Reflux Help & Support Thread

[KellyC75]

No worries with my girl I've ended up researching bloody every drug/idea/solution. DH says I'm a baby puke encyclopaedia
Nice eh?!?

See how Meadow gets on, you might find she is fine with no domperidone at all. Generally it's only used if H2 inhibitors/acid blockers aren't cutting it at their max dose.

Thanks Farie Im glad to have consulted with the 'baby puke encyclopedia'

How long do you think I should give it on the lansoprazole? Mayby a week?

 

[Farie]

I'd wait at least a week. For us it took over 2 weeks for it to really help Nim, she improved a bit to start then plateaued, then it built up and she got better and better.
It took a few weeks to get the dose, after about 7 days she was better but uncomfy so we upped the dose, within a week she was pretty much pain free over 75% of the time - you'll know when the dose/med combo is right

 

[SilasLove]

Is it at all possible for the reflux meds to cause thrush? Just curious as Maddy started meds last week and now has thrush ...

 

[fluffyblue]

Hi girls thought id outgrown reflux ive started weaning on advice and its back with a vengenance ! The gulp is horrendous - my hubby says to stop the food what do you think x

 

[fluffyblue]

Should say he gulps coughs and gags and you can hear his stomach turn over x

 

[Nessicle]

aww poor thing you putting him back on meds?

not sure about the thrush silaslove - I would ask the doc or paed its possible I suppose just like antibiotics kill good bacteria

We've had to stop ranitidine for a few days its constipating her horrendously she's been waking 3-4 times a night straining and crying, we had to feed her 3 times just to get her back to sleep each time then ended up with her in bed with us.

Didnt give her any meds yesterday and she seemed fine and slept through not even a whimper?? I did put her back on a slower teat so wondering if the issue was the teat was too fast for her and she's starting to grow out of silent reflux? She's doing less wet burps.

xx

fluffyblue just reading your signature - what you went through to have a baby and then having reflux issues to deal with xx

 

[Farie]

Silaslove, what meds is he in? Ranitadene and Losec can make them more susceptible to thrush as it lowers acid so makes it less hostile to candida. Try probiotics to address the imbalance once the thrush is treated.
Fluffyblue, I'd stop the food, it sounds like he's just not ready, Nim was the same and is only now tolerates small amounts of puree, and that's rare and only on 'good' days. More than a couple of tiny baby spoonfuls and she chucks. Not that she is usually interested anyway

Nim and I are well, she sleeping really badly at the moment but I think that's a teething issue compounded by her awful feeing habits ....


But ....



We have got a script for EleCare it should arrive on Wednesday I'm really hoping that it will improve her eating, even if the vomiting doesn't get better.
She still chucking daily and going through at least 4 outfits but she's 90% pain free as li as her Losec dose stays at 20mg daily. She's off the erythromycin and to be honest the vomitings not changed at all. Well, slightly worse but not enough to make giver her anti-b's regularly worth it iykwim?

We are back at the paed in a couple of weeks so if shes still chucking I'll ask about domperidone. The tiny bits of solids she takes don't do anything to keep the milk down, if anything she chucks more after them

Ohh shes tooting, better dash, poor lamb just cannot sleep well

 

[MrsH1980]

Hi ladies, hope you don't mind if I join

Myka has silent reflux and colic...she's been on gaviscon, rantidine and donperidone for approx. 6 weeks...we've just had to have the dosages upped as they stopped working about a week ago (they are weight sensitive) and the poor thing has really been suffering

Does anyone know how we'll be able to tell when she's 'grown out' of reflux and we can wean her off the meds?

Ps. She has Colief in each bottle which seems to counter the constipation caused by ranitdine and gaviscon but she does still suffer terribly with excessive/violent wind, poor cow

 

[Nessicle]

I found colief gave Ava the most horrendous wind! Nothing for colic works as colic doesnt exist - wind issues and cramps are caused by the reflux/silent reflux and/or gulping feeds down too fast. Only thing that helped Ava's wind is changing to a smaller teat size

Ava's constipation is so much better without the ranitidine and feeds better with a slower teat I cant believe it! She still isnt taking much per feed but she has 20oz a day usually by the time bedtime is here. The ranitidine didnt help her to drink more either. Will see how she goes but think if things get bad again when we see the paed I'm gonna ask for something else xx

 

[MrsH1980]

I found colief gave Ava the most horrendous wind! Nothing for colic works as colic doesnt exist - wind issues and cramps are caused by the reflux/silent reflux and/or gulping feeds down too fast. Only thing that helped Ava's wind is changing to a smaller teat size

Ava's constipation is so much better without the ranitidine and feeds better with a slower teat I cant believe it! She still isnt taking much per feed but she has 20oz a day usually by the time bedtime is here. The ranitidine didnt help her to drink more either. Will see how she goes but think if things get bad again when we see the paed I'm gonna ask for something else xx

Unfortunately it's the lesser of several evils for us...she as to have the ranitidine because you can hea the acid going up and down her throat, it's terrible

She has to have the larger teats because the gaviscon makes the milk too thick to come through the small teats...


