"Hedgewitch Fertility Spell Support Thread"
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MissyMojo
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its not too bad yet lol
im not impressed with hubby- he's coated the bathroom floor with ant powder - so i cant get in there!!! i cant carry the hoover upstairs myself to clean it up and i cant come into contact with it so cant go wash it up!
so glad the toilet is separate from bathroom!!
im not impressed with hubby- he's coated the bathroom floor with ant powder - so i cant get in there!!! i cant carry the hoover upstairs myself to clean it up and i cant come into contact with it so cant go wash it up!
so glad the toilet is separate from bathroom!!
WhisperOfHope
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morning all
hedgewitch
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morning ladies
sorry i didn't update yesterday but i was so wiped out by the time i got home i had some tea and bed, glad Linds updated for me again hehe, thanks Linds
ok so got to hospital and had a scan, Aggie still breech and she is fine, 1lb 14oz, cord the same as it was the other day all bunched up around her feet and under her bum. scan was amazing though, they put the doppler on her while she was having a guzzle of the amniotic fluid, seeing her licking her lips and swallowing was so sweet.
as or me well thats a different matter, i had some specialist blood tests done by geneticists done a few weeks ago and finally got the results back yesterday. they have discovered i have a few things wrong with me, firstly i have whats called PSD and Thrombophillia, it is a defeciency in protien s which is apparently quite rare and is why i have blood clots, it basically means my blood is like treacle and i have DVT and PE which is rather dangerous as i have the rarest type. it only affects a few thousand people worldwide.
In patients that are born with two abnormal copies of the protein S gene (called homozygous), a severe form of thrombosis called purpura fulminans can result. Purpura fulminans involves severe clotting throughout much of the body, ultimately causing death to the tissues. This is a life-threatening condition.
There are studies that suggest an association between arterial thrombosis (stroke, heart attack) in patients with protein S deficiency. At this time, the exact role protein S deficiency plays and its relative importance in arterial disease is still being explored by physicians and scientists.
so at least we now know why i have my strokes, seizures and the heart attack.
https://www.protein.org.uk/
i also have factor V Leiden but i haven't researched this yet, from what i understand this is a gene mutation which just complicates things.
i also have a protien c defeciency which is what makes this so rare as i have the two mutated genes of this disease also https://www.wisegeek.com/what-is-protein-c-deficiency.htm
i also have another rare blood disorder that has been the cause of all my m/c and my placental abruption with Em. it also contributed to LM's death. in Aggie it has caused a partial placental abruption but as they have caught it early enough they assure me the placenta will re attach in a sense. the blood disorder i have causes the placenta's to not attach properly and sends my extra thick blood through the placenta to the baby as well as my blood clots instead of filtering it which is why LM looked so pink when she passed away, the concentration of blood in her tiny body was way too much and her heart couldn't handle it.
so i have now been put on heparin every day via injections and asprin 150mg to try and stop this killing Aggie and me, by rights she shouldn't be here and this is why her twin died. god sounds so overdramatic but look at the treatment.........so simple!! after she is born i will then be put on a much stronger medications that will stop me having heart attacks/ strokes, bleeding on the brain and thin my blood. i will be on these for the rest of my life. so an eventful day all round, i am now struggling to come to terms with all this but my biggest fear is the self injecting!!!
sorry i didn't update yesterday but i was so wiped out by the time i got home i had some tea and bed, glad Linds updated for me again hehe, thanks Linds
ok so got to hospital and had a scan, Aggie still breech and she is fine, 1lb 14oz, cord the same as it was the other day all bunched up around her feet and under her bum. scan was amazing though, they put the doppler on her while she was having a guzzle of the amniotic fluid, seeing her licking her lips and swallowing was so sweet.
as or me well thats a different matter, i had some specialist blood tests done by geneticists done a few weeks ago and finally got the results back yesterday. they have discovered i have a few things wrong with me, firstly i have whats called PSD and Thrombophillia, it is a defeciency in protien s which is apparently quite rare and is why i have blood clots, it basically means my blood is like treacle and i have DVT and PE which is rather dangerous as i have the rarest type. it only affects a few thousand people worldwide.
In patients that are born with two abnormal copies of the protein S gene (called homozygous), a severe form of thrombosis called purpura fulminans can result. Purpura fulminans involves severe clotting throughout much of the body, ultimately causing death to the tissues. This is a life-threatening condition.
