TTCAL PCOS thread

[Sparkly]

They always seem to respond more apropriately when you are armed with info or show you will not be fobbed off.

This is absolutely true......at my docs appts I usually just walk in and ask for what I want......referrals, prescriptions etc, she knows me well, just smiles quietly and does what I want!!

 

[hb1]

Mine was the same sparkly - came off met in May last year as dr said to when I went to see them about ttc - this is only as it isn't licensed for pregnancy so they were following protocol - I got my bfp mid nov at 4 weeks and mc mid december - I demanded a referral to a specialist who put me back on met and said to stay on it if I get pg until 16 weeks. I am a lot firmer with the gps now!!!

 

[rubygirl01]

i agree met is the best bet. My doc told me i would only come off it if i get pg during my 2nd and 3rd trimester. I did not know i was supposed to be on it full time and so one i read on here learning how others have been treated and went into the doc armed with the info they really seems to listen. Not to mention it was better for me too because i understood and knew just what to ask. Just like my last appt, i am still having issues with the sick tummy and tired all the time as well as a few other issues. We found out that if i drink OJ every morning i feel so much better. It has been a learning process this time.
as far as AF after my mc in feb mine was a bit different then most. I chose to go on BCP for 2 cycles. I got my first AF 27 days after my mc and then my 2nd AF was 28 days later ( ended today) and i stopped my BCP a week ago today. So now i just wait to see if i O this month or next. HTH

 

[hb1]

glad you're getting more on track Rubygirl - post mc cycles are bad enough without pcos being thrown in the mix!!!!

 

[rubygirl01]

i agree HB1, i figure if i am gonna be on this for life i better find a way to cope. Now i just have to figure out if i am O or not. The b6 and iron are making my life so much better right now...i am in heaven..lol

 

[natp18]

Hello Lovely Ladys

Sorry I havent been on for a while,things have been very stressful at this end.
Still very stressful here ,still got another stone and half to loose in weight before referal for icsu/ivf can be made. Consultant thinks this is the way forward as OH sperm morphology is less than 1% very upset and gutted. I am currently on cycle 2 of clomid ,didnt have that greater success with first round so they have upped my dosage and I go back for follicle scan tomoz to see if its working. I am now back off of maternity leave and back at work,where its quite clear people feel uncomfortable around me given I was preggers with Lillie last time they saw me and now ...well you know.
I am trying not to get stressed but it seems as though yet again there is always a hurdle to overcome and loosing the rest of this weight is proving difficult even though I have managed to loose nearly 4 stone in under 4 months......but just dosent seem to be gd enough for consultant to refer me...even though I broke down in his office and told him how scared I was and the genetic outlook we face when pregnant "for those who dont know we have been told we could have alot of non viable pregnancys before we have a healthy onebaby" He still wouldnt refer us until this dam weight is fully off.I wouldnt mind I look healthy and curvy now and def not overly big like I use to be but its all about the perfect BMI arhhhhhhh.
I now know I wont have a 2010 baby now ..........just makes me wonder will I ever be preggers again....it feels very scary at the moment and I miss Lillie so much.
Anyway sorry to go on.
Hope your all doing well,and thank you for last replys sorry I didnt get back to you all sooner

hugs
Nat xx

 

[Sparkly]

Awww Nat have a hug, you sound like you need one.

You've done so fabulously well with losing so much weight, huge well done to you for that hun. 4 stones in 4 months is a massive achievement. It's really cruel that most of us pcos ladies put on weight so easily and then have to struggle to get any off. I've been dieting since Jan 2008, and it's an up and down fight all the time and soo hard, so I do understand your feelings of frustration. Now I'm back on the metformin, I do seem to be losing a bit quicker, well it's either the met or my sheer bloody mindedness!! I need to get another 24lbs off and that's just so the met works better!! after that I have another 2 stones to shift, before I'm even 'overweight' according to my bmi!!!!!

You will be pregnant again, from the sounds of things icsi sounds perfect for you guys, keep plodding on hunny, you will hold that perfect beautiful baby in your arms xx

 

[hb1]

I agree with Ruby Nat - It is so tricky with the BMI thing and that last bit of weight is traditionally harder to shift even for non pcos'ers - and all the guidlines I've read on the rcog website quote the bmi 30 as a guideline but it also says that these can be put to one side - this is the exert that seems poignant is :
How guidelines are used in the NHS
In general, health professionals working in
the NHS are expected to follow NICE’s clinical
guidelines. But there will be times when the
recommendations won’t be suitable for someone
because of a specific medical condition, their
general health, their wishes or a combination of
these. If you think that the treatment or care you
receive does not match the treatment or care
described in the pages that follow, you should
discuss your concerns with your doctor or nurse.