Ahhhhh, I just want to take her pain and discomfort away

 

[Nessicle]

aw I feel your pain its such a minefield! for us it seems the reflux is the lesser of two evils though thats only recently, we spent 3 months being told it was colic and i was sick of being fobbed off, Gaviscon did work but she needed 2 sachets per bottle and she was so constipated she screamed day and night until we took her off it, carobel was ok though she seemed to puke with that and she never puked before and we could never find a teat the right size.

Ranitidine worked a treat but again constipation set in! She's been referred to a paed so hopefully we can discuss something that will work that wont cause so much pain and constipation for her! Who knew feeding your baby would be this hard hey?!

 

[SilasLove]

We can't see doctor till tomorrow. Should I keep with the meds then and just go over it with doctor? She is miserable with the thrush.

 

[sarah1981]

hi my little girl is 16 weeks she has got reflux and been perscribed ranitidine, what doses do you give? My GP has said 0.6 mls, she weighs 12lb 5oz, is this about right.

 

[Peachypoo]

hi my little girl is 16 weeks she has got reflux and been perscribed ranitidine, what doses do you give? My GP has said 0.6 mls, she weighs 12lb 5oz, is this about right.

How many times a day? My lo was on 0.26ml 3 x a day when she was 6kg and I was told that's the maximum!!!

 

[Peachypoo]

aw I feel your pain its such a minefield! for us it seems the reflux is the lesser of two evils though thats only recently, we spent 3 months being told it was colic and i was sick of being fobbed off, Gaviscon did work but she needed 2 sachets per bottle and she was so constipated she screamed day and night until we took her off it, carobel was ok though she seemed to puke with that and she never puked before and we could never find a teat the right size.

Ranitidine worked a treat but again constipation set in! She's been referred to a paed so hopefully we can discuss something that will work that wont cause so much pain and constipation for her! Who knew feeding your baby would be this hard hey?!

Have u tried hypoallergenic milk??? That may work??

 

[SilasLove]

Oh now wants to stop Maddys meds because it may have caused her thrush. Ugh. Annoying.

 

[sarah1981]

Gp perscribed 0.6mls 3 times a day, been on this dose for just over a week and seems to be getting worse, i cant stand seeing her in so much pain.

 

[Peachypoo]

It is very difficult!! Try different milk??? I know hypoallergenic milks do help ease baby!! Is baby intollerent to milk???

 

[Peachypoo]

Hello ladies, had my peas appointment today, and seem pleased.. I've been told to try losec and domperidone...
Has anyone tried losec?? I know Farie you have.. How's your lo on it compared to renidetine?? I've been advised to carry on bf and neocate... Btw ladies I think my jihad got used to neocate without any sugar... Wohoo.. I obliging her it when I can't bf but so chugged she drinks it..

Btw I've found my lo becomes more of a chucker during evening and pains worse then to... Any1 else???

Btw thankyou soo much to you lovely ladies for helping me through this..

 

[Farie]

Hey hon Nims 200x better on Losec, tbh Ranitadene only worked for about a week then the screaming started again lol. We are on 20mg a day, split into 2x doses. It takes about 5 days to kick in initially and another couple of weeks to see the full benefit.

No idea about domperidone I'm afraid as I don't use it, although if she continues to chuck back solids thats our next thing to try.

Personally I'd try the Losec first for a week or so and then add the domperidone, the latter can have pretty strong side effects and if you give both you won't know which helps/doesn't iykwim?

Fantastic news about the Neocate we have actually just changed to EleCare as Nim started rejecting bottles. Fingers crossed she keeps enjoying the new taste.

Nim tend to chuck in the evening too, once the meds are sorted you'll find the pains not so much of an issue

We are generally doing well, still off the erythromycin and the chuckings ok, still at least one huge power chuck a day but not after every feed (on a good day) although she does her best chucks about 2h after the last feed

So I guess we are well under contorl but showing no signs of out growing the reflux, the Dr we saw to get the EleCare (emergency appt as she refused almost all Neocate a couple of days ago) said she was the most severe/extreme case he'd ever seen with the delayed emptying and allergies