There are studies that suggest an association between arterial thrombosis (stroke, heart attack) in patients with protein S deficiency. At this time, the exact role protein S deficiency plays and its relative importance in arterial disease is still being explored by physicians and scientists.
so at least we now know why i have my strokes, seizures and the heart attack.
https://www.protein.org.uk/
i also have factor V Leiden but i haven't researched this yet, from what i understand this is a gene mutation which just complicates things.
i also have a protien c defeciency which is what makes this so rare as i have the two mutated genes of this disease also https://www.wisegeek.com/what-is-protein-c-deficiency.htm
i also have another rare blood disorder that has been the cause of all my m/c and my placental abruption with Em. it also contributed to LM's death. in Aggie it has caused a partial placental abruption but as they have caught it early enough they assure me the placenta will re attach in a sense. the blood disorder i have causes the placenta's to not attach properly and sends my extra thick blood through the placenta to the baby as well as my blood clots instead of filtering it which is why LM looked so pink when she passed away, the concentration of blood in her tiny body was way too much and her heart couldn't handle it.
so i have now been put on heparin every day via injections and asprin 150mg to try and stop this killing Aggie and me, by rights she shouldn't be here and this is why her twin died. god sounds so overdramatic but look at the treatment.........so simple!! after she is born i will then be put on a much stronger medications that will stop me having heart attacks/ strokes, bleeding on the brain and thin my blood. i will be on these for the rest of my life. so an eventful day all round, i am now struggling to come to terms with all this but my biggest fear is the self injecting!!!
WhisperOfHope
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so fed up still no peak or low just my 7th high
MissyMojo
Army Wife, Mam & BFP
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im glad that this blood issue has finally been picked up and now you and Aggie can be looked after properly and the drs know what theyre looking out for x x
Linds - i really hope you get somewhere soon babes - its not right that your body is having such wonky donky cycles
afm - nudger had a wiggly morning and is having their mid afternoon rest - nudger will wake up again about 4/5 and wiggle on n off til i fall asleep
Linds - i really hope you get somewhere soon babes - its not right that your body is having such wonky donky cycles
afm - nudger had a wiggly morning and is having their mid afternoon rest - nudger will wake up again about 4/5 and wiggle on n off til i fall asleep
Megg33k
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I actually know what some of that is, Sam! Factor V Leiden shouldn't require anything more than the heparin shots. So, that's actually going to be treated anyway. I'm honestly shocked that you weren't on heparin after having lost so many anyway... That's just a sort of standard progression to ward off anything undiscovered! I'm so sad that your doctors have failed you and your babies so often. 
I've only lost 2, and I was already checked for clotting factors (albeit at my request). I would just like to shake the life out of the docs who've "treated" you... although "treated" is a strong word for what they've done. 
I'm glad they're working to protect Aggie though!
I've only lost 2, and I was already checked for clotting factors (albeit at my request). I would just like to shake the life out of the docs who've "treated" you... although "treated" is a strong word for what they've done. I'm glad they're working to protect Aggie though!
MissyMojo
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evening girls - i have had a lovely afternoon 
its been fab!
got invited next door to meet new neighbours, then they were going down the beach with their friends - who've just arrived too and we all went out for dinner - michelle and andrew treat me to fish n chips to say thank you for getting them basics in for the night they arrived, and we all swam in the sea til it got dark and we planned to do it again tomoro
its been fab!got invited next door to meet new neighbours, then they were going down the beach with their friends - who've just arrived too and we all went out for dinner - michelle and andrew treat me to fish n chips to say thank you for getting them basics in for the night they arrived, and we all swam in the sea til it got dark and we planned to do it again tomoro
hedgewitch
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sounds like you had a wonderful day,xxevening girls - i have had a lovely afternoon
got invited next door to meet new neighbours, then they were going down the beach with their friends - who've just arrived too and we all went out for dinner - michelle and andrew treat me to fish n chips to say thank you for getting them basics in for the night they arrived, and we all swam in the sea til it got dark and we planned to do it again tomoro
hedgewitch
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hey hun, yeah not too sure about the others to be honest but for the time being all they can do is the heparin/clexane as with me being pg its too dangerous. hospital range me today to come in for a special shot tomorrow to try keep some of it under control but again the meds they are giving me can only be given minimally with the clexane and asprin and pg. stupid doctors!!I actually know what some of that is, Sam! Factor V Leiden shouldn't require anything more than the heparin shots. So, that's actually going to be treated anyway. I'm honestly shocked that you weren't on heparin after having lost so many anyway... That's just a sort of standard progression to ward off anything undiscovered! I'm so sad that your doctors have failed you and your babies so often.
anyways how are you today hun?xx
hedgewitch
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hey hun, hows you doing?xxgirls sam i am glad they have found something xxxxxx
MissyMojo
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it really sucked up until 6ish! was even on msn to my nana complaning about how lonely i felt.
amazing what a few hours can do, oh and today hasnt been as humid 
i have a toffee cheesecake in the fridge calling my name
amazing what a few hours can do, oh and today hasnt been as humid i have a toffee cheesecake in the fridge calling my name
hedgewitch
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lol my craving yesterday was custard with chips dipped in as in fried potatoes, today its milky bar buttons! i love cheesecake but wasn't sure we could have it mind you the only thing i want off it is the biscuit base, glad your day got better,xxit really sucked up until 6ish! was even on msn to my nana complaning about how lonely i felt.
i have a toffee cheesecake in the fridge calling my name
WhisperOfHope
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:wave:
hedgewitch
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hey Linds how are you today,xx