This is the link :

https://www.rcog.org.uk/files/rcog-corp/uploaded-files/NEBFertilityIFP.pdf

Take care Nat

hx

 

[bumpyboo]

Hello ladies, just wanted to share my good news that i got my BFP last night been 2 the drs today and got a scan next week. chuffed to bits but also very scared!! Baby dust to u all xxx

 

[Sparkly]

That's fabulous news bumpy congrats hun, have a happy and healthy pregnancy xx

 

[hb1]

Yey Bumpy !!!

Good luck - wishing you a happy healthy pregnancy

Will you be found lurking in PAL now?

hx
hx

 

[chocolate]

Hey Nat, hope your doing ok, read your last post and you have a lot going on and trying to stay positive must be such hard work, I really hope you get some good luck coming your way soon xx

Congratulations BB xx

Thinking of everyone else too, just popped back over to see how everyone is getting on.

Im doing well, and bubs is too, Ive relaxed a lot now too and allowed myself to buy a couple of outfits.
Hope when I pop back next time there will be some more good news in here xx

 

[hb1]

Hey Chocs

Nice scan pic

Glad all is going well - so if you have bought outfits do you know whether your bean is a boy or girl?

I got a v faint line on an ic today so if no af tomorrow ( will be 15dpo tomorrow ) will do a digi test - fxd !!!

hx

 

[Sparkly]

OMG!! hb1

fingers crossed hun!! I used a lot of those IC tests and a faint line = BFP!!!!!!!!

Looks like the met has done the trick for you this cycle, I definately felt it gave me a stronger ovulation.

How exciting......Don't forget to update us tomorrow xxx

 

[hb1]

Will do Sparkly - trying not to get too excited - I hate the ic's tho - much prefer the digi tests - definite answers intead of worrying whether it's a line or evap or imagination

hx

 

[sherlock]

Hi ladies,

Thought I'd join you here as I have been diagnosed with PCOS and had an MMC / ERPC on April 29.

Anyway, I had an appointment at the infertility clinic today... what a total and utter complete waste of time

Bit of background before I start my rant: I got referred to the infertility clinic by a private consultant, who I had been seeing regarding irregular cycles and who diagnosed PCOS. When it became a fertility problem (TTC for over a year), she referred me to the hospital. While waiting to see them, I got pregnant (helped out by my CBFM). When I miscarried, my consultant told me to ring up and rebook my appointment, which I did.

Well, what I thought was going to happen did happen. The dr's opinion was 'well, you've got pregnant once, so we're not going to do anything'.

He hadn't read any of my referral notes. He said 'So you've been referred because you've had a miscarriage' to which I replied 'No - I've been referred because before I fell pregnant, we had been TTC for over a year, and I have PCOS and only ovulated 3 times in 14 months. And after I miscarried, my consultant told me to rebook my appointment so that my PCOS could be treated'.

That's when he said 'But you've got pregnant, so you will get pregnant again'. a) I might not get pregnant again and b) if I do, I don't want to wait another 14 months for it to happen.

He didn't know about my symptoms, or my ultrasound or laparoscopy confirming PCOS, or the results of any other tests that my consultant has done. All of which were in my notes.

He is sending me for day 2 and day 21 blood tests (which have already been done numerous times by my dr and my consultant, and which have shown no ovulation). That's it.

I am really angry, but at the same time it just confirmed what I thought anyway - that now I've been pregnant, the fact that I had 14 months worth of (proven) problems and then lost the baby doesn't matter.

I asked whether PCOS could have been a factor in the miscarriage, and he said 'Oh well when you get pregnant again, we'll monitor you'. Well, that's not really answering my question is it...

He mentioned follicle tracking, but I just think that's pointless if it's another 3 month cycle, and I'm going for scan after scan and seeing no mature follicles, and then when an egg does appear after 3 months it could be poor quality so I could miscarry again.

It's all so frustrating! Why do drs treat people who want a baby as if they're hypochondriacs?! I know I'm not - my wildly irregular cycles and lack of ovulation prove that!

Rant over - I need a cup of tea

 

[hb1]

Sherlock - I am very sorry for your loss and that you've had such a bad experience with the consultant - I would book another appointment after the bloods are done ( and it does seem stupid that they don't use your previous tests ) and just go in with a "what are we going to do to treat the pcos" attitude - they can treat with Met and if no ov then clomid/femara to bring on ov - they do follicle tracking for clomid use so maybe he's thinking of this for you? I have never had my follicles tracked. And if you feel fobbed off at the appt next time then make sure he knows that you aren't happy. I have def found these chaps need a firm hand!!

Really hope you get the help you need

hx

 

[keepsmiling]

iv been havin probs concoeving too
been ntnp for 2 years n activly trying for 9 months ish!!!
has any1 had any issues with gettin pos opk but not actully ovulting??
xx

 

[hb1]

I haven't but only been cbfm'ing for 4 months - has your dr checked if you are?

hx

 

[keepsmiling]

well he did day 21 bloods but i only got pos opk today on day 25 so obviously it said that i wasnt lol . i might go ad c my doc tomo and c wot he says xx