Dealing with azoospermia?

[MJ73]

SB, that's great news hun! How fast was that?

SND, your time will come around before you know it; hang in there sweetie

MumandDad, congrats hun, he is just divine, sorry your birth was so stressful, but I'm sure that gorgeous little bundle makes all the stress worth it. His big brother was definitely watching out for him

Tiger, so glad to hear the funeral was a lovely tribute to your Dad, hope you're coping ok Has the move happened yet?

Sun, thanks for setting up the FB page, it's great

AFM, only 4 more sleeps till we see our FS to see what he has to say about proceeding...Finally something is actually happening, after 2 months of waiting. Maybe an April full stim cycle? Fingers crossed

 

[cosita]

Wow, congratulations mumandad!! This is such good news! There is always hope isn't there!

 

[Deb111]

Ok, at the risk of sounding stupid I barely use facebook and only to really keep up to date with friends photos, so ... I have accepted the friend request, how do I go about actually finding the group / page? COuld someone maybe send me a link to it? xx

 

[MJ73]

Ok, at the risk of sounding stupid I barely use facebook and only to really keep up to date with friends photos, so ... I have accepted the friend request, how do I go about actually finding the group / page? COuld someone maybe send me a link to it? xx

I think as it's private, Sun has to send you an invite. Look forward to seeing all the gals on there.

PS. Not stupid at all!

 

[Deb111]

Ah that makes sense thanks

 

[wibble wobble]

I have sent requests for all PMs I have gotten. If you didn't get one please let me know.

Hi hun I didn't get a request, did the link work that I sent in the pm?

 

[Luvoboe]

Hi all,
I am happy but sad to find this group. Happy because there are people going through the same thing as I am but sad because people are going through the same thing I am. I'm hoping that this thread is still active. I'll share a little about our family's story.
My husband have been together six years but married 4 1/2 years or so. About six months into our marriage we found out that my husband had a tumor on his pituitary gland. It resulted in him having surgery and having the tumor and most of his glaand removed. He was then given testosterone along with other things to help balance his hormones. He did have a sperm analysis which showed some sperm that wasn't very active. No one thought to tell us that we should freeze the sperm that they do find just in case. No one told us that being on testosterone replacement therapy could cause infertility. In fact, they told us the opposite. When he got the zero sperm count they told us that we need to just wait until the medicen kicks in and his testosterone level goes up. We waited until last year in November. It was then that I decided to do some research to see of there was something else we could do. I figured after three years of nothing has happened by now, it's not going to. It's a good thing that I did because it turns out testosterone is the last thing that he should be taking. You can't believe how angry I was! I have lost all faith in the medical system and will be researching everything before I consent to any treatment for me or my husband. This all could have been avoided if we had saved the sperm from before the surgery. Why didn't they think to says something!!
In any case, we are seeing a urologist who specializes in fertility and hubby is on hcg right now. He has an appointment in march to see how his hormone levels are but right now, everything is very very low. The doctor seems hopeful that this will work. My husband is starting to talk about our children. He's pressuring me to lose weight so that I can be healthy and is generally excited.
I really hope this works because I think he will be very very devastated if it doesn't. I really don't want to see him hurt.

 

[Luvoboe]

Also, sorry for the long post and for the typos. I was typing really fast and didn't have time to proofread. Sometimes auto correct does silly things with your words.

 

[Pink Lolly]

Hi Luv

Welcome to the thread but sorry you have to join us

There are lots of girls on here all in different situations and we have formed a strong support network so I'm glad you found us

 

[snd80]

Hi Luv! Welcome!

 

[deafgal01]

Luvoboe That's just awful how they did that to you. Hopefully you'll have a happy ending to that story... (or should I say "beginning"). There are a few success stories here already and then there are others still trying (and then there are a few like us who are still waiting based on more testing/actions).

