I need some input...multiple MCs, trying progesterone

[Melmel59]

And, btw, I seem to always be in a hurry and I didn't notice this thread was 6 pages. Didn't mean to intrude-sorry. I'm just like a lot of other women looking for answers to miscarriages.

My heart truly goes out to all of you. Prayers for BFP's with a bundle at the end of 9 months for all of you!

 

[moonmama]

Hi girls I am in the same boat. I am also in the process of miscarrying number 6!

My doctor is useless and said he knows nothing about progesterone levels and has referred me to gynae which has a 6 month wait! My levels were 42 a weeks last monday when I was just under 5 weeks pregnant. My hcg was already negligble, but with low progesterone thats hardly surprising! He wouldnt prescribe supplements so I am thinking of buying the cream which you can self medicate with, as its natural my gp said he cant see a problem with it. But it will of course effect any blood results if I do get pregnant.

My head is in a spin and I dont feel like I am getting any help. I am certain my problem is progesterone, because early miscarriage can happen because the uterine wall has not been prepared for implantaion. Progesterone prepares it...so surely if early miscarriage is happening it doesnt take rocket science to realise that that is the problem. Keep me posted if you find anything out! Thinking of you both!

A 42 for progesterone at 5 weeks is a really GOOD number. 9-47 is the average for first trimester. You were already in the upper high range. With my last 2 successfull pregnancies, my progesterone was between 23 and 26 between 4-1/2 and 5 weeks.

Just wanted to comment so you could see if it may be something else--I'm totally not the doctor, though. I hope you find answers and I'm so sorry for your losses.

Can I just say it depends on whether your progesterone levels are read in nmols/l or ng/ml which is the levels you see mostly online. My levels were measured in nmols/l and I mistakingly went by the normal ranges i found online which were completly different untill someone on bnb pointed out my mistake! You have to do some conversion to work out what it is in ng/ml. Its best to find out what units of measurement your path lab use

 

[CJSG1977]

My doctor told me that the hospital said that it had to be over 68 to be viable! Which is ridiculous! You may be right moonmama I'm not sure what the measurement was, I will check when I next see him. I'm waiting for my date to see the FS now, could be 4-5 months but hopefully they will see my case as urgent as I have had 6 miscarriages now all at the same stage. I'm seeing a different one to last time which I am happy about as I felt she believed I didnt need help because I can conceive.

Either way, whatever the measurement was the hospital said not viable, which peed me right off cause a different hospital treated my niece the same week as me hers was 9.8 and they did all they could to help her cause they said between 10 and 15 at 4-5 weeks was good enough to try help her. She still lost it but it was more complicated than just prog levels.

I'm 10 DPO today and tested negative so I'm on a downer and had some major tears over my losses, I think going back trying straight away eased some pain temporarily and now its back to bite me on the bum.

How is everyone else doing???

 

[groovygrl]

Ah CJ

yup it's really hard, I know. Do some really special things for yourself right now. body/mind/spirit connection really spins sometimes. The initial first few cycles after MC are the worst. The thing is...it's just so possible. You're not out yet but while you wait to test again...eat your favorite things, see/talk to your favorite people, rent your favorite DVD, buy yourself a wee treat - even just a new lippy (instead of spending $ on three or four HPT's) only use one -the day after AF due.

hugs!

 

[thumbshoes]

New to the post and want to jump in:

I've had 3 losses... the first was an ectopic in Oct 08. Since then I've had early miscarriages around 6 weeks in Jan 10 and again April 10. My GYN has prescribed me 100mg progesterone to use once a day 2DPO until AF or 12 wk pregnant, also 1 baby aspirin a day. I've been using it for the last 4 cycles and haven't got my BFP yet. I'm hoping when I do it will be sticky one but I'm so afraid it won’t be!

My GYN didn’t do any tests for blood clotting issues… just said they are expensive and usually they just prescribe the baby aspirin and it doesn’t hurt to just take it… so take it!

My last PG my progesterone levels were REALLY good but the HCG count was low. So, I’m not sure if the progesterone is really going to help much. I did have a problem with spotting from 5DPO to AF and that has gone away with the use of progesterone so I’m hoping my issue has been implantation and that this will help.

