He has a condition call hypermobility.....He started cruising at 8mths but didnt walk until nearly 17 1/2mths and at 18mths old we noticed he had an issue with his feet.....he refuses to walk any distance always wanted to be carried or his buggy (he doesnt use his buggy now mainly out of embarassment since he started nursery he wont use it anymore!) and was always complaining his feet hurt him....when he was little it wasnt so much of an issue but now hes older he gets really really devastatedly upset if we have to walk a little way....he was referred to cons when he was 18mths and we have been battling every since for a diagnosis until two wks ago we had an appointment with a paediatric physician and after a few tests/exercises on DS we got a diagnosis.....hypermobility.....it effects muscle activity and cause lo`s have low muscle densitity (not as muscley as adults!) it takes a lo with the condition four times a much effort to do something as it would another child there age who doesnt have the condition....ie writing his name takes 4 times as much concentration/effort, putting his shoes/coat on or getting dressed and so forth.....DS is exceptionally bright (am perhaps biased on this opinion!) but nursery staff are amazed with him for example they had a french speaking supply teacher and DS started speaking french?!?!?!?! and cause he is so forward he gets extremely frustrated and can have a terrible temper trantrum! he struggles cause he doesnt know how to cope/react...... its normally easier to diagnosis and is commonly linked with learning difficulties generally around minor motor skills and cause DS didnt have them its taken a little longer to get there.....its a condition we dont know the outcome of ie will he grow out of it or could it get worse? right now he has to have physiotherapy and we will be taught how to do this and tricks to help his condition.....we might have to adapt things like railings on either side of the steps in our house as he doesnt climb them one foot after the other and struggles and he may need a mobility buggy....the problem may be come more of an issue when he starts school writing, reading (no concentration!) sports at school etc....we are currently waiting on the physio app and he has a scan booked for later this month....I am optimistic we can deal with this head on and get it under control......dont stop fighting for answers hon you know your baby better than anyone else!
omg poor thing i can sympatise i have HMS too, i onyl got dignosed this year, went to see about having RA but turned out to be HMS instead, getting my joints strapped up soon, but on mega strong painkillers because of it so hope that he gets the help he needs for it sooner rather than later xxx.. wow thats brilliant that he is able to do that french
he is bright little bee
yeah makes sense kids that are bored do tend to get more frustrated poor little thing
i really hope that he improves i know i wasn't too bad as a kid but because of lack of help my condition got worse but cause i am an adult and love being physical i often drive myself into agony, but can't bear to give to much up lol
hoping to go hiking this year again as me and OH do it every year to get away from DS lol..
and DS loves streetdance so its an ideal opportunity to kill two birds with one stone!
to everyone!