 

[Deb111]

Hi Luvoboe and welcome. As PL says, we have a really strong, supportive and active group so I'm glad you found us

I'm so sorry you've had to deal with incompetent medical people - we all seem to have at some point along the way, but yours sound really major. I really hope this FS can help you. Maybe stopping the testosterone and replacing it with something to boost his own levels is a possibility? I'm sure you will have lost of questions for the FS

Keep us posted xx

 

[wibble wobble]

Hi luvoboe welcome to the thread

and a big HI to everyone just thought I'd share my little bit of news.... Hubby is coming to terms with using a donor at first he didn't want anyone to know, today he has told his brother thats what we are doing. His brother even offered his sperm, we had considered asking him in the past but I talked us out of it. His brother has 4 kids and I don't know how he'd be able to watch us raise what would've been his baby (biologically) without trying to have his say on upbringing. I guess we can always reconsider in the future but it's not really a real option at the minute... I'd prefer to go through the clinic for anonymous

I have a open evening at the ivf clinic on thursday evening kinda looking forward to that, I've been speaking to a woman who has been in the exact same situation as me at the clinic and she was matched pretty soon after so thats given me a glimmer of hope that it may not be as long as I thought.... OH and I'm still waiting for my follow up appointment to my screening bloods, I should get a letter soon according to my consultants secretary.... she's amazing when it comes to sorting out the details

 

[cosita]

Thats great news Wibble, glad you are moving forward.
Luv - unfortunately the thread is still active and sometimes hyperactive at that!! The women here are a godsend.

 

[raelynn]

Welcome Luv! Happy to have you but sad you're in the same situation.

Monday didn't start out great for me. I woke up really nauseous. Yuck! We had our appointment with the urologist today and now we're just more confused than ever. We went in expecting that we'd be going for mTESE but now we're not sure. It is hard to think about dropping around 10k on just a chance to find something. And if they find nothing that leaves us with not many other options since the money is gone. Plus, if we manage to get pregnant, we're planning on moving to a bigger place so we have to consider that when dipping into our savings too.

 

[Deb111]

Welcome Luv! Happy to have you but sad you're in the same situation.

Monday didn't start out great for me. I woke up really nauseous. Yuck! We had our appointment with the urologist today and now we're just more confused than ever. We went in expecting that we'd be going for mTESE but now we're not sure. It is hard to think about dropping around 10k on just a chance to find something. And if they find nothing that leaves us with not many other options since the money is gone. Plus, if we manage to get pregnant, we're planning on moving to a bigger place so we have to consider that when dipping into our savings too.

What are they suggesting instead of mTESE? mTESE is by far the best and as you're paying for it, personally I would INSIST on it!

 

[raelynn]

They said they can do testicular mapping. They did say it is less likely to find sperm that way but that it costs less. We're kind of leaning towards that and if they find nothing going with donor. But, we won't really know until the financial adviser from the urologist calls us with costs of everything. DH said he really doesn't want to pay so much for them to just tell him there is nothing to be found and then for us to have to pay for a donor on top of it anyway. At this point, I'm kind of leaving it up to him since it is his choice to make what he is willing to go through. Regardless, it will be his child (whether biological or not)

 

[Deb111]

They said they can do testicular mapping. They did say it is less likely to find sperm that way but that it costs less. We're kind of leaning towards that and if they find nothing going with donor. But, we won't really know until the financial adviser from the urologist calls us with costs of everything. DH said he really doesn't want to pay so much for them to just tell him there is nothing to be found and then for us to have to pay for a donor on top of it anyway. At this point, I'm kind of leaving it up to him since it is his choice to make what he is willing to go through. Regardless, it will be his child (whether biological or not)

Very true

We seriously considered testicular mapping but couldn't get it in the UK. It has a lot higher success rates than a random biopsy like the NHS do here

I'm sure you've seen it, but if not, have a look at Dr Turek's info on sperm mapping https://www.theturekclinic.com/testicular-mapping.html

He will do a 10 minute free phone consultation - even if you are not planning on using him, he may give you some useful info xx

 

[raelynn]

Thanks, Deb! This is great info. It seems our urologist would be doing something in between a biopsy and mapping since they won't take as many as 11 samples but he did say he could take three samples from each side. Talked to DH again over dinner and he said we'll still wait to hear the cost of everything to make a decision but we're thinking we'll probably go with the mapping with a donor backup. He's pretty much come to terms with the possibility of a donor at this point and doesn't want to jump through hoops physically and financially to still possibly be told they found nothing and tough luck. I guess we'll know more after hearing costs and our follow-up next week with the FS. Nothing about this diagnosis has been easy but I can definitely say hearing everyone's different stories and the support of this group is a HUGE help. I'd be completely overwhelmed without it.

 

[SunUp]

Hey Wibble--- never got a PM from you?
You could also send your name and describe your profile pic.