Hi everyone,
I thought I would come on here and see how everyone is doing and I'm really sad to see that noone has got their BFP yet. Its so disheartening and I really hope we get some goods news soon. Jelly, it sounds positive that they have found a potential cause for your spotting. I hope they manage to sort it for you and that you get your BFP soon.
As for me, our appeal hearing for our NHS funding happened mid-April. The CCG wrote to our consultant in reply to the appeal he had written and we were copied in. They said what date the appeal meeting would take place and they also said that we would hear back between 5 to 10 working days after the appeal. Well it took much longer than 10 working days, even taking the bank holidays into account. I rang up to enquire as to when we found out and the woman on the phone told me she would call me back and when she did she told me that they hadn't even sent out the letter till the 2nd May and she was very nice to me when she called me back which instantly made me realise that it was going to be bad news and it was.
Basically my consultant wrote to them to say that he thinks that my fallopian tubes are diseased but they continue to refuse to fund our treatment on the basis that there is no proof that diseased tubes are whats causing our infertility - but surely you could argue that is the case for other leading cause for infertility? Take someone who has PCOS or endometriosis for example? If they had a diagnosis of that I can't see how they would be refused funding so how is my case any different?
Their interpretation is that I am not considered infertile until we have been trying for 3 years (not 2 as per the NICE guidance). Had I not got pregnant in December 2011 (and lost it) then I wouldn't be in this position and the funding would have been approved. If I was less than a year older than I am now (i.e. 35) they would also have approved the funding because I would only have had to wait for 2 years if aged 35 and over.
So I have now basically given up with the NHS. We originally started trying when I was 30 (about 2 months away from when I turned 31) and I am now 34. Time is precious and in hindsight I wish I had never even bothered with the NHS. I also wish I had never even told my GP when I had got pregnant because all that has happened is that they have used that pregnancy against me. Losing a baby is hard enough - but to have it used against you when you need funding for fertility treatment is callous in the extreme.
I am writing to my MP next, although I know it won't make any difference as far as my individual case is concerned. When I look back at when I went to the GP countess times in the early days TTC because I was spotting 2-3 weeks of every month and they told me I was worrying over nothing - it makes me so angry!
We are going private now but it will cost us every penny we have and more.
And to make things worse I have started spotting today!
All those doctors who say spotting is normal are complete idiots. Good luck everyone and I hope with all my heart that someone on here gets a bfp soon.