Reflux Help & Support Thread
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Farie
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Arghhhhhhhhhhhhhhhh
Vomiting like a pro today and not at all happy, reflux seemed to be bother her as she was coughing and getting red watery eyes and we have discovered allergic to strawberries - she has herbal camomilla with natural strawberry flavour and after having it she gets lethargic, huge purple cycles under her eyes, awful breathing and for the last 3 days has had watery poo, literally coloured liquid that soaks into the nappy.
Need to call paed again tomorrow and check about it all as the poo is really weird and I think for whatever reason the erythromycin is not working so well anymore. She was literally puking for over an hour after eating today and yesterday was just as bad.
She also totally refusing any solids at all so I've had to go back to giving her the Losec on puree on my finger. Since Easter shes just had no interest at all
Arghhhhhhhhhh
Vomiting like a pro today and not at all happy, reflux seemed to be bother her as she was coughing and getting red watery eyes and we have discovered allergic to strawberries - she has herbal camomilla with natural strawberry flavour and after having it she gets lethargic, huge purple cycles under her eyes, awful breathing and for the last 3 days has had watery poo, literally coloured liquid that soaks into the nappy.
Need to call paed again tomorrow and check about it all as the poo is really weird and I think for whatever reason the erythromycin is not working so well anymore. She was literally puking for over an hour after eating today and yesterday was just as bad.
She also totally refusing any solids at all so I've had to go back to giving her the Losec on puree on my finger. Since Easter shes just had no interest at all
Arghhhhhhhhhh
stardust599
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Farie - I'm sorry Nim isn't doing so good just now 
She'll get there hun, just remember she won't have it forever! Macy is doing fantastic thanks, she did have a sickness and diarrhoea bug for a whole week but reflux-wise she is doing brilliant. We've had no symptoms or flare-ups for ages now and still gradually weaning off the omeprazole - down to 12.5mg now, going to go down by 1mg every 3-4weeks. She's doing impressively with solids too, finish over half a jar of stage 2 at most meals now! And enjoying and coping really well with finger food.
She's also really enjoying her milk at the minute - around 5ounce bottles every 4hours, she's stopped sleeping through the night though so we are dreamfeeding at 11pm and then she's waking around 4.30-5.30 for a feed and being a nightmare to get back to sleep.
My OH is away for a week from today so I'm hoping we have a good week! xx
Kelly - I'm sorry the cranial osteopathy didn't work but I'm glad that you've got sorted with new meds, hope they make a big difference to both of you
We have always given Macy's her omeprazole on an empty stomach about half an hour before her bedtime bottle as she always used to be most uncomfortable over night. I'm going to have to change it though as we're about to start giving her porridge as supper before bed so her tummy won't be empty anymore. Will probably give it about 10.30am as she'll not have had anything to eat since breakfast and gets the next bottle at 11.00 xx
Nessicle - Have you been referred to a paed? Our GP had no idea what silent reflux was and all he would give us was Gaviscon. He wouldn't do a referral as Macy was still gaining weight so I took her to A&E and refused to leave until we saw a paediatrician. I had an A4 sheet of paper of everything I had written down, I wrote everything- back arching and screaming a few minutes into feed, refusing to finish feed although hungry, constant hiccups, distressed and unsettled after feeds, poor sleep with frequent wakings, occasional projectile vomit, blood in nappies (in Macys case this was down to the damage the reflux was doing to her insides, not an allergy), poor feeding only taking half as much as she should, poor weight gain, colic like crying for no reason, constant drooling and need to suck, wheezing sound in chest, gagging and choking in sleep, hoarseness, red sore throat (noticed by our GP), persistent thrush. I wrote every single one of these down and also wrote down all the things that we had already tried from the simple things like propping, teats and bottles, all the milks and the Gaviscon. That way they couldn't fob me off. The paed suggested Ranitidine and I just said that there were a few babies in the family with reflux and they had done really well on LOSEC so they did the prescription for me.
Did you know you can get Omeprazole on prescription - it's not the LOSEC brand but you can buy generic stuff 10mg stuff OTC. PM if you want help with this.
xx
She'll get there hun, just remember she won't have it forever! Macy is doing fantastic thanks, she did have a sickness and diarrhoea bug for a whole week but reflux-wise she is doing brilliant. We've had no symptoms or flare-ups for ages now and still gradually weaning off the omeprazole - down to 12.5mg now, going to go down by 1mg every 3-4weeks. She's doing impressively with solids too, finish over half a jar of stage 2 at most meals now! And enjoying and coping really well with finger food.She's also really enjoying her milk at the minute - around 5ounce bottles every 4hours, she's stopped sleeping through the night though so we are dreamfeeding at 11pm and then she's waking around 4.30-5.30 for a feed and being a nightmare to get back to sleep.
