Recurrent Miscarriage Thread

[LeeC]

Hi all.

I had blood work done along with dh in November and am still waiting for the test results back. They say it can take upto 8 weeks to get results back for the chromosomal testing.

Anyway, I found out last Thursday that I was pregnant again after suffering recurrent miscarriages, I've never managed to carry a pregnancy full term.

Yesterday I started spotting again and have terrible back pain (like sciatica) this is common for me so I am fearing the inevitable yet again and just holding on to the chance that maybe this time, things will work out differently.

I have called EPAS but really all they can do at this stage is test hormone levels in blood and I really don't think I could face going through it again,

I was wondering if anyone else who has suffered recurrent miscarriage very early in their pregnancy had eventually had any success. I always lose my little babies at around 5/6 weeks, always the same pattern too with god awful sciatica and spotting.

It's so hard to carry on ttc, my heart feels like it's breaking and it just seems so unfair, every time I promise myself I won't get my hopes up, as I tend to get pregnant very easily (still trying to figure this last one out!!!) but it's hard not to and I feel like I can't do this anymore, although I know that I am feeling particularly raw right now.

I can't wait to get my test results as I'm hoping for some closure, but not sure what happens from there, or what happens if everything comes back ok.

I've tried progesterone and baby aspirin on the advice of my specialist in my last 2 pregnancies.

It's just so frustrating and sad.

Much love to everyone on this forum x.

 

[fifi-folle]

I was wondering if anyone else who has suffered recurrent miscarriage very early in their pregnancy had eventually had any success. I always lose my little babies at around 5 weeks, always the same pattern too with god awful sciatica and spotting.

Sorry you are going through this. I too have had 4 m/cs around 5 weeks and am now 13+2 and going for my scan today. The tests all came back clear for us, and the only thing we're doing different is taking baby aspirin.
Really hope this is a sticky baby for you x

 

[padbrat]

I hope that this one is a keeper for you LeeC!

I had exactly the same issue with consultants not giving a monkeys about my lost babies... even the RMC was crap...and then I got referred to an Obs consultant at Frimley Park who has listened and backed us all the way and has really helped us... she has put me on high level Folic acid and when I fall pregant again (like the positivity?) I am on progesterone, baby aspirin and heperin all together...

Just gotta get up the duff now... be hard with my duff eggs...

 

[LeeC]

That's great news about your pregnancy, it's so difficult to carry on but I keep hoping one day will be the right time for us too.

Although it's not looking very good for me again, I still have all the symptoms so far, it's like my body wants to torture me even more.

Will keep you posted and big THANKS.

I'm happy I've found this forum, makes you realise you are not alone.

 

[LeeC]

Thanks P.
Here's hoping you get your BFP soon xxx

 

[Rabbittchild]

LeeC I've had 4 (will be 5 soon) mcs all around 5-7 weeks and I'm hoping the next one will be sticky!

I hope this isn't another mc for you and I hope we all get some success soon

 

[Rabbittchild]

Padbrat, if you don't mind me asking what is the name of your consultant at Frimley? I go to St Peters for my EPU but I'm in the catchment area for Frimley and might be worth asking for a referral. Always good to know the decent local Drs!

 

[LeeC]

Awww Rabbitchild. I'm sorry to hear that. It's just horrific and it doesn't matter how many times you go through it, it never get's any easier
It just seems so unfair but hopefully we will get our day soon and I know it will be worth all this heartache.
Sending you hugs xxx

 

[Wobbles]

Sorry LeeC that got caught in the filter as you see but I noticed it as it happens ...hope we've not confused you too much x

 

[Tasha16]

hi lee i hope it all work out fine 4 u, fifi congratulations hun. I have had 4 mcs n 1 ectopic all round 5wks, i have had all the blood tests my hospital can do n all r ok yet they have told me 2 try aspirin next time i get pregnant n if that doesnt help then they will send me 2 another hospital that looks in2 recurrent mcs. I wish everybody loads of luck x x

 

[padbrat]

Padbrat, if you don't mind me asking what is the name of your consultant at Frimley? I go to St Peters for my EPU but I'm in the catchment area for Frimley and might be worth asking for a referral. Always good to know the decent local Drs!

yeah sure, her name is Dr Ann Deans, she is a Consultant Obs....I found her so straight to the point, helpful and always willing to explain in jargon free language what the hell is going on... she actually will prescribe medication and will even phone you back if you leave a message! I would recommend her....she is the first one to actually listen to us.

