned from TTC until my levels return to normal. Even though the endo told me point blank he believes my miscarriages were NOT due to my double-than-normal TSH I prefer to think that as my body was struggling to keep me going on the thyroxine there was no way it could keep a baby going too. We also had chromosome testing done on baby#4 and on ourselves which gladly came back as normal.

So if it doesn't work next time then I can only put it down to bad luck.

 

[Rowan75]

hullo ladies

so sorry everyones in this position - it sucks!

Ive heard different advice about investigations of mc - some nhs staff have advised only after 3 mc but I know some ladies over 35 have had investigations after 2 mc - have you all had to wait until 3 mc? At the moment (although its unlikely Ill get bfp again without fertiltiy treatment and our clinic has taken us off the books and I need re-referring) I cant bear the idea of being pregnant again as I cant see it ending in another way than mmc - our 2 poppets died at exactly the same stage to the day

hoping everyone finds answers soon x

 

[Rhi 778]

hi

i went for RM testing this week through NHS after 2 early M/Cs (5 and 6 weeks) - I am 32 yrs old.

not all hospitals will see you after 2 but luckily my local hospital agreed to. My GP was fantastic and referred me as we had some issues conceiving.

I get my results on 13th Jan (no idea why it takes 6-8 weeks to get the results?)

thinking of you all
xx

 

[LunaBean]

I had mine done on 5th Oct and waiting to get results on tuesday, tho the hosp rang last week saying they still werent back, so they better be there on tuesday!

 

[Rabbittchild]

hi all,

Rhi 778 - If you had chromosomal testing, they take a long time to come back from the lab but the other blood tests should be fairly quick.

Rowan - I was initially referred after 2 miscarriages by the Dr at EPU as I think she felt sorry for me! Sadly I had 2 more miscarriages before my appt came through.

AFM - Still waiting on results of my RM tests... Need to get an internal scan sorted out and the stupid secretary hasn't got back to me. So frustrated as we go on holiday in two weeks and I want everything sorted before we go so we can book to see Mr Rai for when we get back. Hopefully then we will know if anything is wrong and get a plan together for future pregnancies. Although I believe if they find nothing we just have to keep trying and hope for the best.

Am so bored with not TTC and am on CD52 wish AF would hurry up. I'm quite worried as before my cycles returned to normal immediately and this extra long one has me concerned.

 

[Hollybush75]

have you all had to wait until 3 mc?

I had the APS test done after my 2nd mc but only cos I was 18 weeks gone when I lost the babies.

I went to the GP in Jan this year as my periods were becoming very strange and erratic so they ran lots of blood tests and sent me off for a scan of my womb/ovaries etc. Everything was normal apart from the thyroid function.

When I lost my daughter in May there was no need to do any tests because they had already been done, plus my consultant had already told me what he plans to do on the next pregnancy

 

[Shashy]

Well I lost one at 15 weeks in July, then Got pregnant again, lost the baby this time at 6 weeks. All the tests have come back negetive, but I keep thinking they are missing something. I know I haven't had as many as some....the 15 week one did a number on me. I don't appear to have issues with Conceiving just carrying? Is there anything anyone can suggest. I take my vitamins, I'm not a smoker, and I have a almost 8 year old. I finally have met a man that I want to have a baby with, and this is happening.....any suggestions?

 

[Hollybush75]

My thyroid problem is now under control. I had my follow up appointment today after being on meds for 10 weeks and my TSH has dropped from 11.1 to 5.24 and the FT4 has increased from 10.0 to 20.1



I was also told that this means we can start TTC again whenever we want



We're going to leave it until the New Year then hopefully I will be able to pop back in here from time to time with updates/news to give others hope, just as others have done for us

 

[Rowan75]

yey hollybush - sending babydust your way!

saw my Dr and consultant today - def not allowed tests until mc number 3 oh well - it was worth a try x

 

[Rabbittchild]

Awesome news HollyBush I wish you all the luck in the new year when you start TTC again

Rowan - Am sorry your Dr won't test you I hope you can find someone to help you

Sashy -am sorry for your losses. I don't really know what to suggest. My consultant has said to me that my 4 losses could just be bad luck/random. I do the same am non smoker, non drinker, take vits etc, weight is fine the only I think i've done is cut out caffeine - I don't think there is anything else you can do other than if you've not had the test for uterine natural killer cells, maybe try to find a Dr that will test you - I know some of the ladies on here have had success with being treated for that.

