Recurrent Miscarriage Thread

[Razcox]

So sorry for your loss stardust, i think i would prob just stop eveything if you are going to MC. Dont want to have anything in your system that may make the bleeding worse is my thinking.

Huge for you hun x

 

[Lamburai1703]

Oh Stardust I am so sorry. I would still ring the EPU and demand an internal scan and some bloods to see what is going on. I stopped the heparin last time when I got a blood result that had plummeted, but neither of them will stop you bleeding like progesterone would. Good luck honey.

 

[padbrat]

Oooo Stardust. So sorry....

I would call your doc and ask what you should do. I wouldn't stop the medication until I had spoken to a health professional and got advice...or maybe call NHS Direct?

 

[Rabbittchild]

Stardust - am sorry to hear your news, I agree with the ladies here, phone your Dr/ go to EPU before stopping anything and as Lamburai said a scan to see what's going on is a good idea.

Petitpas - good luck with Prof Reagan today, I hope she has some solution for you. Seeing as St Mary's seem to be all about the clotting issues maybe she has some trick up her sleeve regarding dosage or types of heparin etc. fx'd it goes well for you.

LeeC - first time I tried aspirin it was on 75mg, but I need to take 150mg which I took this pregnancy so maybe a change in dose might help you out?

Padbrat - I hope there is a way through this for you

AFM - still awaiting the dreaded scan tomorrow.

 

[LeeC]

Hi Guys

I've been humting around the internet, like I'm sure we all do and also spoke to EPAS clinic again this morning as unfortunately my bleeding is looking pretty conclusive now.
I expressed my concern that the tests they carried out came back normal, and the nurse I spoke with said that aspirin wouldn't help me if my tests were normal.

I explained that the letter said to call when I get my next BFP, but that after all my miscarriages now, there is no way could this just be bad luck.

I asked her about NK testing and possible low progesterone, as I always miscarriage very early.

Does anyone have any experience of the steroid prednisone and how it should be taken, success rates etc, bearing in mind Ihave not had any test, is this any form of medication that can be taken as it won't do any harm or could it be dangerous in pregnancy if not tested.

Hope this makes sense I am rambling a bit here, lack of sleep, due to worry last night!

Also, regarding progesterone, I tried this once before but only when I got BFP and now I am reading that it should be taken from ovulation, it worked for someone I know in that way, again any experience anyone?

Rabbittchild: I had heard this about baby aspirin and was thinking about increasing the dosage, I'll speak to my gp when I get my next BFP, thanks for the advice

I feel like I am clutching at straws now, but need to keep going until I've exhausted every avenue.

Life just seems so unfair and cruel, but here's hoping that we all get the happy endings that we deserve.

Sending love and baby dust to everyone xxx.

 

[LeeC]

Apologies about the typo's ladies.

One more thing, there is just so much conflicting info on the internet, it's hard to know what to do, even the professionals can't seem to agree.

It only adds to the confusion grrrr!!!

x

 

[LeeC]

Padbrat, keep positive, I really know what you're going through, it's so hard.
I've had the conversation with dh about just giving up and resigning ourselves to the fact that it's not meant to be for us, but tbh, I can't accept this yet and thinking it will work out in the end gives me the hope and strength to get me through these horrific times.
You never know what life has in store, sending you loads of hugs and best wishes. xxx

 

[Rabbittchild]

LeeC I don't have any advice on the steroids but I'm sure someone else here can advise you. I hope your GP can help you out, there is so much conflicting advice its so hard knowing what to do

 

[padbrat]

awww LeeC... I so admire your determination and strength. This is a horrible time for you and you are trying to give me hope... make me feel very humble.

Thank you all x

promise I will be more myself soon.

Extra thanks and hugs Lambs xx

 

[Hollybush75]

LeeC I can't comment on the prednisone however I'm due to start that when I get pregnant again. My consultant advised that anything given to me during the pregnancy (he's got me down for Clexane, baby aspirin, progesterone, hcg injections & prednisolone) is all done empirically <---his words from his letter not mine and will not guarantee a successful pregnancy (covering his own back I guess) however it's worth a shot and I agree with him.

I have a friend who was prescribed steroids through her pregnancy and her daughter is now 6 months old.