Right now I’m approximately 11DPO and holding back on testing. When do you ladies think I should try a test?

I'm eager to hear some positive experiences with progesterone...

 

[Ruskiegirl]

Well my blood test came back negative so my period was late my doctor said probly because i ovulated 2 days late he said my progesterone still would have been low so he said lets see you get a positive hpt and then if you dont make it to your period before loosing it hes going to start me on progesterone after ovulation so now its a waiting game to see what happens hopefully i get a this cycle or the next cycle

 

[CJSG1977]

Ah CJ

yup it's really hard, I know. Do some really special things for yourself right now. body/mind/spirit connection really spins sometimes. The initial first few cycles after MC are the worst. The thing is...it's just so possible. You're not out yet but while you wait to test again...eat your favorite things, see/talk to your favorite people, rent your favorite DVD, buy yourself a wee treat - even just a new lippy (instead of spending $ on three or four HPT's) only use one -the day after AF due.

hugs!

You are sooo right. The other day I nearly bought yet MORE tests and I thought no, I dont want my life to be like that. Its my birthday friday and I intend on spoiling myself rotten. I bought myself some individual lashes (I love them LOL) to wear out on friday. And this afternoon I had a couple of hours with a really good friend and just one vodka and coke while we played with my new kitten. Easy to feel normal then, for a while.

 

[Chilli]

CJ- glad to hear you're feeling a bit better hun! I have the same thing every month at around 10-11dpo - the stress is too much sometimes and I spend thurs morning (now) moping about tearful when my DD is at preschool instead of being constructive. It's the only time I get to let it go so I guess I can allow myslef that.

My tests were 21 day tests for progesterone level.

Thumbshoes and Mel mel - welcome and sorry you have found yourselves here

I started accupuncture again last night - very expensive, but I want to spend a few months throwing everything at it and then I'm gonna give up and get on with my life - I can't do this forever and I'm missing enjoying my DD growing up

 

[CJSG1977]

CJ- glad to hear you're feeling a bit better hun! I have the same thing every month at around 10-11dpo - the stress is too much sometimes and I spend thurs morning (now) moping about tearful when my DD is at preschool instead of being constructive. It's the only time I get to let it go so I guess I can allow myslef that.

My tests were 21 day tests for progesterone level.

Thumbshoes and Mel mel - welcome and sorry you have found yourselves here

I started accupuncture again last night - very expensive, but I want to spend a few months throwing everything at it and then I'm gonna give up and get on with my life - I can't do this forever and I'm missing enjoying my DD growing up

Sounds like you are doing everything you can right now hun, but dont give up just yet! Its always when we least expect it

I did have a bad couple of days, I'm 12 DPO today and have had no desire to test again as I know it will be negative. Hopefully next month it wont hurt so much getting a bfn (bit of distance from the mc might help).

I'm testing tomorrow cause its my birthday and I am going out tomorrow night. I wouldnt want to drink if I was pregnant. But I doubt it will be positive as with my last pg I didnt get a bfp till after af was due. At least I'll be doing right though.

How was the acupuncture? What is it designed to stimulate??

And dont miss a single second with your daughter hun!!!! xx

 

[Chilli]

Thanks CJ. Like I said... a little bit longer.
Hope you had a fab birthday tomorrow and at least you'll be bale to have a drink if it is a BFN. I haven't touched alcohol for months and I'd love a bottle of wine right now!

The accupuncture was actually quite painful (i'd forgotten how it can be) particularly around my ankles where it makes my whole foot fizz. She's great the lady who does is, she listens really well to the issues and then does a treatment dependant on what you tell her and where you are in your cycle. She was trying to balance my hormones, calm my mind and lower my FSH levels long term. I got pg within 2 months with her last time so it's worth the money.
Anyhow, another day with DD tomorrow - going to look at potential schools, so let's hope things look brighter in the morning

 

[CJSG1977]

I'd not drink ever again if it meant I could have a little bambino. Had years to party But I will if its bfn!