My OH is away for a week from today so I'm hoping we have a good week! xx
Kelly - I'm sorry the cranial osteopathy didn't work but I'm glad that you've got sorted with new meds, hope they make a big difference to both of you
We have always given Macy's her omeprazole on an empty stomach about half an hour before her bedtime bottle as she always used to be most uncomfortable over night. I'm going to have to change it though as we're about to start giving her porridge as supper before bed so her tummy won't be empty anymore. Will probably give it about 10.30am as she'll not have had anything to eat since breakfast and gets the next bottle at 11.00 xxNessicle - Have you been referred to a paed? Our GP had no idea what silent reflux was and all he would give us was Gaviscon. He wouldn't do a referral as Macy was still gaining weight so I took her to A&E and refused to leave until we saw a paediatrician. I had an A4 sheet of paper of everything I had written down, I wrote everything- back arching and screaming a few minutes into feed, refusing to finish feed although hungry, constant hiccups, distressed and unsettled after feeds, poor sleep with frequent wakings, occasional projectile vomit, blood in nappies (in Macys case this was down to the damage the reflux was doing to her insides, not an allergy), poor feeding only taking half as much as she should, poor weight gain, colic like crying for no reason, constant drooling and need to suck, wheezing sound in chest, gagging and choking in sleep, hoarseness, red sore throat (noticed by our GP), persistent thrush. I wrote every single one of these down and also wrote down all the things that we had already tried from the simple things like propping, teats and bottles, all the milks and the Gaviscon. That way they couldn't fob me off. The paed suggested Ranitidine and I just said that there were a few babies in the family with reflux and they had done really well on LOSEC so they did the prescription for me.
Did you know you can get Omeprazole on prescription - it's not the LOSEC brand but you can buy generic stuff 10mg stuff OTC. PM if you want help with this.
xx
Nessicle
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No not been referred hun, taking her back to the doctors to demand an antacid though, she's constantly stretching out and arching her back. She's started to stretch out while sat upright on my knee too I dont understand why but it must be pretty bad if its hurting her while sat upright! She's crying in her sleep and very difficult to settle for bed and she never used to be, its such a battle and I'm terrified of waking her up lol x
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Ok so my Maddy was put on reflux meds 2 days ago. She is 1ml town times a day. How does this compare to what your LO's are getting? How long does it usually take for the meds to show a difference if at all? Also, how much did your LOs stop spitting up if at all? Thnx for Any answers!
stardust599
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stardust599
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Arghh I'm getting a little annoyed at all the "Reflux" threads I'm seeing on the main board.
Seems that people think that because their LOs are a bit sicky they need to be seen by GP/Paed and on meds even if they are feeding, sleeping and gaining weight well, I'm trying to explain that hundreds of babies have reflux but there is no need for it to be medicated unless it's interfering with babys wellbeing. No wonder most of us have so much trouble being taken seriously when we see our GPs about our LOs.
xx
Seems that people think that because their LOs are a bit sicky they need to be seen by GP/Paed and on meds even if they are feeding, sleeping and gaining weight well, I'm trying to explain that hundreds of babies have reflux but there is no need for it to be medicated unless it's interfering with babys wellbeing. No wonder most of us have so much trouble being taken seriously when we see our GPs about our LOs.
xx
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Overall my daughter is considered a "happy spitter". But we have some horrible nights and days. Weight hasn't been a huge issue since she was 2 1/2 months. But she spits up 30 to 50 times a day. And for a few months that was the only issue than within the last month she stopped sleeping throughwas cranky and seemed to only find relief while eating and after she spit up. We have been on Zantac this being our third day and she slept through last night!!! It has been a long journey
stardust599
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Macy has never been on Zantac (brand name for ranitidine) but I managed to find the usual dose for babies on refluxrebels.com so you can compare.
By weight -
10lb = 1.5-3.0ml per day
12lb = 1.8-3.6ml per day
15lb = 2.3-4.5ml per day
18lb = 2.7-5.5ml per day
20lb = 3.0-6.1ml per day
As you LO is mostly a happy spitter I guess the lower dose is working really well for her, you might need to increase it with her weight as she gets bigger though, hope it carries on working for you and hopefully as your LO starts to take a more solid diet the spitting up will slow down a bit too!
x
Nessicle
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Lol Ava is gaining weight fine she's above average but she has silent reflux and she's what you call a 'grey area' baby, seems fine, gaining weight, sleeping well, but feeding is horrendous and screaming in pain etc...