I'm sure there's plenty of ladies on B&B who've had this treatment too.

 

[Chilli]

Stardust - words can't say

Hoping and praying for you other girls waiting for your pgs to progress. I have a good friend who lost at least 3 babies with no explanation and is crrently nursing a 4 month old so miracles do happen

Petipas - wow, that phonecall worked for you then. Best of luck for tom, will be very interested to hear how it goes.

Can anyone tell me the dosage of steroids for Nk cells - I'm planning to approach my gp armed with what I want!

 

[Lala1976]

Hi Girls! I'm new to BnB and hope it's ok to join this thread.

I had my 4th miscarriage on December 19th. I was 8+4. I feel all your pain and anguish! Finally, after talking to my doctor, they are referring me for recurrent miscarriage investigations. Yesterday I had the lupus anticoagulant test and also the anticardiolipin antibodies test. I have to go back in another 6 weeks for a repeat and then I'll finally get to see a specialist in 3 months! 3 months?! Why do these things take so long Has anyone else had these tests??

I have PCOS and although most women have difficulty conceiving it seems I do not. My pregnancy doesn't stick and I always miscarry between 6 and 8 weeks so when I got to 8+4 I was feeling really hopeful. DP and I are devastated.

It's been 4 weeks almost and on Monday my Beta HCG was at less than 1 so I guess I haven't conceived again! Although it would be wonderful to conceive again so soon I think i'd be putting myself through too much and I'm better off waiting until i've gone through the investigations.

Positive notes on a postcard please!

Lara x

 

[Lamburai1703]

Hi Lara,

Sorry for your losses. I am struggling with positivity myself today and just oozing with envy for everyone who is pregnant. I don't like myself very much today.

Normally I at least try and muster up some positivity, but not having a good day.

I agree to waiting for the test results, but be prepared that they may not show anything. I wish you all the best though lovely.

 

[Rabbittchild]

Just a quick update ladies, I had another follow up scan and whilst the sac had doubled in size there apparently wasn't a foetal pole present (we thought there was as the sonographer was confused and put down on the report that there was a foetal pole of 3mm which she then changed) so they're confirming it as a miscarriage but to cover their butts want me to have a follow up scan in two weeks. Hopefully I will have started to bleed by then, I wasn't really shocked, tbh as I was expecting bad news but am just fed up of it, I want this pregnancy to be over and I want to try again.

 

[Razcox]

So sorry rabbittchild x Is there no way you can go back in a week or less to see if there is growth rather then waiting two weeks? Seems a bit long to me.

 

[Rabbittchild]

Hi Razcox, i think it's cos the sac is still measuring 5 week sort of size despite me being 7+5 so they want to give it two weeks to make sure as that would give plenty of time to grow if it's going to, but as the Dr said to me it is a miscarriage and the follow up scan is to triple check. I don't want to have an ERPC so would be waiting anyway for miscarriage to happen. I just wish it could be over quickly.

 

[LeeC]

I know what you mean Rabbittchild, I just want this m/c to end so we can try again with differnet combination of drugs, my boobs are still so sore, wish it would all just go away...

Lara, be prepared for it to be normal, mine were, despite 6 miscarriages, it's very frustrating and sad... I hope things work out for you.

Hope we can all stay positive and get our little miracles soon xxx

 

[Lala1976]

Thanks Ladies!! I've heard so many say that they can not pinpoint a reason for the miscarriages. I will prepare myself for the same outcome!

Rabbittchild, I'm so sorry. My thoughts are with you.

Lamburai, I know its hard to muster up positivity... maybe we can help each other? I've been desperate for a baby for 10 years now... it's all i've ever wanted.

Good luck everyone x

 

[lightweight]

Does anyone have any experience of the steroid prednisone and how it should be taken, success rates etc, bearing in mind Ihave not had any test, is this any form of medication that can be taken as it won't do any harm or could it be dangerous in pregnancy if not tested.

Hope this makes sense I am rambling a bit here, lack of sleep, due to worry last night!

Also, regarding progesterone, I tried this once before but only when I got BFP and now I am reading that it should be taken from ovulation, it worked for someone I know in that way, again any experience anyone?