AFM - Pelvic scan tomorrow and then the wait til the follow up appointment when we get all our results. Still no AF

 

[5littleangelz]

hi every1 im new here.
just wanted to say i am so sorry for all you losses.
I have had 5 mc's so far!! still ttc had loads of blood work done just waiting for the results on 22nd hopefully gd news!
Anyhoo i have been taking baby asprin apparently it helps from the start so started it 2 wks ago and i am now 4 days late and getting all the symptoms again but no positive result on test which is not unusual for me my hcg is normally low and then I get the result then gone to heaven!
got a good feeling tho so im praying this is sticky and have been doing nothing just sat on my bum resting loads hoping it helps so we'll see.
Wish u all the best of luck and happiness
xxx

 

[stay.positive]

Hi Everyone,
I thought I would join in here. I have just found out that I have had another MMC. This is my third miscarriage (2 MMC @ 8 wks and 6 wks and one MC @ 5wks), all three taking place in the last 7 months. It feels like such a terrible rollercoaster. I am 33 and I don't have any kids and I am starting to question how much longer we can try and stay sane. I will have a DnC on Monday and we have sent in our blood work for karyotyping. I don't think we will really be able to get started with testing until the new year at this point. It takes about 6 weeks to get into to see my gyne anyway. Probably this is good just to take a break over Nov-Dec and then hopefully we will have the energy to carry on.
What are the basic tests that they usually do?

 

[LunaBean]

Well I got all my recurrent miscarriage test results back, all normal Being referred to a fertility specialist now at a different hospital, but there's a 12 month waiting list for an appointment *sigh*. I'd hoped there was something wrong so there was something to fix

 

[Hollybush75]

Oh LunaBean, I feel for you. Outrageous length of waiting list though. Can you consider going private?

 

[LunaBean]

I really couldn't afford it, it's £1,500 just for the initial consultation, a scan on my womb and a blood test Guess I'll just hafta keep trying and hope one sticks!

 

[stay.positive]

I am sorry to hear that they weren't able to find anything Luna. Were you ever able to have the embryo tissue tested?

 

[LunaBean]

I never got far enough, never past 7 weeks

 

[ninamama]

Hi everyone, I am Nina, Sorry for all your losses. My story is Im 29, Ive had 2mc and an ectopic in the last 18 months and am currently waiting for hcg levels to confirm another mc. My pregnancies and mc's have all been identical. I get heavy symptoms a few days before my period so I test early and always strong lines. Then at roughly 4 1/2 weeks, I start spotting lightly, my blood comes back within the margins ok, but low and doubles slowly, again within the margins. Then the symptoms fade and the spotting gets worse and I mc around 6 wks. This leads me to believe that there is something wrong either genetically or hormonaly. I have just moved to the States with my husband and his health insurance doesnt cover fertility treatment. So I am trying to research as much as possible myself. Has anyone had similar experience as mine?

 

[stay.positive]

I hope you get the answers you are looking for Nina. My experience has been a little different but I am sure there is someone on here who has gone through something similar to you.

 

[Round2]

Hi everyone, I am Nina, Sorry for all your losses. My story is Im 29, Ive had 2mc and an ectopic in the last 18 months and am currently waiting for hcg levels to confirm another mc. My pregnancies and mc's have all been identical. I get heavy symptoms a few days before my period so I test early and always strong lines. Then at roughly 4 1/2 weeks, I start spotting lightly, my blood comes back within the margins ok, but low and doubles slowly, again within the margins. Then the symptoms fade and the spotting gets worse and I mc around 6 wks. This leads me to believe that there is something wrong either genetically or hormonaly. I have just moved to the States with my husband and his health insurance doesnt cover fertility treatment. So I am trying to research as much as possible myself. Has anyone had similar experience as mine?

Hi Nina,

Sorry for your losses. My experiences have also been different. I tend to miscarry after the heart starts beating. But I just wanted to ask, have you had your progesterone tested? I've been researching causes of miscarriages at diffferent weeks and there seems to be a strong link between very early miscarriages (4-6 weeks) and low progesterone. Just an idea.