 

[LeeC]

Hi All. This is so spooky my dh just came in and brought me the post and my test results are back, just after I was talking about it earlier.
It say everything is normal with all blood tests.
I have to say, I just broke my heart, not sure why, but I am so frustrated now, if there is no problem then why does this keep happening.
Surely if I'm now going through another m/c, that can't just be bad luck, anyone had a similar experience.
Arghhhh!!!

 

[Rabbittchild]

Thanks so much Padbrat, that's really helpful.

LeeC - did you have a test called a thromboelastogram? that can sometimes show that you have clotting issues that the other specific clotting tests don't show up. Not all places test for it but it's worth seeing if you can get it done as problems can be easily fixed with aspirin or heparin if needed. I'm sorry about your news, on one hand it's a good thing but I know its almost better to have a problem that you can fix.

 

[LeeC]

Thanks Rabbittchild.

The letter said we were tested for chromosomal and I was tested for abnormalities in the blood clotting system, not sure what the exact tests would be.
I've tried the baby aspirin in my past 2 pg's as soon as I got my BFP.
Not really sure what to do now, just carry on ttc I suppose.

It's hard work keeping positive, Once this m/c has passed hopefully I will feel stronger.

Thank you again x

 

[padbrat]

No problem Rabbit... let me know how you get on with her...

Yeah I seem to have been tested left right and centre and no none of my results... except that I am normal except for my genetic problem.... In a way very frustrating..

LeeC it is so hard to stay positive... after being told that I am still ovulating but my eggs are duff and it is too expensive to use my sis's eggs I am now consigning myself to the fact that the universe is telling me I am not meant to be a Mum..

 

[petitpas]

Padbrat I have a feeling life has a happy surprise in store with you. Don't give up just yet!

 

[petitpas]

Change of plan for me btw. I took all of lamb's excellent advice and put it into practice. Then by a stroke of extreme luck I was offered someone's cancelled slot with Professor Regan TOMORROW!
I stayed at work until 8.30pm to get my questionnaire completed and emailed back to the secretary but now I suddenly think I am not prepared. What on earth should my questions be besides a cry for help? I've been tested for lupus (negative), karyotyped (normal), am a known clotter (but killed off two heartbeats whilst on heparin and aspirin), have ok hormone levels (including progesterone whilst pregnant). The only tests I haven't had are the TEG one but I'm still on heparin now so not sure that'll be accurate. And the nkcells, but I keep reading that they don't quite believe in them at the clinic...
Sorry, just feeling a bit panicky and unprepared although still excited!

 

[padbrat]

Padbrat I have a feeling life has a happy surprise in store with you. Don't give up just yet!

awww...if wishes came true... we would not be here and we would never have met... always a silver lining eh Petitpas

good luck today chick... let us know what happens!

 

[Razcox]

Good luck today Petitpas and update us on how you get on xxx

 

[stardust22]

Brilliant news petitpas! cant wait to hear how you got on.

Bad news my end. I should be 5+4 today and I have been doing regular tests to see progression and my clearblue digital has stayed at 1-2 weeks for over 2 weeks now and yesterday it took ages to come up and should in theory be 3+ but it was still 1-2. I tried with FMU today and it said NOT PREGNANT and also a first response and the line has gone. I am still not bleeding and no cramps but its just a matter of time.

Does anybody know whether I should just stop using the clexane and aspirin today even before I bleed. I was planning to use aspirin but stop the injections. I cant be bothered to call EPU I am just so sick of that place. (this is my 4th loss but first one since using the aspirin and clexane)
Thanks