Hi Ladies. Some of you may know me (I haven't read through the whole 80 pages to see who all is on here), but most of you probably don't. DH and I have been ttc for 3 years come June. In that 3 years, I've been pregnant 6 times, but mc'd each time. My known issues are: PCOS, Hashimotos, MTHFR mutations (homo c677t), age (38 in August though my egg reserve seems good so far), septum, and progesterone deficiency. DH's issues are only MTHFR (compound heterozygous).
I've had an HSG (tubes clear), 2 MRIs, Septum removal surgery (left scarring or a fold), several u/s, and more blood tests then I care to remember. I've changed my lifestyle completely, lost 105 pounds, gotten my PCOS and Hashimotos under control, addressed my MTHFR mutations (no folic acid for this girl!), and have become a close and personal friend to needles of all sorts (*sigh*).
My drs have been a real let down in this journey. My first OB refused to test progesterone during my first pregnancy. She also found the septum, but instead of giving me balanced information about it, told me only that it was nothing and normal and wouldn't cause any issues. After my 2nd miscarriage I started seeing an RE, but I've had to be the one pushing for tests and doing the research. When I had my septum removal done, they refused to do any kind of tests after to make sure that everything was fine after the surgery. They told me that I'd be "so pleased, we got everything and you'll be pregnant in no time!". I thought I covered my bases by insisting on an u/s to check my lining, but no, not all u/s's are created equal.
It wasn't until my 2nd miscarriage after the surgery (6th overall) that I insisted on a blood flow doppler u/s (to check blood flow to my lining during my LP) and found out that the septum story wasn't over and that I had either scarring or a fold that had resulted from the surgery. In addition to that, my 6th miscarriage showed that even on progesterone suppositories, I was progesterone deficient (my numbers dropped way too fast for even a miscarriage to have caused the drop), but I had to push to find that out as all my RE would say at first was to "keep trying"... 6 miscarriages lady! There is SOMETHING wrong that we aren't addressing! Anyway, that was just about the first thing out of her mouth at the meeting that I demanded.
So yeah, a lot of frustration and bitterness here. I've been left behind by nearly all of my friends, even those in recurrent pregnancy loss forums, and it just sucks to always be the cheerleader and never the one being cheered for.
Currently we are on hold with ttc while we wait for the procedure to have the scarring/fold removed. After that is done, I will be demanding another MRI to make sure that this time my uterus lining is free and clear, smooth and ready to go. I never got the doppler blood flow u/s that I wanted (Kaiser sucks basically), so in June (cycle after the hysteroscopy), I'll be finding an outside source to do the u/s as well. HOPEFULLY, we'll be able to be back to ttc in July.
Some of the changes that I've made in this journey: No cheap synthetic vitamins for me (folic acid, I'm looking at you!) - I make sure that my prenatal and all additional supplements that I take contain methylfolate (bio active or broken down form of folate), methylcobalamin (bio active B12), and P5P (bio active B6). I'm also very careful with the forms of Vitamin D and CoQ10 that I take to make sure they are the best, easiest form for my body to use.
Dietary-wise, I've cut processed sugar, simple carbs, gluten, and most dairy from my life. I also try to avoid most processed foods since so many processed foods include folic acid, hidden sugars, or gluten. We cook or bake most of our stuff by hand so that we know what goes into them.
Anyway, that's a long enough intro.
I'm sorry that any of us have to be here. It's a long hard journey for us and that just sucks. Hopefully all of us get our sticky bfp's this year