Took Ava back to the docs today, she's prescribed ranitidine 0.5ml twice a day to start and she said I can increase to 0.5ml 3 times a day if needed. She's referring Ava to a paed too - FINALLY gettting somewher!!
Took Ava back to the docs today, she's prescribed ranitidine 0.5ml twice a day to start and she said I can increase to 0.5ml 3 times a day if needed. She's referring Ava to a paed too - FINALLY gettting somewher!!
My_First
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I am at my wits end, and think I am spiralling into PND.
LO diagnosed with Reflux at a week and a half, he is now 5 weeks old.
Gaviscon, nothing, (I beleive its giving him constipation) currently on ranatadine, 0.3ml, its helped a bit with the vomiting, but over the last week, he just isnt sleeping. It will take him three to four hours to get to sleep in an evening, so will be giving last feed at 10-11, and will cry until 1-2, which means he will need another feed then. Eventually he will sleep. Then last night we managed to get him off at 11pm, but fed him his night feed an 2:30am, and he didnt go back to sleep until 8am.
I cant cope, and really struggling. Can anyone offer any advice? I am so, so depressed...
LO diagnosed with Reflux at a week and a half, he is now 5 weeks old.
Gaviscon, nothing, (I beleive its giving him constipation) currently on ranatadine, 0.3ml, its helped a bit with the vomiting, but over the last week, he just isnt sleeping. It will take him three to four hours to get to sleep in an evening, so will be giving last feed at 10-11, and will cry until 1-2, which means he will need another feed then. Eventually he will sleep. Then last night we managed to get him off at 11pm, but fed him his night feed an 2:30am, and he didnt go back to sleep until 8am.
I cant cope, and really struggling. Can anyone offer any advice? I am so, so depressed...
Nessicle
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Firstly talk about how your feeling with your HV or GP hun, secondly 
xxxx
Its so hard, Ava screamed non stop for the first 12 weeks of her life they kept telling me colic and we tried everything until eventually someone suggested silent reflux as she isnt really sick. Its bloody hard and so stressful, you're only human and theres only so much you can take.
I would stop the gaviscon - this made Ava scream for 3 days til I realised she hadnt pooped and then when she did it was like clay and really dark green. She's pooing better without it. Try Carobel instead its a natural food thickener to help with the sick. You can get it prescribed or buy it OTC at pharmacys but they might need to order it in. You can add as little or as much as needed and it doesnt bung them upx x
xxxxIts so hard, Ava screamed non stop for the first 12 weeks of her life they kept telling me colic and we tried everything until eventually someone suggested silent reflux as she isnt really sick. Its bloody hard and so stressful, you're only human and theres only so much you can take.
I would stop the gaviscon - this made Ava scream for 3 days til I realised she hadnt pooped and then when she did it was like clay and really dark green. She's pooing better without it. Try Carobel instead its a natural food thickener to help with the sick. You can get it prescribed or buy it OTC at pharmacys but they might need to order it in. You can add as little or as much as needed and it doesnt bung them upx x
KellyC75
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Hi Girls 
I am in total shock....The domperidone is really helping my Daughter, she has been 'herself' the past few days, we had a lovely Weekend, I was actually confident about taking her out
Today, we even went into Town shopping, I was even able to browse the clothes shops!...
I really hope this can continue, its such a relief & I am so grateful to have my 'happy little Girl'
Please dont 'pop my bubble' & say it stops working after a while!
I am in total shock....The domperidone is really helping my Daughter, she has been 'herself' the past few days, we had a lovely Weekend, I was actually confident about taking her out
Today, we even went into Town shopping, I was even able to browse the clothes shops!...
I really hope this can continue, its such a relief & I am so grateful to have my 'happy little Girl'
Please dont 'pop my bubble' & say it stops working after a while!
KellyC75
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Have some of these I totally sypmpathise, as most of the lovely ladies on here will Reflux is terrible, stressfull & heartbreaking
& seems its also something that.....unless you have experienced, you really dont understandI am guilty of this & didnt realise how hard a reflux baby was, until I had one
This is my 3rd child & I have found myself 'hibernating' at home, not wanting to go out & getting pretty down Only when the ranintidine was working did we both get a bit of a 'break'...when that stopped working ~ I was distraught
I have now been back to the Doctor (& saw a very sypmpathetic one~Her Daughter also suffered reflux) My Daughter has been on new meds for just a few days, but already she is doing great & so happy
Which makes a VERY HAPPY MUMMY 