Hi

I was diagnosed with high natural killer cells and a prothrombin gene mutation. The advised course of steroids, was to start taking them at ovulation and continue until AF (when you should stop) or if you get BFP to continue until 12 weeks when a reducing dose will be started.

I actually had my appointment with consultant in recurrent miscarriage clinic 3 days after getting BFP so I was started on prednisolone immediately and although they said it wasn't ideal - it worked - and I'm now 26 weeks pregnant!

The only side effect I was warned about for baby was that there was an increased risk of cleft palate. side effects for mother are that you get tired, irritable and can't sleep (they tend to make you wide awake in middle of night for no reason) - and I'm glad mine worked without having to take them for any longer as side effects weren't that pleasant!

 

[stardust22]

Hi Girls! I'm new to BnB and hope it's ok to join this thread.

I had my 4th miscarriage on December 19th. I was 8+4. I feel all your pain and anguish! Finally, after talking to my doctor, they are referring me for recurrent miscarriage investigations. Yesterday I had the lupus anticoagulant test and also the anticardiolipin antibodies test. I have to go back in another 6 weeks for a repeat and then I'll finally get to see a specialist in 3 months! 3 months?! Why do these things take so long Has anyone else had these tests??

I have PCOS and although most women have difficulty conceiving it seems I do not. My pregnancy doesn't stick and I always miscarry between 6 and 8 weeks so when I got to 8+4 I was feeling really hopeful. DP and I are devastated.

It's been 4 weeks almost and on Monday my Beta HCG was at less than 1 so I guess I haven't conceived again! Although it would be wonderful to conceive again so soon I think i'd be putting myself through too much and I'm better off waiting until i've gone through the investigations.

Positive notes on a postcard please!

Lara x

Hi Lara, Welcome to bnb and to this thread, I wish you wasnt having to be here though.

So sorry for your losses. I know just how heartbreaking it is. Today I have started the process of my 4th miscarriage. I am only 6 weeks this time. i dont mean to say that like it is nothing but 2 of my 4 mcs have been 10 and 12 weeks and I have seen perfect beating hearts, only for them to die before my 2nd scan.

I have been referrend to a specialist and had all the blood tests you mentioned, inlcuding a karyotyping test which me and my hubby both had to have. Before my app came I got pregnant with this 4th one and got seen urgently because most of results were on the computer system and I felt if there was something I needed to know before the app then we could action it, It turns out that I was positive to the thromophillia screen, sticky blood is what everyone calls it. I was put on aspirin, clexane injections and progesterone at 4 weeks. The consultant wasnt overly happy that I didnt wait until all the results were back but he was very nice and gave me all he could to help this one work out. As you can see it hasnt!! but I think this was one that wasnt meant from the start. because my HCG has never gone up correctly. Part of sticky blood problem is often once a heart beat has been seen the loss occurs after this point, so it could explain my losses to be after 8 weeks and up to 12. I am now waiting to go back in Feb or March for the karyotyping result. I am sorry to ramble on here.

I just know that when you are in our situation it is helpful for people to give as much info that may help some one else!

If you have any other questions, please send me a personal message or just write on here, I have nothing to hide and will gladly tell everyone everything LOL!!

Hi Lara,

Sorry for your losses. I am struggling with positivity myself today and just oozing with envy for everyone who is pregnant. I don't like myself very much today.

Normally I at least try and muster up some positivity, but not having a good day.

I agree to waiting for the test results, but be prepared that they may not show anything. I wish you all the best though lovely.

Aw hun sorry you are having a bad day, its weird, I used to call mine good days and bad days, I now call them bad hours and good hours, its got that sporadic now!!!

Just a quick update ladies, I had another follow up scan and whilst the sac had doubled in size there apparently wasn't a foetal pole present (we thought there was as the sonographer was confused and put down on the report that there was a foetal pole of 3mm which she then changed) so they're confirming it as a miscarriage but to cover their butts want me to have a follow up scan in two weeks. Hopefully I will have started to bleed by then, I wasn't really shocked, tbh as I was expecting bad news but am just fed up of it, I want this pregnancy to be over and I want to try again.

Words can not say how sorry I am. We are all suffering so much and its just not fair.

I wish there was something I could do or say.
x