Sounds like the treatments are intriguing! I have FX for you hun

 

[Chilli]

Hello all, how are you?

Here's a bit of interesting news, I had accupuncture on wed as some of you know, since then my temp has shot up from 36.77 to 36.97 which is much more like it was before when I charted. Also my symptoms of low prog (sore boobs etc) have lessened. I'm trying not to get excited and convince myslef that a triphasic pattern is down to pg as I never had it before, but I am excited the accu seems to have made a positive difference... yipee, feeling a bit hopeful again fo rthe future. According to graph I am 9dpo and Bd'd night before OV (I thought I was 11 dpo)

 

[Chilli]

Ok so i got my results from 21 day test - except it was 19 days - my level was 30.3 - so what do you think? She told me it was on the low ide but not too bad?? Have had an excellent month as far as symptoms of low prog concerned, especially since accupunture - do you think levels change month to month? Doc wants me to do another test next month and will try to get it on right day this time!!

 

[moonmama]

Hi ladies,
I saw my consultant today following my 4th mc and he said next time he'd give me fragmin injections plus baby asperin and hcg injections (pregnyl) again but not progesterone. The hcg injections are supposed to boost the bodies own ability to produce progesterone but it didnt work last time so not sure what difference adding fragmin and asperin will make. Any thoughts anyone? x

 

[CJSG1977]

Apparently having an hcg shot is like mimicking the body's leutenizing hormone so it helps with ov....and then its meant to trigger the body making progesterone (which is what LH would do...)

https://www.ehow.com/how-does_5748146_do-shots-affect-progesterone-level_.html

Baby aspirin and fragmin are blood thinners...they prevent clots. Have they suggested you have a blood clotting disorder?? I was tested and they came back negative and I've had 6 mc's.

Its very hard to diagnose the causes for early miscarriage and it is usually down to something hormonal or a defect in the sperm or egg...so they seem to look at hcg and progesterone 1st as thats most common.

I have looked a lot in to progesterone and I have bought the natural cream. But I have since read that if there are low levels of progesterone it can be because the pregnancy was not viable and its the body's way of ending the pregnancy, but like me you've had multiple so I would certainly question why he is not giving it to you. Request bloods at CD21 for progesterone....they should be up by then and can determine that ov has happened. (But again like me you know you ov caus eyou can conceive...)

It will do you no harm to take as he has prescribed. But if it doesnt work I would question it more.

GL x

 

[moonmama]

Thanks CJ,
all tests after the 3rd mc came back normal so dont think they think its clotting disorder. He said he was taking a pragmatic approach and treating me as if I was tested positive to elevated uNKcells but without actually testing because its expensive, invasive etc. I'm a bit confused about this though as they usually treat immune issues with steroids and LIT or IVIg etc. He said he didnt want to try steroids 'yet' so presumably I have to have a 5th miscarriage first! .

 

[Chilli]

I'm sorry moonmama . i don't know much about those tests, but sounds like he's very keen to help which is an unusual bonus

 

[CJSG1977]

Isnt prednisolone used to treat those with high uNK cells???? I dont know much but what he is giving you are blood thinners...doesnt make sense. Seems he is messing you about. I am seeing a specialist very soon so when I go I will ask, maybe the answers will help us both.

I'm not familiar with LIT or IVIg, will look them up.x

 

[moonmama]

Thanks chilli- its hard to explain really. Without sounding ungrateful it feels like he's just trying any old thing! Like CJ said- its an odd combination of drugs to give me when I tested negative for the clotting disorders! unless anyone else can shed some light? Thanks CJ- I appreciate you doing some digging!

 

[Ruskiegirl]

Ok so i got my results from 21 day test - except it was 19 days - my level was 30.3 - so what do you think? She told me it was on the low ide but not too bad?? Have had an excellent month as far as symptoms of low prog concerned, especially since accupunture - do you think levels change month to month? Doc wants me to do another test next month and will try to get it on right day this time!!

30.3 doesnt seem low at all most doctor consider low less then 15 so i think thats a great level mine was 10.2 at day 21